Fresh From The Press: Hearing Loss Treatment...

Discussion in 'Research News' started by attheedgeofscience, Nov 12, 2014.

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    1. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      • Like Like x 2
    2. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I wish it was not so hard to trust people. If I thought this worked I would go first thing in the morning.
      I do not care how much it cost but I do care about being ripped off.
       
      • Like Like x 3
    3. exodus
      Cold

      exodus Member

      Tinnitus Since:
      05/2008
      i see only one thing :easy way to make dollars
       
      • Agree Agree x 1
    4. Teri
      Artistic

      Teri Member Benefactor

      Tinnitus Since:
      4/2014
      A signed legal document stating a full refund if the treatment does not work would impress me!
       
      • Agree Agree x 1
    5. spingee
      Wtf

      spingee Member

      Any richies here willing to try it?
       
      • Like Like x 1
    6. James White
      Anime

      James White Member Benefactor

      Location:
      Toulouse, France
      Tinnitus Since:
      April 2013
      Cause of Tinnitus:
      Maybe loud music. Not sure.
      Sorry ateos, the website looks so unprofessional. Plenty of desperate click bait content.

      I'll pass on that.
       
      • Agree Agree x 3
      • Like Like x 1
    7. tomm
      Thinking

      tomm Member Benefactor

      Location:
      London, UK
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Acoustic trauma (club drumming)
      Is this the same place as Fernando and ATEOS had their treatment done? Maybe we need a stem cell treatment centre sticky or something. One in China (not so good), 2 in Thailand?

      Then there is the choice of what type of stem cells you want, how many you can get, the pros and cons of each type ATEOS helpfully covered in the hearing regeneration post. Also where you get your stem cells from is different from where you go to get them infused I think?

      If I moved in with a family member and saved absolutely all my wages for about 1.5 years I could get the $27,000 together. It's such a huge commitment I'd want to see a a little more science. Probably just go to ATEOS and Fernando's preffered clinic for now. Or the one that the mostly cured deaf student Chloe went to.
       
      • Informative Informative x 1
    8. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      No.

      See these threads (as you may, or may not have done, already):

      https://www.tinnitustalk.com/threads/my-trip-to-bangkok-stem-cell-treatment-comments.1891/
      https://www.tinnitustalk.com/threads/my-trip-to-bangkok-stem-cell-treatment-journal.1884/

      The therapy - and I have had a few heads-ups before posting the material above - is based on embryonic stem cells (from sheep!). I shared the details with Markku a while back in a PM, but did not post anything on this board.

      Almost all stem cell treatments are based on adult stem cells (with the exception of a few places such as www.emcell.com which uses fetal stem cells). The differentiation of these types of stem cells can be found in some of my posts within the thread: Inner ear hair cell regeneration: maybe we can know more... https://www.tinnitustalk.com/threads/inner-ear-hair-cell-regeneration-—-maybe-we-can-know-more.3131/page-11#post-48131

      I decided not to post the information on the news release above when I initially received it about 2-3 months ago in a personal e-mail, as I am not - personally - comfortable with any treatment that uses anything other than adult stem cells. But now that the RSCI has choosen to go public with the treatment, I decided to post the link. No more, no less. After all, it is their reputation which is on the line. Not mine.

      RSCI would have nothing to gain by going public with the story if they could not "back it up", somehow. RSCI is a patient advocate group - as well as a stem cell advocate group.

      However... I admit that - personally - I am still a little bit surprised (as I wrote in the first post).

      I will track down more info, as I have said I would.

      Agreed. I only did what I did because during the Summer of 2013, there were no other options. AM101 was an insignificant spot on radar; AUT63 did not even (really) exist, and so besides LLLT, what (else) could I do...?!?

      Stem cells were never really designed for tinnitus. At best, they were, are, and will be - designed for hearing loss (and other conditions). But not tinnitus, specifically.

      Ms. Chloe Sohl suffered from an autoimmune disease (in the ear). Stem cells are excellent for dealing with autoimmune diseases. Other types of inner ear "diseases", less so...

      The current generation of adult stem cells are so-called repair stem cells; they can repair, but not regenerate body parts from scratch - for that embryonic stem cells are needed, and it will be many years before such medical interventions are ready for use in human beings.

      The "problem" with the current stem cell technology is:

      1) lack of complete regeneration of body parts,
      2) scar-tissue formation in our bodies prior to SC treatment which prevents new proper tissue healing from taking place.

      My advice (for what it is worth): focus on tinnitus treatments/clinical trials that are designed specifically with tinnitus in mind. Not stem cells.
       
      • Informative Informative x 2
      • Helpful Helpful x 1
    9. tomm
      Thinking

      tomm Member Benefactor

      Location:
      London, UK
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Acoustic trauma (club drumming)
      Thanks attheedgeofscience, that's really informative. Thank you for posting.
       
    10. tomm
      Thinking

      tomm Member Benefactor

      Location:
      London, UK
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Acoustic trauma (club drumming)
      I contacted them for info a while back and they sent a PDF brochure yesterday.

      Seems like they CC'd the owner/lead scientist but they are using free email accounts rather than repairstemcells.org or RSCI addresses like the sender.

      don margolis <donmargolis@gmail.com>,
      "James Braly, MD" <drjbraly3@earthlink.net>
       

      Attached Files:

    11. Martin Jensen
      Fine

      Martin Jensen Member

      Location:
      Denmark
      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Not sure
      Interesting. I think "snake oil" when I read a website like this. Funny url, funny email addresses. Let's see some clinical trials that it actually works and not just some case report, then I would pay up... that is after robbing a bank to pay for the treatment, naturally :)
       
    12. tom1989

      tom1989 Member

      Tinnitus Since:
      11/11/2014
      Interesting.

      Assume that hearing can be fully restored - would T disappear? Any research on this?
       

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