Ian Mac's Regenokine (Orthokine) Treatment for Cochlear Hydrops

Discussion in 'Alternative Treatments and Research' started by Ian Mac, Oct 25, 2016.

    1. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      See Above
       
    2. Mario martz
      Creative

      Mario martz Member

      Tinnitus Since:
      02/2016
      i think it takes time to fully project the changes!!
      a few weeks ago, i talked to professor marcelo rivolta of the university of sheffield.
      they are gonna test stem cells for menieres, april next year, im very very excited for the outcome.

      some meneires patients have had their symptoms reversed (tinnitus included) while on antivirals,
      so imagine have stem cells directly into our ears.

      having great hopes about this one!
       
      • Informative Informative x 2
      • Good Question Good Question x 1
    3. Dominic1955
      Artistic

      Dominic1955 Member Benefactor

      Location:
      Waverly, Pennsylvania
      Tinnitus Since:
      4/2/2016
      Cause of Tinnitus:
      Idiopathic hearing loss
      Did u have the injection in the muscle around the ear?
       
    4. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      So far I would have to say that this treatment did not work for me. I would not recommend it at this point..
       
      • Informative Informative x 2
    5. Path Maker

      Path Maker Member Benefactor

      Tinnitus Since:
      12/2015
      Cause of Tinnitus:
      acoustic
      Ian, might it not take a little longer than just a few weeks? There are neurological components to the tinnitus that need time to "get the message" and take some time to "readjust their settings," yes??? I mean, I don't know, but it seems logical that it could take longer than a few weeks to see a result? Still hoping for a great outcome for you.
       
      • Like Like x 1
    6. Marlino
      Cowboy

      Marlino Member

      Location:
      Germany
      Tinnitus Since:
      02/2016
      Cause of Tinnitus:
      unknown
      I'm deeply sorry.
      I can imagine the hope you had.
      Even though it's just bitter, thanks for sharing.
       
    7. PatrickG

      PatrickG Member Benefactor

      Location:
      Stockholm, Sweden
      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Punch/kick to the right ear
      I understand that it must be a great letdown. But you had the courage and hopes and I only wish it gets better. It's not too late yet. Best wishes
       
      • Agree Agree x 1
    8. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Ian Mac,
      Hope you get some improvement over the next few months .
      Well done for sharing your story and going for the treatment..
      Let's hope the future holds great answers and treatment for tinnitus in all its sub categories . ...lots of love glynis
       
      • Helpful Helpful x 1
      • Hug Hug x 1
    9. PatrickG

      PatrickG Member Benefactor

      Location:
      Stockholm, Sweden
      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Punch/kick to the right ear
      @Ian Mac how are you doing? Any improvements?
       
      • Good Question Good Question x 1
    10. TOVEGA

      TOVEGA Member Benefactor

      Location:
      USA
      Tinnitus Since:
      2000 - Spike 2015
      Cause of Tinnitus:
      Noise
      Any updates? Are you any better or no?
       
      • Good Question Good Question x 1
    11. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      After going in for my final shot three weeks ago I've noticed the really bad noise in my right ear has completely gone away. I made a lot of lifestyle changes started drinking a lot of water started to try and sleep move back in with my parents to get sleep and all of a sudden the noise got quieter and went away. I can't say if it's the lifestyle changes the changes of breath and breathing calming down relaxing or if it's the treatment or if it's a combination of all of them but I am so happy to have that noise gone and just be back to pretty much normal tinnitus, there are some other noises I'm dealing with that I've noticed now that the really bad noise is gone but they aren't so bad that I'm missing sleep because of them so I'm very happy :) :) :)
       
      • Like Like x 3
    12. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      Like a said above I've noticed a somewhat miraculous change as the really bad noise in my right ear of keys jingling and birds chirping went away after going in for my final shot! Now I have pretty much normal tinnitus in both ears except for some slight beeping that literally goes from right ear to left ear randomly. I made a lot of lifestyle changes like trying to sleep in a quiet space for eight hours exercising more drinking water and eating well stopping smoking weed, I don't know if it's my lifestyle changes or the treatment which caused my tinnitus remission, but I think it all has to do with a healthy ion balance inside the cochlea and more specifically inside the endolymph fluid bathing the hair cells.
       
      • Like Like x 2
    13. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      see above
       
    14. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      I have to say I'm doing better.
       
      • Like Like x 3
    15. AUTHOR
      AUTHOR
      Ian Mac

      Ian Mac Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Vestibular Nueritis, loud music (dubstep)
      That is exiting, let me know when that happens.
       
    16. PatrickG

      PatrickG Member Benefactor

      Location:
      Stockholm, Sweden
      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Punch/kick to the right ear
      @Ian Mac man I just want to send you love :) So happy for you!
       
    17. Mario martz
      Creative

      Mario martz Member

      Tinnitus Since:
      02/2016
      First of all... so happy for you.
      Second... this study is happening on april.
      i dont know the amount of time it is gonna take but it starts on april.
      and yes... exciting indeed!!!
       
      • Like Like x 1
    18. T-Y

      T-Y Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown
      Hi Ian,
      I'm so happy to hear that you succeeded. Maybe its because of your lifestyle change, but I hope that Regenokine has worked as well.

      My wife suffers from a hyperacusis and considering receiving Regenokine.
      If you have a hyperacusis, did it get better as well after your Regenokine treatment?
       
    19. Sailing Guy

      Sailing Guy Member

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      start of bilateral cochlear hydrops
      Hi Ian and all,
      How are you doing now with the Orthokine treatment? I, too, have Cochlear Hydrops and am very interested in your experiences as well as where you had this done in NYC. I go frequently enough to NY and would like to talk with the doctors that you worked with.
      I wish you the very best outcomes possible!
      Sailing Guy
       
    20. noitseuq

      noitseuq Member

      Tinnitus Since:
      Right 2006. Left 2017
      Cause of Tinnitus:
      loud music
      Anyone else has tried this??
       
    21. 1000

      1000 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Trauma
      Bump
       
      • Like Like x 2
    22. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      FYI IanMac's "last seen" is a year ago. Oh well.
       
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