Give It Time. Tinnitus Gets Better.

Discussion in 'Success Stories' started by AL 3, Nov 4, 2018.

    1. 3ri0w

      3ri0w Member

      Tinnitus Since:
      2012, H 2016, 12/2018(?)
      Cause of Tinnitus:
      loud noises, ringing came back 12/2018 after 1year of silent
      Ah ye sorry AL 3! Wasn't my intention to turn you thread into a moan fest (loL), I apologize this was a complete wrong place to write what I wrote.... I just wrote because I did hte same thing like posted a positive thread and I'm so ashamed because Iruint my ears again and it all went bad... I don't really have like good reading habits..... sorryh

      Can't edit or dleete that post of mine:|
       
    2. AUTHOR
      AUTHOR
      AL 3

      AL 3 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      It’s not easy I know. I feel sorry for new people in the first few weeks. It’s so devastating when you get it first. You hang on every word posted.. trawling every success story for some hope.
      I’ve been through unbelievable hardship with mine but it does get better and yours will improve. The mind is very powerful and can play tricks.. stay positive I deal with loads of people with tinnitus and it will come right for you as it did with them..
      I’m sure of it.. there’s always hope
      If I can get back to my old self anybody can
       
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    3. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      Thankyou, that is most reassuring
       
    4. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      sorry al3 - I know mate -
      is there any way we could Skype - if so, whats your Skype address????

      I have lost my logo for that email address :(((

      If no Skye can you post your email so I can email you???

      Hope this is OK
       
    5. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      P.s AL# - sorry for the negative post I was just in a tail spin - Ive spoken to a girl on this post who has helped my understand this a bit more and learn not to fear it-thats the key!!!!and I feel that this while not easy is they way to go....

      I just wanted to also speak to you as your posts give me great hope and get me thru the day many times.
       
    6. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      • Informative Informative x 1
    7. AUTHOR
      AUTHOR
      AL 3

      AL 3 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      Hi Hariz
      Have you seen a specialist?
      What did they say?
      Sounds like ETD which can be treated very successfully
       
    8. AUTHOR
      AUTHOR
      AL 3

      AL 3 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      Hey steve. How are you doing..
      hope all is good
       
    9. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      im ok AL3 - is there any way we can chat???
      Do you have Skype or an email address????

      It would be great to chat personally as I love your posts - Im in Sydney AUST, and Im assuming your in the USA??
       
    10. AUTHOR
      AUTHOR
      AL 3

      AL 3 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      Nope I’m from Ireland
      If you get an email address to me I’ll chat to you no prob. I’m not on Skype
       
    11. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
    12. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      I have seen a doctor, she said ETD could be the cause/contributing factor. I have an appointment with an ENT at the end of the month. Hopefully all goes well and everything gets better.
       
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    13. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      AL3 - have not received email - Im sure it's the right one posted above:))

      many thx
       
    14. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      al3 - the email address to get me is definitely

      stevetttt2212@gmail.com

      would be great to hear from you as your insights give me REAL HOPE!!
       
    15. Steve2212

      Steve2212 Member

      Tinnitus Since:
      May 18
      Cause of Tinnitus:
      not sure
      al3 check your email...cheers Steve
       
    16. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      Hi Steve, I live in Victoria, so both Aussies. How is your T progress going? I am in early days, only 7 weeks but finding it a bumpy ride. Some better days, some bad ones.
       
    17. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      Hi, what caused your T?
       
    18. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      Ototoxic medication I think
       
    19. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      How has it been so far, your T?
       
    20. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      nearly 2 months
       
    21. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      Hopefully it gets better. If you have stopped taking those meds, I think you'll improve and may even heal after some time. You might just need to watch your diet as well.
       
    22. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      thank you, I hope you are right but today is a bad day - it can really get you down
       
    23. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      Yeah, there are days like that. I've been there before. Just go through it, distract yourself, find a reason to smile. I'm also kind of having good and not-so-good days alternating, but just like almost anything in this world, this will be temporary. I believe in that fact.
       
    24. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Hi @dougwarby -- An acupuncturist I see told me that he's had the most success with patients whose tinnitus began with an ototoxic drug. He works on clearing out the liver and kidney meridians, which allows the body to expel these drugs, and their residual vibrations. I didn't notice much difference from his treatments geared toward my tinnitus, but I've since come to believe the ototoxic drug I took did some very strange things to the muscles in my neck and TMJ area, giving me my tinnitus. -- All the Best...
       
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    25. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      How does that work??
       
    26. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Don't really know. -- I experienced a lot of "muscle twitching" and muscle spasming immediately after taking the drug. This kind of twitching is apparently a known "side effect" of taking it. It pulled my somewhat problematic right knee so far out of alignment, that I don't anticipate it will ever fully recover. It did the same with other weak points: lower back, neck, right shoulder, right arm... I believe it did some kind of major spasm on my whole skull and TMJ areas as well. Though this is probably not responsible for all my tinnitus, I think it contributed a pretty high percentage of it.
       
    27. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      What was the drug you took?
       
    28. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Promethazine (25 mg), also known as Phenergen. It's classified as an anti-cholinergic drug, meaniig it blocks acetycholine receptors in the brain and nervous system, including those in the inner ears. Most cold and allergy medications are anticholinergic drugs, and always have the potential to cause tinnitus. I read an account of a man who took a single dose of benadryl, and four years later was still suffering from the tinnitus it gave him.
       
    29. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      Do you think you could give me a brief summary of what happens if we don't have enough acetycholine?
       
    30. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      It's a pretty broad topic, but I'll mention a few things as to how I think it relates to tinnitus, and some of the things many of us experience as a result of tinnitus. Perhaps first to know, is that we couldn't move any muscle(s) in our body without acetylcholine. So it makes sense that if you disrupt the natural workings of acetylcholine with inhibiting drugs, you'll get some kind of reaction from muscles. In most cases, and in most people, it will relax them. But for others, it causes the opposite effect, which can bring on muscle twitching and excitability.

      When I see how so many people with tinnitus get anxious, and have all kinds of things going on in their ears such as twitching, and pain syndromes, etc., I can't help but think their acetylcholine levels may be low. I've noticed that some people w/ tinnitus have benefitted from taking some kind of choline supplement--such as phosphytidal choline--or eating foods high in choline, such as egg yolks. I've noticed that if I eat an abundance of egg yolks, it has a calming, almost sedative effect on me. -- @ruben ruiz @humptydumpty69

      Acetylcholine is also critical for forming memories. Anticholinergic drugs can easily cause a number of memory problems, including Alzheimer's and dementia. Many people, especially the elderly, are often prescribed several anticholinergic drugs, and almost unbelievably, they're only just now beginning to document the direct correlation between dementia and the number of these drugs taken. -- I sometimes wonder if the reason some people with tinnitus can't concentrate is because--in addition to the "distracting" tinnitus--their acetylcholine levels may be on the low side.

      I recently read a story of a woman who was given an anticholinergic "patch" to wear on her arm before she want on a cruise ship, to prevent nausea. When she got back after three weeks, her excellent memory had deteriorated badly, and four years later had not improved. -- Here's a link to an article that gives a pretty good overview...

      Discovery and Functions of Acetylcholine
       

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