For Those Who Succeed with Habituation

Discussion in 'Support' started by Naddesh, Aug 5, 2015.

tinnitus forum
    1. Naddesh
      Sunshine

      Naddesh Member

      Tinnitus Since:
      07/2015
      Hi! Im only curios about those who finally reached that state of mind.

      Do u consider yourself happy as you were before?

      Do you consider yourself having a limited life? (Activities such as clubbing etc)

      Has it effected any relationship in your life?

      Has your T changed?

      I so want my normal life back... I used to see big things in the small but now i just feel the other way.
       
    2. Rachiejo

      Rachiejo Member

      Location:
      UK
      Tinnitus Since:
      01/14
      Hi @Naddesh

      I thought I would pop back on here to see if I can help anyone.

      After having tinnitus for 2 years I can say that I am definitely as happy if not happier than I was before!

      I still do the normal things I used to do like going to the cinema, pub etc and used to go clubbing (wearing ear plugs) with tinnitus. I don't go so much anymore but not for that reason :)

      It definitely affected relationships when I was in the anxious/fearful stage of tinnitus as it was all I talked about! Now that it is no longer an issue it doesn't affect my relationships at all.

      I don't think my tinnitus has changed but I don't really monitor or listen for it but as far as I'm aware it hasn't got any louder.

      You will get there, all you need is time and life will be back to normal :)
       
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    3. Tennrltr
      Depressed

      Tennrltr Member

      Location:
      Tennessee
      Tinnitus Since:
      December 2014
      Cause of Tinnitus:
      Fall in 2014
      Great words of encouragement. Thanks.....God Bless !
       
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    4. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      Well,... I think your words will be both comforting and encouraging for those relatively new to suffering with T and struggling with habituation.

      Thanks for coming back on the forum in order to give other people hope that things will get better...(y)
       
    5. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      You've been dealing with this for a long time, Jim... what are your thoughts here?
       
    6. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      I think that habituation will and does happen eventually for the vast majority of those who suffer from T and even H if they are not at a catastrophic level.

      However, being that I experienced both T & H at the raging/catastrophic level for four months last year, I can say that I do not believe that I could have ever habituated to that level of suffering. I consider myself extremely fortunate that they did not remain at that level of severity.

      I saw what it did to me in only four months. That's why I would never tell anyone on the forum that has both T and H at a catastrophic level that they will eventually habituate to it. That's because, having experienced it, I know that I never could have. Going from levels 6-7 to levels 9-10 for me, brought a tremendous increase in suffering and misery.
       
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    7. snow86
      Surrender

      snow86 Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      2006 - Extreme T since 12/2013
      Cause of Tinnitus:
      see "information" on profile page. Crippled by extreme T
      Thank you! Couldn´t agree more, unfortunately there are some people here who think habituation is for everyone.
      Im on 10/10 everyday and when I get a rare 7/10 day it´s already a huge difference.

      But lets not scare the threadstarter...habituation with "normal" tinnitus and getting your old life back is almost guaranteed. I´ve been there myself.
       
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    8. uae96
      Thinking

      uae96 Member

      Location:
      Dubai, UAE
      Tinnitus Since:
      6/14/2015
      Cause of Tinnitus:
      Noise
      How did you recover then?
       
    9. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      He said the noise levels went down.
       
    10. Robert44

      Robert44 Member Benefactor

      Location:
      New York
      Tinnitus Since:
      April 2015
      Cause of Tinnitus:
      loud concert
      I've had T for a little over 3 months. I'm feeling much better than when I first got it! Almost have my life back. I do worry that it might get worse someday. This is something that really concerns me. It actually is probably a little better than it was. It is something that I think about many times a day. I can't just for example take a rest without hearing it. Can't just put my head on the pillow without hearing it. I then have to concentrate on my breathing instead of listening to it. Overall I'm so much better. So please have hope!!! Good luck!!
       
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    11. uae96
      Thinking

      uae96 Member

      Location:
      Dubai, UAE
      Tinnitus Since:
      6/14/2015
      Cause of Tinnitus:
      Noise
      Ah ok , didn't see it
       
    12. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma

      I had to resort to an using an AD for a while in order to reduce my anxiety, to help me sleep, and also restore my appetite. After my anxiety level began to ramp down so did the levels of both T and H. The fear that was caused by the thought that my T & H might remain at a catastrophic level for the rest of my life also subsided.
       
    13. uae96
      Thinking

      uae96 Member

      Location:
      Dubai, UAE
      Tinnitus Since:
      6/14/2015
      Cause of Tinnitus:
      Noise
      And are you still on the ADS?
       
    14. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      No, I went off of the AD months ago. There's been no increase in either T or H since coming off the AD.
       
    15. passerby
      Lurking

      passerby Member

      Tinnitus Since:
      God only knows...
      Noted. And agreed.

      However, according to the expert of all experts, Dr. Nagler, when it comes to "Tinnitus and TINNITUS" there is only tinnitus:
      a (concerned) passerby
       
    16. uae96
      Thinking

      uae96 Member

      Location:
      Dubai, UAE
      Tinnitus Since:
      6/14/2015
      Cause of Tinnitus:
      Noise
      That's good man ! Some people don't get luck with ads
       
    17. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      @Naddesh for what it's worth, though I do not consider myself habituated, my quality of life is still probably, overall, as good or better as it was before my T got worse, mainly because dealing with this has forced me to make significant structural changes to my life which I had been unable to make without the proverbial gun to my head.
       
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    18. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      I agree....and I definitely intended to imply that in the first sentence of that post of mine that you quoted from. I certainly don't want to add to anyone's anxiety because of something that I write.
       
    19. here2help

      here2help Member

      @Naddesh,

      Habituation of tinnitus isn’t only a state of mind, although it may start there. FWIW, my answers to your very good questions.
      1. Yes. Tinnitus has zero impact on my well-being or my capacity for happiness.

      2. No, my life isn't limited by tinnitus in any respect.

      3. Yes, tinnitus has affected some of my relationships, but in a good way. Like any challenge that was difficult to surmount, I’d like to think it had a positive impact on the sense of empathy I feel for others.

      4. Yes, my tinnitus has changed. And then, over time, it reverted to baseline.

      5. You once saw big things in small things. It may be that you don’t have access to that quality in yourself at this time, but that part of you hasn’t gone anywhere, in my opinion, and the chances are good that you will feel that way again.
      I admire what @Rachiejo wrote to you. I agree with @jimH that tinnitus becomes a non-issue for most people with tinnitus, over time. But I'd also suggest to Jim that for individuals with severe hyperacusis, the goal is not to habituate hyperacusis but to increase tolerance of sound. People with tinnitus AND hyperacusis can improve to the point where every one of Naddesh’s questions can be answered in a positive way.

      @Robert44, the concern that tinnitus might get worse someday is a common one and may be well worth exploring.

      here2help
       
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    20. Naddesh
      Sunshine

      Naddesh Member

      Tinnitus Since:
      07/2015
      @here2help, @Rachiejo, @jimH @Robert44 thank you so much for your answers. Its so good to see that I can actually get responses from supportive and positive people. This night I actually had a good night of sleep. Yesterday my family was very supportive and was pushing me to think about my dreams and my life that I never could complain about before T. My life is good. I dont want T to rule it. Most of the time 85% I dont hear it, Im up doing things all the time. But 99% of the time I do THINK about it. That's what I have to work on I guess..

      And yes I do feel worried it can get much worse. i kind of feel limited because of that fear. I Love clubbing with my girlfriends, celebrate someone and I love love weddings. I can have earplugs, but ive been Reading that it still can be bad for T. And some say its doesnt do any changes for T, so confusing
       
    21. tinnitussufferer
      Angry

      tinnitussufferer Member

      Location:
      UK
      Tinnitus Since:
      1/2004
      how loud is going clubbing? it seems a silly thing to do whether you have tinnitus or not. You will likely suffer hearing damage at some point as you get older. Those places are so loud that you cannot hear yourself speak. Where is the fun in that?

      Its like smoking. If you want to damage your health, its up to you whether you carry on or not. You cant carry on smoking and worry /complain about the health consequences.
       
    22. jimH
      No Mood

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      I'm not at all convinced that is true for people that have had T & H at debilitating levels for an extended length of time. I would appreciate some feedback from @snow86 .. @Telis ... @dan ... @Street Spirit regarding that statement.
       
    23. snow86
      Surrender

      snow86 Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      2006 - Extreme T since 12/2013
      Cause of Tinnitus:
      see "information" on profile page. Crippled by extreme T
      Mentioning our names already answers that question. :(


      Here2not2Help is just one of those people who give absolute statements because he/she thinks he knows it for sure because he beat mild tinnitus. Because of these statements I get angry while I'm living in hell. I guess it's another time for a break from TT... I promised myself last time that I won't be reading other threads than trobalt and Keppra and pm with some of the great people here... Stupid me
       
    24. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      You might also notice he does not participate in the Doctor's corner anymore and his messages have been archived.

      Food for thought.

      As far as I'm concerned there is easily maskable tinnitus, non-maskable tinnitus, reactive tinnitus as well as tinnitus with H and other somatic symptoms such as pain, fullness etc...

      All TRT clinicians claim tinnitus is tinnitus and treatment is all the same. Quite convenient for them to say that. It sure broadens their potential client base.
       
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    25. Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      :huganimation:
      I get angry, too, when I read comments from those with mild or very mild tinnitus who make habituation sound like a walk in the park. My tinnitus ranges from 4/10 to 9/10 and is no longer as bad as yours (15/10), but it was in the first few months. Sounded like pipes banging in a boiler room in my head, and then changed to a noise like someone stirring thousands of bells in a cauldron, then a noise like hundreds of shards of metal being shaken in a pan.

      Right now my tinnitus is experimenting with different squeals and hisses and high-pitched tones, trying to decide which one shall be the tinnitus du jour, with the background sound of a tea kettle. Habituation. Yeah, right.
       
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    26. tinnitussufferer
      Angry

      tinnitussufferer Member

      Location:
      UK
      Tinnitus Since:
      1/2004
      What about mr.nagler? He habituated and his tinnitus was severe. So there must be something else other than the level which enables some but prevents others from habituation.
       
      • Good Question Good Question x 1
    27. awbw8
      Balanced

      awbw8 Member Benefactor

      Tinnitus Since:
      04/2013

      I find it unfortunate that this thread has encountered some negativity when the OP asked for responses from individuals who have habituated and is looking for support and positivity, not messages of lack of possibility and doom. There Perhaps not everyone says things sensitively enough, but please remember that people who have habituated are here trying to help not belittle anyone's experience or suffering. Everyone is here because we know the suffering this condition can bring about. Try to remember that care and empathy for everyone is at the core, even if words fall short.

      Naddesh, as you read these replies, please understand that not everyone who has habituated has/had mild tinnitus - that is not a requirement of habituation. I make not claims or blanket statements for every person here and I have nothing for empathy and compassion for those who suffer deeply, I can only speak for what is in my own head, but I have seen people in a very, very bad place get to a better one. Those who say habituation with T at a certain level is impossible can also only speak for their own tinnitus and themselves, and also do not actually know what is in anyone else's head - so that is something to remember. Take the positive, sit in your own experience - things can get better and I do believe that for my own part.

      To answer your questions:

      1. I am different than I was before. Tinnitus was a very traumatic thing for me that took me years to come to terms with, very slowly, it was probably one of the most defining experiences of my life. So it changed me, but not in a way that made me less happy. I am back to being as happy (or as not happy haha) as I was before, I think.

      2. I have changed my lifestyle somewhat, and at first that felt limiting, but I don't mind it so much anymore. I carry earplugs in every pocket - I feel like if you shook me upside-down about 20 would fall to the ground haha. I plug my ears when the subway rolls by, I tend to avoid loud bars, restaurants etc. and I often excuse myself to go outside. At first this felt limiting, but life is full of limts - we are just more used to some of them and others we become accustomed to more slowly. Is an elderly person bothered by not being able to run? I imagine so, but that's life, you become habituated to that limit. Are people with glasses annoyed they have to wear them sometimes, for sure. Once you're not bothered by the sound itself, the limits that having to take care of your ears more carefully impart become more like putting on glasses and less like a traumatic loss. It's something you do, but it's just habit, not upsetting.

      3. Tinnitus affected a lot of relationships, but in the long run, for the better. It did, in fact, create a lot of relationships and showed me that some that I had were not that valuable. The people who come around you when you are suffering are special and I saw them in that time. I have met wonderful, brave people here, and going through this, and continuing to live with it, teaches me lessons every day. I actually just wrote a long email today to a nurse who took care of me when I was at my worst. She was an angel to me and now a dear friend. Being open about my tinnitus has also allowed others to see me vulnerable and open and I think that is valuable in building relationships - it's also made me more empathetic to others who suffer. There were certainly times when I was at my very worst when relationships suffered, but mostly I found that I have a lot of people who love me dearly. The relationship that has changed the most though, is the relationship I have with myself.

      4. My T has changed, I think it has gotten better if anything. I do get spikes, but it normally goes back to some kind of baseline. I do not assume that it will stay the same forever, but I try to take care of myself as best I can. One day it may become horrible beyond imagining, but if I worry about that, I will lose my life that I have now doing so. I'll have to cross that bridge when I come to it and in the meantime protect my ears and take care of my body so that I have as few regrets as possible if one day things go downhill.


      Things can get better Naddesh, hang in there. We are here for you.
       
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    28. Naddesh
      Sunshine

      Naddesh Member

      Tinnitus Since:
      07/2015
      Thank you so much for your answer. I am a realistic person overall, but in this situation Im not feeling confident enough to reach out for those who really suffering from it because Im one of them right now, and it feels much better knowing there is some hope in this darkness. I have a very strong family which tends to go through all types of problem and still be happy (My parents are from Palestine) so I hope I have the psychological condition to get through this also. God bless.
       
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    29. snow86
      Surrender

      snow86 Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      2006 - Extreme T since 12/2013
      Cause of Tinnitus:
      see "information" on profile page. Crippled by extreme T
      Since he was banned, you should ask yourself, how much of his arrogant talk was real

      But sure. You can hope for habituation but you've had t for a long time now. I hope it works out for you . I'm with Jim's opinion
       
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    30. uae96
      Thinking

      uae96 Member

      Location:
      Dubai, UAE
      Tinnitus Since:
      6/14/2015
      Cause of Tinnitus:
      Noise
      Nice to see a (half arab ) here :) I am as well , I can tell you naddesh that you're just to worried now , you will eventually listen to the sound and not care about it anymore it will take some months but U WILL get there I was in exact you're place to , just reading through the whole forum for comfort , you will stop all this at some point and you're t has a really good chance of subsiding just give you're self some time If you need anything pm me :) good luck
       

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