First Appointment for LEVO

Discussion in 'Support' started by dayma, Jun 23, 2018.

    1. dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Hello all! I just scheduled my first appointment for the LEVO system. I have been reading all the scientific periodicals and decided it's definitely worth a try as long as it does not make my tinnitus worse. It will be around 1 hour of tests/questions to determine if it's a good fit for me or not.

      I will keep the forum updated in case others are interested in the system.

      Thanks and wish me luck!
       
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    2. Kolisar
      No Mood

      Kolisar Member Benefactor

      Tinnitus Since:
      birth?
      Cause of Tinnitus:
      unknown
      @dayma , That is great! I hope it works for you and helps resolve your tinnitus.
       
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    3. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      The Levo system does not resolve tinnitus, it just disconnects the emotional brain from the auditory brain teaching people to habituate.

      headphone usage is not recommended very long for people who do have tinnitus.

      This is a step backwards in tinnitus research, if the Levo system becomes glorified before actual research to reduce the volume of tinnitus research gets held back once again.

      The crowd thunderously applauds as progress is halted
       
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    4. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Disagree on the premise that because the LEVO system exists that it halted or stalled any other research. That's a non sequitur.

      If LEVO can help people now I don't see the issue.
       
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    5. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      Do what’s right by you, Dayma. Good luck with it all.
       
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    6. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Thanks for the support!
       
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    7. InfiniteLoop
      Relaxed

      InfiniteLoop Member Benefactor

      Location:
      Redwood City, California
      Tinnitus Since:
      01/21/2014
      Cause of Tinnitus:
      High frequency hearing loss in left ear from head trauma (?)
      @dayma

      The Levo system does not offer anything that justifies the many thousand of dollars they ask from you. Matching your T sound, and playing it while you are sleeping is far from state-of-the-art technology. You can do the same with your smartphone and some comfortable bluetooth headphones.
      There are other products in the market that offer similar functionality for a fraction of the cost:
      1) The new Bose Sleepbuds:
      https://www.bose.com/en_us/products...eepbuds.html#v=noise_masking_sleepbuds_silver
      2) The kookon headphones:
      https://kookon.io/
       
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    8. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Honestly the money does not worry me.

      What app would you suggest that would be used out of curiosity. I have been using AudioNotch and do struggle to match my frequency.
       
    9. RingerBell

      RingerBell Member Benefactor

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      These don't currently allow user to add any own sounds, only to select from 10 preloaded sounds (FAQ Q4).
       
    10. InfiniteLoop
      Relaxed

      InfiniteLoop Member Benefactor

      Location:
      Redwood City, California
      Tinnitus Since:
      01/21/2014
      Cause of Tinnitus:
      High frequency hearing loss in left ear from head trauma (?)
      That is assuming your frequency can be matched. Many people have multifrequency T or noise T. In my case, it is some sort of ever changing sound roughy in the range 8 to 14 KHz that is where my left ear audiogram drops compared to my right ear. Absolute frequency or sound matching is pointless in a case like mine.

      Many people use MyNoise for partial masking. It has many therapeutic sounds. I use the equalizer settings to select the high frequency only. For example, “Impulse noise” last two bars are centered roughly to 8KHz and 16KHz, and they really tickle my T. The Noise Gen iPad app let you design you own noise bandwidth, and when I select the 8KHz -14KHz limits has some of the character of my T.
       
    11. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Well If money is no object, get Desynchra. They help you match your frequency, it's slightly cheaper, and it actually reduces tinnitus volume.

      LEVO works by not matching tinnitus FREQUENCY, but SOUND as well. That's much harder.
       
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    12. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      I will check it out. Ty
       
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    13. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Very interesting. Never knew about this and it's at one of the best hospitals in the states which is near me. Thanks again sir. Definitely something to research more!!!
       
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    14. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      No problem. Wish you luck and hope your tinnitus gets better.
       
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    15. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      If you do pursue this, please let me know via PM. It looks interesting and I realized there are several well regarded clinics near me that offer it too.
       
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    16. InfiniteLoop
      Relaxed

      InfiniteLoop Member Benefactor

      Location:
      Redwood City, California
      Tinnitus Since:
      01/21/2014
      Cause of Tinnitus:
      High frequency hearing loss in left ear from head trauma (?)
      Desynchra (ACRN) is only recommended for tonal tinnitus, tinnitus frequencies less than 10KHz, and hearing loss profiles that have good hearing half octave above the tinnitus frequency.
       
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    17. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      ACRN works really well for me and I have hissing tinnitus.

      Anyways, apparently they can match sound too for us hissers. That's probably their main marketing tool against people just using generalfuzz.
       
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    18. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      I have a single tone hiss around 13k - 14.5k.
       
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    19. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Will do . Calling he hospital tomorrow morning to get an appointment.
       
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    20. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      Good luck with this! Please, let us know how you progress if you do decide to pursue this.
       
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    21. InfiniteLoop
      Relaxed

      InfiniteLoop Member Benefactor

      Location:
      Redwood City, California
      Tinnitus Since:
      01/21/2014
      Cause of Tinnitus:
      High frequency hearing loss in left ear from head trauma (?)
      That is too high because ACRN uses tones above and below the T frequency (close in the tonotopic map), and stimulation at 16KHz is difficult. The tonal requirement comes from the fact that they use single tones for stimulation, and that they are acting in “small” regions of the tonotopic map. The broader the bandwidth of the T, the less likely to have an effect.
      In my case that I have a very broadband T with slope hearing loss at very high frequencies. I can only use to around a main frequency of 8-9KHz. It provides masking, but as soon as I stop it the T is back. It has no long term effect, and sometimes when I use for a long time my T gets somewhat worse later.
       
    22. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      @dayma I’ve bought it and am currently using it. You can’t use acoustic CR neuro because like me your tinnitus is too high pitched. Levo is the only option.....

      Regards price if you really want it unless your a student or unemployed you can afford it. On finance or a long term 0% credit card it’s as little as 80 quid a month so that argument is ridiculous and when I see people on go fund me begging for help it’s absurd. If you can’t get a credit card I’m sure a friend can and you can pay them back. If you want it you can get it.

      Look I’m not going to bang on about how I’ve found it, I think it’s important that you do whats right for you but bear in mind you have to sleep with this on so my advice is try a few nights with just standard in ear headphones on...all night. See how you get on with your tinnitus sealed in and the discomfort of sleeping in them. If you’re a back sleeper and your tinnitus isn’t too bad you should be fine.

      Also make sure you take an actual pillow with you when they fit their earbuds. I’ve gone back and forth trying to find a comfortable set and have not succeeded with their standard so called ‘custom’ ones. I found them very uncomfortable with a hard plastic ‘driver’ type thing protruding from the ear. I now have custom plugs of my own which I use with it.

      Anything else you want to know just ask but to be honest it’s not an easy thing to use and I certainly don’t manage all night with it on but I’m trying to build toward it.

      Please don’t ask me if it helps because it’s too early to say and as I said I don’t want to encourage or discourage anyone on that front. Just maybe heed the above advice before spending the money cos if you can’t tolerate the earbuds or sleep with the racket in your ears all night your not even going to get off to the races.
       
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    23. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      LEVO has the same problem with high pitched sufferers. On that front, if you can still hear the frequency that your tinnitus is in, you still benefit from ACRN, just not much. About half as much, because you're getting the lower tones.
       
    24. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame

      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      @dayma please keep us updated! FWIW Signal Timing is kinda like "next gen" desynchra in a way. At Least my trial has all of the acoustic elements: pitch, type, sound, loudness matching blah blah blah but also adds in the nerve stimulation as well.
       
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    25. annV
      Fine

      annV Member Benefactor

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      Levo did absolutely nothing for a friend of mine, I'd avoid it like the plague. Waste of money...
       
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    26. Montana

      Montana Member

      Location:
      san jose california
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      trauma
      @dayma how you doing? Im in my day 35 of Levo. @Bam Same question. I hope you have good news
       
    27. Mario martz
      Creative

      Mario martz Member

      Tinnitus Since:
      02/2016
      good luck dayma, keep us posted
       
    28. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      My appointment got pushed back.

      Are you seeing results yet?
       
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    29. Montana

      Montana Member

      Location:
      san jose california
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      trauma
      tomorrow I'll see the doctor, very good two first week, but now my T is loud @dayma
       
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    30. AUTHOR
      AUTHOR
      dayma
      Pacman

      dayma Member Benefactor

      Tinnitus Since:
      1/6/2018
      Cause of Tinnitus:
      UNKNOWN
      Well hopefully the first weeks are an indicator of the future. They say its a 3 month program.
       
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