Here's Why I Associate Tinnitus Dogma with Abuse

[AliasM]

Thank you so much. I really appreciate it, and I am relieved to hear that the somatic and pulsatile element of it can stand down somewhat. You are not patronising at all. I strive to be where you're at. Thank you again.

 

[Vicki3116]

Thank you so much. I really appreciate it, and I am relieved to hear that the somatic and pulsatile element of it can stand down somewhat. You are not patronising at all. I strive to be where you're at. Thank you again.

Yeah, things can and do change. I'll be honest, the pulsatile noise really freaked me out, that one really got to me and made me feel sick. Not sure why but that one really bothered me. But it's been months since I heard it. I know of loads of people on here who've had the same experience, it's disappeared for them too xxx

 

[Psych]

I watched that helicopter video on YouTube. I think I am the only person that gave his video a thumbs down. The title is very misleading. 'A permanent cure for tinnitus' aka, habituation... because it isn't the noise that's the problem, it's YOU!!! Oh, and yes... he was a cheerleader for Jastreboff, but kept calling him Jastrebofsky and even said in a later video that he he didn't support listening to in ear masking sounds! One very confused individual that believed in everything he said 100%!

I am 5.5 months in Vicki (starting mid-late December when it returned - not counting the month of tinnitus I had in September 2020 that went away) and am doing far worse than I was at say 2 months. I hope I get to where you are but I fear you were already getting well by the time you were where I am at. It is just too severe to ignore. My tinnitus is all over my brain, pulses with my heart on the left side, and gets even louder when I yawn, chew, turn my head and even blink. Quality of life is poor.

Hope you get some relief soon. Wish mine would just pick a lane already - a good, low, consistent one - and stick with it! I get all kinds of variations.

 

[Peter Q]

Hey, absolutely no idea. They general consensus is it's neurological as my hearing is fine, excellent for my age even, and I get other strange symptoms that appear to be emanating from my nervous system, like bursts of adrenaline down my back and in to my legs and arms. It's all very odd. I haven't found anything that makes it better or worse, except completely ignoring it. It's a game I just don't want to play anymore so I try to not get involved with it if that makes sense xxx

This article makes the same point:

The Zen of Tinnitus Acceptance

 

[Matchbox]

I hear you. Mine is apparently due to Ménière's disease. I didn't know anything was really wrong in the beginning. Then things got worse and worse and it was flared up incredibly by the COVID-19 vaccine.

I would love to know what your tinnitus sound like, especially in the morning.

Seashells? Wavering? Chittering? Garbage? Or just ringings?

Trying to figure out what the hell is up with me. No hearing loss, but holy cow distortion and absolutely crazy tinnitus sounds.

Are you getting vertigo attacks?

It seems Meniere's sufferers might have a buzz or ring from what I've been hearing so far and that seems to be the extent of it.

But I mean, the going deaf and puking your heart out aren't exactly some cakewalk.

 

[Wrfortiscue]

I would love to know what your tinnitus sound like, especially in the morning.

Seashells? Wavering? Chittering? Garbage? Or just ringings?

Trying to figure out what the hell is up with me. No hearing loss, but holy cow distortion and absolutely crazy tinnitus sounds.

Are you getting vertigo attacks?

It seems Meniere's sufferers might have a buzz or ring from what I've been hearing so far and that seems to be the extent of it.

But I mean, the going deaf and puking your heart out aren't exactly some cakewalk.

I had dizzy episodes before the new ringing started. But I guess Meniere's is vertigo and hydrops is like Meniere's minus the vertigo.

 

[DebInAustralia]

Hey, I'm really sorry you're struggling so much. I just want to let you know that a few months about, I was 10/10 suicidal, often unable to speak because the tinnitus was so bad and intrusive.

The noises themselves haven't changed I don't think, still erratic, still occasionally painful, but I don't actually care anymore, life is ok again. You won't always feel this way. I'm sitting here in a quiet room writing this to you and it doesn't really register to me that I've got tinnitus. This may be the hardest thing you've ever had to deal with but I promise you, you can do it. If I can do it, you can too. Please hang in there and like someone said to me, if you've got no hope left, at least have hope of hope. It won't always be this way xxx

Your improvement is great to read about.

Do you think you've actually habituated or the noise has reduced?

 

[DebInAustralia]

I'm not going to lie, it took a good few months for me to even be able to consider living with this.

And the odd thing is, you'll improve without knowing it because it'll be so slow sometimes. The quietening down and the backing off seem to happen simultaneously, even if there's no change in the characteristics of the noise. It's just you stop caring. I literally can't focus on my noises anymore, it's become that irrelevant to my brain. The only time it gets to me is when I think about it, so I don't think about it.

You're not a lost cause at all, but I well understand your pain and frustration. It's like wanting to force something to happen but you can't. This is probably going to test your patience like nothing before, but hang on with all your might because your life is still there, it's being drowned out right now. You can do this xxx

Would you consider yourself to have loud tinnitus?

 

[Barry098]

Interesting thread. I actually just fired my "specialist" audiologist/CBT counselor because I felt completely taken advantage of. It wasn't that the information I received was incorrect. It just wasn't anything that I didn't already know from reading the free 2 page pamphlet that I received after an appointment with a different ENT. This person completely oversold what he had to offer in the informational meeting (thus hooking me in to a $2500 / 8 session program). Then he overwhelmingly underdelivered. I signed up primarily for the CBT counseling component and when I recognized that Wikipedia has far more to offer than this guy, I finally confronted him about my disappointment with the whole program. He offered to refund the 3 remaining sessions but his math was a little fuzzy because by his calculations each session was in the two hundred dollar range. Regardless, I haven't received the refund yet and I'm not holding my breath.

The saddest thing for me about the situation is that it is yet another reminder that there are predators out there who prey on desperation. As if dealing with crushing anxiety from screaming tinnitus is not enough, you also have to watch out for people who will see you as an easy target because you just don't have the strength to defend yourself in this kind of condition. Disgusting...