From Darkness Into Light

From darkness into light.

Tinnitus is not an easy condition to live with when it is severe. So it always pleases me to hear when someone habituates and is able to put the passed behind them and look forwards to a brighter future. A forum member contacted me recently to express just that and has agreed for me to include some of his comments although his name has been changed. Anyone having difficulty habituating I hope they will find this post helpful.

Last year Marcus was in a distressed state and convinced he would never see light again at the end of the tunnel. He works as an electrician and while up a ladder one afternoon, suddenly heard a loud ringing coming from a fire alarm that was on a nearby wall. He didn’t pay it much attention and wasn’t concerned about his hearing as he believed it would soon stop. He continued working but this proved not to be a good idea as the alarm continued for another twenty minutes. When it finally stopped and there was complete silence he then noticed ringing in his ears. Over the following days and weeks it gradually became louder and more intrusive.

I remember his out pouring and condemning himself in this forum as if it were yesterday. He couldn’t believe he had done such a thing. Staying in that vicinity with no hearing protection and not coming down off that ladder had resulted in his whole life being turned upside down. With the benefit of hindsight one is often able to see mistakes that could have been easily avoided if they only knew. In his own words life as he once new it was completely over. Married with two young children he enjoyed regularly going out with the family but all that came to an abrupt end. I and other forum members tried to make Marcus look at the positive things in his life and not to give up hope but little of this was having any impact. The walls of negativity that he had built up to surround himself were just too great and it seemed no amount of good advice was able to get through.

His symptoms will be familiar to those that have suffered noise trauma to their auditory system. Intrusive tinnitus with hyperacusis, that can vary considerably especially in the early onset of the conditions. I understood his distress at not being able to enjoy listening to music even as a form of distraction from the noise. Everything sounded distorted to him as if it is coming out of a broken speaker and his ears would hurt when certain sounds were heard. His appointment at ENT was some time away which is often the case when tinnitus is not accompanied by dizziness, balance problems and impaired hearing or continuous pain in the ears.

Contrary to what some believe, the best treatment for tinnitus in the early stages and when there are no additional symptoms, as mentioned above is to leave it alone. The ears and auditory system are very delicate and often right themselves when left alone. Many people habituate to tinnitus within the first six months sometimes a little longer and the condition has been known to go away completely. Marcus had taken time of work, as he just wasn’t in a good place and couldn’t function properly. One good thing is that he was under the care of his GP and taking medication to help cope with his moods. Tinnitus can be such an emotional roller coaster in the early days so often no two days are the same. An antidepressant often helps a person from becoming too down so acts as a safety net when those low points arrive.

Marcus became a frequent visitor to this forum and I believe it helped him, although his outlook on recovery was quite bleak and negative. Perhaps knowing there were people around him in this virtual world of cyberspace, gave him the support and sanctuary that he needed to vent his frustrations which at times I believe were overwhelming. I hadn’t seen him for quite a while but got an acknowledgement from him recently by private messenger. I have omitted my comments.

It changes a lot over time doesn't it. Not just one’s perception of it but the tone itself.
For me it ranges from a jet engine noise to hum, I used to hear it all the time but now I only hear it in silence.

Just past the 1 year mark for me. Feeling much better now. It sure does take time.
How's things with you? I really appreciate the help and advice you have offered to me over this time, and the help from other people in the forum.

It's a terrible condition. I did go too see Guns n Roses last weekend at Slane castle. Used professional ear plugs, was a great show and no negative consequences apart from a crazy two day hangover lol

The fact the concert was outdoors made it possible, it still peeked at over 115db at times.
I still haven’t been seen at ent yet, did bother chasing up the appointment. No point really. I will take your advice and chase up ent and see if I can get an appointment. Just to do the tests.

Yes, I'm much much better now, I was in a very dark place. It was a terrible time. Things have improved, the distortion in music has gone and things sound normal again. I can even setup an eq system hear the different frequencies, when I first suffered this I couldn't hear bass, everything sounded flat, really was a bad time, I'm surprised I survived it to be honest.

I now have a new appreciation for sound and music. I just wish I understood this before. I still have slight balance issues but mostly I am happy my hearing has improved, It is very difficult too accept when it happens as I am sure you know.
I will always use hearing protection at loud events, concerts etc. The guns n roses concert felt fine with my pro plugs in and I noticed many others using plugs too. Good to see.

I’m back at work and able to spend time with my family. Thanks Michael for your advice (even at those times when I didn't believe it)
Marcus

 

@orbiter12

 

I wonder how he is doing now.

 

“Wow - @Michael Leigh - what a great story!”
Brilliant......xx

 

Thank you for your kind words @Jazzer Marcus is still doing well and frequently visits this forum.
All the best
Michael

 

This is such an encouraging story! Thank you very much for sharing. I needed that as I am having a bad T day today. Not nearly as bad as the bad days in the beginning but bad enough to cause distress that I needed some comfort from.

 

Thanks for your kind words. You might find the posts in the links below helpful.
Take care
Michael


https://www.tinnitustalk.com/threads/new-to-tinnitus-what-to-do.12558/

https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/

https://www.tinnitustalk.com/threads/is-positivity-important.23150/

https://www.tinnitustalk.com/threads/tinnitus-and-the-negative-mindset.23705/

https://www.tinnitustalk.com/threads/acquiring-a-positive-mindset.23969/

https://www.tinnitustalk.com/threads/the-ent-doctor-and-hearing-therapist.24047/

https://www.tinnitustalk.com/threads/inspiration.22894/

https://www.tinnitustalk.com/threads/can-tinnitus-counselling-help.22366/

https://www.tinnitustalk.com/threads/the-habituation-process.20767/

https://www.tinnitustalk.com/threads/a-change-of-lifestyle.20643/

 

I can identify with Marcus' self-condemnation. Thank you for posting this. Very encouraging!

 

Thank you and hope start to feel better soon.
Michael

 

I noticed you mentioned something about tinnitus being accompanied by dizziness, light headedness and ear pain (I also have visual snow). What does this mean?

 

I am not aware that I have ever mentioned tinnitus is accompanied by dizziness or light headedness. These symptoms are not common with Noise induced tinnitus. If you are experiencing this then, you should see an ENT doctor.

Michael

 

Hi Michael, have you ever noticed a sudden fleeting spike during your time with tinnitus?

I experience sudden loss of sound, fullness then a loud ringing both at different pitches and different ears. It fades after a minute or so and seems unrelated to normal tinnitus?

 

That's exactly what you called it, fleeting tinnitus. It's normal. Even people without constant tinnitus have it from time to time. For me, it's like you described it: dead silence, then loud ringing (always in one ear and for me the frequency is always lower than my normal tinnitus) for some time, then my normal tinnitus creeps back. It's frightening, but it's not supposed to be dangerous.

 

HI @johnsole65

I have experienced a fleeting spike but it's not a regular occurrence. I haven't experienced sudden loss of sound that you mention, although fullness in the ears I have when I first got tinnitus 24 years ago. We are all different and some people do experience spikes which quickly go. However, spikes can be an indication of hyperacusis that hasn't been treated, or an indication that a person is subjecting their ears to sounds that are too loud. Please read the post below.

All the best
Michael

Are spikes from loud noise permanent?

Someone recently asked me, whether a spike in tinnitus caused by loud noise would be permanent? I don’t think there is a definitive answer, because tinnitus is a complex condition and if hyperacusis is also present it can complicate matters further. Some people habituate to tinnitus but their hyperacusis hasn’t fully cured and this can cause tinnitus to spike.

When a person first develops tinnitus and it was caused by loud noise they have to be careful in future. Tinnitus can and does spike for many people and this is not necessarily caused by loud noise or sounds. After a while it usually returns to baseline or into its normal rhythm. Danger can present itself after a person habituates and the tinnitus has reduced to mild or moderate levels for most of the time. If one isn’t careful, it can be easy to forget and slip back into the old lifestyle of: listening to music through headphones. Attending clubs, concerts and the cinema where sound levels can be quite high.

I believe a person with tinnitus should attend clubs, concerts and the cinema if they want to, providing they use noise-reducing earplugs to protect themselves. However, one should remember that nothing is one hundred percent safe. My advice is to stay clear of large standing floor speakers and if you’re at a concert don’t go to near the front stage where the music is likely to be booming out at high sound levels.

In many instances people will get a warning when visiting these places. If the decibel levels are too high their tinnitus might spike. Usually the tinnitus will return to baseline. However, some people do not pay attention to these warnings and continue to subject their ears to loud sounds and think they are perfectly safe because they are wearing earplugs. Under these circumstances the tinnitus might spike again and this time it might become permanent. I am saying might because nothing is for certain. In my opinion a person with tinnitus needs to follow the warnings their auditory system and tinnitus is telling them.

Regarding headphones. Many people have contacted me after they have habituated to tinnitus and returned to using headphones and listened to music through them at low volume. All of them have noticed an increase in their tinnitus. Some of them noticed their tinnitus spiked but carried on listening to music through headphones and then the tinnitus increased to a higher and more permanent level. It must be said that some people with tinnitus use headphones and have no adverse effects and that is perfectly fine. My opinion on this is, anyone that has tinnitus shouldn’t listen to any type of audio through headphones even at low level.

It saddens to say, if a person doesn’t heed the warning signs their auditory system and tinnitus is telling them, then they will eventually feel because tinnitus is very unforgiving. It is fine when some people are telling others what they want to hear: "listen to music through headphones because life is for living". “Go to the club as often as possible you’re safe with earplugs. If your tinnitus increases you will be the one that will be in the suffering.

I have read many posts in tinnitus talk, where people had habituated and the tinnitus is low. They returned to listening to music through headphones and clubbing during the week and weekends. Some are now regretting this because their tinnitus has increased and they are in distress. Just because a person habituates doesn't mean they can forget everything and carry on in some instances recklessly. You can of course do this but my advice is to do things in moderation and not to excess, because the end result is often returning to ENT for help and visiting tinnitus forums because you are unable to cope.