If Your Tinnitus Was Cured, What Would Be the First Thing You Do Afterwards?

Discussion in 'Support' started by WaqasVic, Aug 12, 2018.

    1. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Indeed! Lol
       
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    2. TuneOut

      TuneOut Member

      Location:
      El Dorado Hills, CA
      Tinnitus Since:
      Worsened 2016
      Cause of Tinnitus:
      Concert
      Let's bribe them for info.
       
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    3. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Normally, the more you take something, the less effective it gets. So there is a chance that the pill won't work that second time.
       
    4. TuneOut

      TuneOut Member

      Location:
      El Dorado Hills, CA
      Tinnitus Since:
      Worsened 2016
      Cause of Tinnitus:
      Concert
      Then take two. Problem solved.
       
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    5. derpytia
      Pooptoast

      derpytia Member Benefactor

      Location:
      Rescue, California
      Tinnitus Since:
      04/2014 (many increases since then)
      Cause of Tinnitus:
      Progressive hearing loss / noise / ETD
      I would live :)

      I would be happy and do the things that T was preventing me from doing like sing, and go out with friends, and travel.
       
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    6. another sean
      Studious

      another sean Member Benefactor Ambassador Advocate

      Location:
      Los Angeles
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Long duration of low audio
      Listen to every album Ive missed in the last 3 years while driving to Disneyland.
       
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    7. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      • Genius Genius x 1
    8. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Yeah I realize this. I think it may. We will know soon enough.
       
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    9. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
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    10. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Damn so I must have missed the part where it said the human hair cells werent as robust. I'm not totally sure but I think they only used the ly411575. Looks like the fx322 has other ingredients I presume to increase its efficacy. All we can really do is wait for this trial or the next one to be completed before we can know more. At least it didnt say that it didnt work at all so there's some promise there.
       
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    11. gav01

      gav01 Member

      Location:
      U.K.
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Loud noise
      Enjoy life again.
       
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    12. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      Most people in my family are clinical trial administrators (for cancer) and just the bureaucracy, paper work, clinical trial dates and approval are all slower than molasses. The ONLY promising thing that i have found that is worth following is that Michigan University thing, my dad has colleagues who are doing those trials and he says it looked promising considering other locations are thinking of supporting and following up with their own trials.

      Cross your fingers, but a cure is not likely for a loooong time.
       
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    13. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      What about a cure for cancer?
       
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    14. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I hope you're wrong.
       
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    15. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      https://en.m.wikipedia.org/wiki/Fast_track_(FDA)

      Novartis' imatinib (Gleevec) for CML -- Phase 1 trials began in June 1998, drug was approved 3 years later in May 2001 (FDA granted fast track and priority review; FDA review was a record 2.5 months)
       
    16. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      Whatever the circumstances i hope for the best too...T doesn't seem like a priority from what i have researched...but the more persistent we are the better the chances.
       
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    17. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Tinnitus is secondary to hearing loss, we will be riding the coattails of that condition. Curing hearing loss is a huge deal. Think about it.

      Roll-Safe-Think-About-It.jpg
       
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    18. john paul
      English

      john paul Member

      Tinnitus Since:
      11/11/17
      Cause of Tinnitus:
      acoustic trauma
      Write to whoever found the cure and thank them.

      Then dance around naked in the street, 0 fucks given.
       
    19. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      We shall see, I think the future is good as more and more people get T...i am hopeful that it will be in my lifetime *sigh*
       
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    20. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      It's not just about tinnitus, it's about hearing loss.
       
    21. AUTHOR
      AUTHOR
      WaqasVic
      Artistic

      WaqasVic Member

      Location:
      Pakistan
      Tinnitus Since:
      01/2013
      Cause of Tinnitus:
      My T is way different than all of you , ask me how
      You can still do that you know :)
       
    22. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      She could, but then she might have to pay for it for the rest of her life.

      Power tools: ollesafeee.jpg
       
    23. fran dana
      No Mood

      fran dana Member

      Location:
      Argentina
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      origin unknow.2016 get worse because of work in armament lab
      I would go to a recital and it would be as close to the stage as possible :wacky:
       
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    24. Apolonia
      Disappointed

      Apolonia Member

      Location:
      Croatia
      Tinnitus Since:
      December 2017
      Cause of Tinnitus:
      Noise induced, acoustic trauma
      Do music without any hesitation whatsoever
       
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    25. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      I dont even get the meme
       
    26. Shera
      Bookworm

      Shera Member

      Location:
      USA
      Tinnitus Since:
      12/9/2016
      Cause of Tinnitus:
      head trama caused TMJ/neck problems/ETD
      Sigh with relief. Likely followed by tears of joy and thus joyful sobbing.

      Then I'd shut up and chill in the silence, followed by reading a wonderful book in the silence. Followed by what I hope to be the best nights sleep I've had in too long. So on.
       
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    27. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      We were not using it right. We both used it in place of "Use your head!"

      But here is an example of an actual meme:
      27nfnu.jpg
       
    28. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      What do they say about the prospects of breakthroughs in cancer research in the foreseeable future?
       
    29. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      I really don't want to express my thoughts on this because it might get traced back to me (we are technically in a medical forum), I'll say that I hope we see a cure soon.
       
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    30. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      I would turn off the lights and lie on my bed in complete darkness... and complete silence.

      And taking in that silence...

      Then I would put on MCMXC aD from Enigma, on very low volume... and enjoy my favorite destressing music album for the first time in years without it sounding like there’s some static in my speakers.

      And third... I’d take my partner and my doggies to a silent place in the forest and enjoy the silence. And not say a word.

      Fourth... I’d thank whoever is listening up there for giving us a second chance.
       
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