From Darkness to Light, How I Recovered from Tinnitus & Hyperacusis

Discussion in 'Success Stories' started by billie48, Jan 17, 2014.

    1. andreus

      andreus Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      withdrawal benzo
      thank you billie for your answer. But it's so difficult when tin and hip increase every week or day and I must put off valium from my body; no improvement or stability before. New noises (4) in the head and noises more and more hurt me (even typing on the Mac). Doctors aren't good for managing anxiol. withdrawal; they just know giving them to patients and don't know it can be ototoxic. my daily life is a nightmare as yours was some years ago. I hope I will be better in some months and can leave my bedroom without be afraid of noises. I didn't stop suddenly my drug because I began the withdrawal last november. I consulted specialists when I had suicidal ideas last summer (psychologist, psychiastrics) and they gave me more drugs which increased the problem. I won't do it again. Your story is a beautiful story and it helped me when I red it. I try to keep hope inside of me in these darkness.
       
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    2. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Hi @billie48Thank you for a very inspiring story. When you say My hypercausis has long faded within the year it started, when I slowly and reluctantly took off the ear plugs for normal sounds,did you have your ear plugs off all the time or for normal sounds only like below 70 db. Another question how long did it take for your Hyperacousics to go you say within the year how long actually?
      Thanks
       
    3. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      I don't know what db the normal sounds are, those from driving, from TV, from conversation, etc. But when I got on the plane, or when I attended a party where loud speakers were used, I put on the earplugs. At the early stage of H when most noises hurt, I did use the musician earplugs so it cuts off the extreme range. I don't know if I have a perfect answer for you. It is more trial and error and learn-as-you-go type of way for me. I don't recall how many months when the normal sounds didn't bother like when H was new. But it wasn't 3 months for sure. I would say 9 months to a year more likely. But each person is different. So don't use other's time frame to gauge your own. There are also different causes of H. If it really persists for years, then you may want to contact a member @Danny Boy who has some success using medicines to control it. But these are to me the last resort.
       
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    4. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Very informative Billie48 Thanks very much indeed.My T some days I wake up and it is almost gone and some days it drives me crazy.I stopped using earplugs for about 3 months now but have not yet seen much improvement on Hyperacousics.I expect I have to be patient .My ENT said I should gradually increase the volume for example on my tv. Any way Thanks again
      By the way as I am planning to fly soon I expect it is OK as long as I use prober ear plugs.
       
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    5. maestromusica
      Batty

      maestromusica Member

      Location:
      Edinburgh
      Tinnitus Since:
      22/10/2016
      Cause of Tinnitus:
      Club
      I've never got to say thank you:

      Thank you so much for this success story @billie48! It gave me some much-needed hope in the first 6 months of my tinnitus :)

      I regularly go back to it when I'm having a rough day.
       
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    6. Kantrijoe

      Kantrijoe Member

      Location:
      Finland
      Tinnitus Since:
      03/2017
      Cause of Tinnitus:
      Explosion
      Thank you so much @billie48! Personally I am at the early stages of T but why not learn from someone like you who have soldiered on and fought back the evil T.
      I read your post very carefully and I am truly trying to treat my family better as this really can worsen relationships too. So far my spouse has been very supportive but enough is enough, I must try to be happier and dig myself up from this hole of feeling low. Thank you, this forum really is a encouraging place.
       
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    7. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      When I was young I used to think I would be a happy man if I had a million dollars.To day I changed my tune.I would be extremely happy if I had 2 good ears and only 2 dollars in my pocket.
       
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    8. Houstontx

      Houstontx Member

      Tinnitus Since:
      4/5/17
      Cause of Tinnitus:
      Noise induced from gun shot
      I got T recently on April 3.2017 from going to the gun range . I had ear plugs but I'm guessing my left ear wasn't plugged In right.. I got muffled and distorted hearing. 3 days later I went to ENT and found out I had moderate hearing loss in the high Frequency. So he said my option was to get steroid shot (dexamethasone) to the ear drum . Because I was still in the window to get it and had a 50/50 chance of recovering hearing. So I did it. Which of now. I can hear just like I do in my good ear. But the T is still there.. it's a mild T which I can easily mask. Sometimes I don't notice itunless in a quiet place. My question is will my T still manage to go away??? I'm only 27 going on my 5th or 6th week of my T. I had no damage tothe ear drum or had no drainage. Just the T being there No eardrum damage or drainage occurred
       
    9. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      I wish your T will go away of fade out to even lower volume. At least you have mild T and so hopefully you won't stress yourself out over it. Anxiety and stress are bad for T so it is best you stay positive. If your T is not the extreme type, try count that as a blessing. Focus on living enjoyably and given time there is a good chance that the hyperactive neurons will settle down. Even for those whose T stays, they learn to habituate to it eventually which means that they are are unaware of their T most of the time and that is as good as it gets. Take good care. God bless.
       
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    10. Biljana

      Biljana Member

      Location:
      Macedonia
      Tinnitus Since:
      july 2001
      Cause of Tinnitus:
      predisposition combined with ototoxic medications
      What a wonderful post @billie48 . This is exactly what I need right now, a manual with precise instructions how to help myself. The audiologists and ENT specialists I consulted couldn't help me and I was frustrated for not knowing where to get help for my problem. THANK YOU SOOO MUCH :thankyousign:
       
    11. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      You are most welcome @Biljana. I am glad that you find the story helpful. Hopefully some of the strategies will help you and reduce your suffering. Take care. God bless.
       
    12. Shera
      Bookworm

      Shera Member

      Location:
      USA
      Tinnitus Since:
      12/9/2016
      Cause of Tinnitus:
      head trama caused TMJ/neck problems
      Great post, giving it time is definitely the advice I need. This post was just what I needed. :huganimation:
       
    13. Melike
      Studious

      Melike Member

      Location:
      Istanbul, Turkey
      Tinnitus Since:
      17 / 03 /2017
      Cause of Tinnitus:
      Most probably TMJD and neck issues that came with it.
      @billie48 , I'm reading your story in tears, after having a strong mental breakdown last night. Thank you, thank you so much. I'll copy and paste it to a word document and read it daily.

      My question is, are you still doing good like this?
       
    14. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Thank you @Melike for your kind comment. Yes, I am living and enjoying life now regardless of what T does. It's tyranny over me is truly over. Life is good again. You can too. Give it time and learn & apply some good strategies and you will be just fine. Believe it. Take good care. God bless.
       
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    15. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Thanks @Shera. Giving enough time plus learning and applying some helpful strategies will help to take the pressure and stress off and this will then relax the brain to allow it to habituate to T. Take good care. You are looking great and good life will be back. Have faith and hope for a good future. God bless.
       
    16. Bobbie7
      Wishful

      Bobbie7 Member Benefactor

      Location:
      United States
      Tinnitus Since:
      04/2015
      Cause of Tinnitus:
      Extreme stress, sinus infection
      Hi @billie48 .... Just read your journey "From Darkness to Light, How I Recovered from Tinnitus & Hyperacusis"
      So very informative and helpful; good of you to post that. You serve as a true inspiration for everyone!

      Best wishes,
      Barbara
       
    17. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Thank you for the kind words Barbara. I am just trying to give back to the T support community which I had received so much support from during my darkest days. I am glad you find the success story helpful to you in your journey with T. Take good care. God bless.
       
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    18. Kieran D
      Curious

      Kieran D Member

      Tinnitus Since:
      July 21st 2015 with short phases before
      Cause of Tinnitus:
      Most probably stress/anxiety
      This is a truly amazing post, in a way it makes me realise how lucky I am.
       
    19. Bobbie7
      Wishful

      Bobbie7 Member Benefactor

      Location:
      United States
      Tinnitus Since:
      04/2015
      Cause of Tinnitus:
      Extreme stress, sinus infection
      Dear @billie48 - You are truly a remarkable and courageous person; your story is so poignant and inspirational. To have suffered the hardships you detailed, to endure such debilitating tinnitus and then go on to lead a fulfilling life is a testament to your deep inner strength and will to overcome adversity and ultimately triumph. You are a shining star in this forum, an example to all illustrating recovery is possible and that it is essential to maintain hope. I respect and admire you @billie48 and thank you for sharing your story. I hope each person in this forum will take the time to read your remarkable and uplifting post. Take care and be well.

      Best wishes,
      Barbara
       
    20. billie b

      billie b Member

      Tinnitus Since:
      5/2017
      Cause of Tinnitus:
      Inadequate noise protection during MRI
      Hi Tony -- wondering if you were able to fly without any difficulty. I am planning to fly in the near future and have some concerns. Planning to alternately use earplugs and noise canceling headphones. I'm apprehensive about the headphones because according to some people with H they can make things worse. I also find that using earplugs exacerbates the T after using them. If anyone else has had experience with flying I welcome your feedback. Thanks Tony...I hope you are doing well.
       
    21. Karin Andersen

      Karin Andersen Member

      Location:
      Denmark
      Tinnitus Since:
      january 2017
      Cause of Tinnitus:
      tinnitus after MR scan




      Thank you Billie..
       
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    22. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Thank you Barbara for the kind words. I am humbled by the compliments. Many others on the forum are doing the same, and you too are contributing to help uplift others with comforting words. We all deserve a little pat on the back for our efforts to help others in despair and I am sure the good Lord is smiling on those who devote their time selflessly in compassionate service to others in need of help. God bless you in every way, Barbara.

      Cheers,
      Billie
       
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    23. Bobbie7
      Wishful

      Bobbie7 Member Benefactor

      Location:
      United States
      Tinnitus Since:
      04/2015
      Cause of Tinnitus:
      Extreme stress, sinus infection
      Thank you very much @billie48 and may God bless you as well!
       
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    24. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
       
    25. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Billie48,Hi You mentioned you could hear your T above the plane noise,on your last few flights.My question is with high T and hyperacousics,did you travel without using some form of ear protection.If yes what protection did you use?Thank you.
       
    26. Tinizzy
      Wishful

      Tinizzy Member

      Tinnitus Since:
      07/2017
      Cause of Tinnitus:
      Unknown
      @billie48 What a beautiful great story. Right now I am at the point where I cant really think straight about my situation anymore. One moment I feel so hopeless that I want to die, the other moment I'm encouraging myself to get up and fight (accept) this battle. Is this normal? It feels like my brain is working a lot of overhours and doesnt know what to do anymore. I also had prior anxiety and a lot of stress. Tomorrow I'll start with my psych. Hopefully on my way to recovery and enjoy life again. You are a great inspiration. I hope I will be too someday
       
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    27. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Hi Tony, when my T was new years back, I bought $200 worth of various types of earplugs & ear muff from the Sonic Shop of Germany (trying to buy the best quality) as I was scared to death about even normal sounds. I didn't travel much when the H was still very dominant and hurtful. My masking could only be done with low volume as H was too piercingly hurtful to handle any sounds. But luckily, my form of H (like many others) faded within the year it started. During my first few flights after T, I was carrying all my 'defensive weapons' (lol) of earplugs, earplanes, muffs, nasal spray, even an ipod loaded with nature sounds just in case I needed masking as if the jet noise was not enough, lol. I protected as much as I could. I am not a super human. I was nervous about sounds and travelling with T just like everybody else. But the one thing with me is that I didn't back down to T as much as I could. I dare my T & H as much as I could. I ate out in noisy restaurant with earplugs in tow. I went fishing even when the road noise was not too nice. Later when the H has faded, I traveled with long flights but I depended less and less on earplugs. Now I don't need them. Just my fingers and the ipod if needed. Things can get better. Don't get discouraged by the initial struggle or setbacks.
       
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    28. AUTHOR
      AUTHOR
      billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      It is quite normal to react the way you are now as your T is still quite new. Your brain is still in trauma and shock about this T journey. Anxiety and stress plus shock can turn your mental stamina into chaos for a while. But this should get better and better. You can learn from the success stories that most people went through what you are going through initially. So don't blame yourself and don't despair or get too anxious. Try apply some helpful strategies you learn from others. I think CBT plus mindfulness meditation can definitely help you stabilize your mental stamina. You can also try do some mild exercise or activities, such as yoga, leisure walk, hiking or even the outdoors. These will help heal your mind. Take care. God bless.
       
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    29. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      Low 20 years high sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Thanks Billie,very informative
       
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    30. Daisymay
      Thinking

      Daisymay Member

      Location:
      Buffalo, NY
      Tinnitus Since:
      May 2017
      Cause of Tinnitus:
      Started after going to a loud concert
      @billie48 Thank you so much for your success story! It's wonderful to hear that it is possible to live a happy life again! I have been suffering with tinnitus and hyperacusis since May 2017 due to attending a loud concert in a small indoor venue. The tinnitus and wasn't too bad at first, however, my stress and anxiety shot through the roof. That along with not sleeping or eating due to no appetite just made it that much worse. I believe that my TMJ also made it worse because I am probably clenching my teeth more now than I ever have. I have found that after a TMJ massage and a motrin my tinnitus has almost disappeared by the next morning, only to return at some point that day. Most of the time, but now always, I only notice my tinnitus when I am in a quiet room, there are times though that I notice it more. I am dealing much better now with most of it, however, the hypercusis is still tough. I hope I can get better soon! I want my life back! I have always been a happy, smiling person until this started. I am trying to remain positive and optimistic. I am getting a mouth splint soon and am hoping that my tinnitus will lessen considerably after using it. I also do my own TMJ massage now once or twice a day and take a motrin after for the inflammation and notice a difference in pitch or a decrease in my tinnitus which definitely leaves me hopeful. I wish you all the best and thank you again for sharing a wonderful success story and a wealth if information that we can all benefit from! :):) :thankyousign:
       
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