Apolonia
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Apolonia

Member, from Croatia

Any news on understanding and treating hyperacusis? Aug 12, 2018 at 11:25 PM

Apolonia was last seen:
Viewing forum list, Aug 18, 2018 at 2:03 PM
    1. Apolonia
      Apolonia
      Any news on understanding and treating hyperacusis?
      1. SugarMagnolia likes this.
      2. View previous comments...
      3. Apolonia
        Apolonia
        Is there a possible treatment that does not include hair cell regeneration?
        Aug 13, 2018 at 6:56 PM
      4. dpdx
        dpdx
        How are you doing?
        Aug 15, 2018 at 10:53 PM
      5. Apolonia
        Apolonia
        the same. Nothing has changed except from hyperacusis.. It is better now. Sometimes it comes back but then goes back to normal. I am still scared of the condition getting worse but I am more prepared now and I am ready to wear hearing aids in the near future if the condition gets worse
        Aug 16, 2018 at 10:46 AM
    2. Apolonia
      Apolonia
      I belong to those poeple whose H gets better after a lot of physical activity. Yes,I am back.
      1. SugarMagnolia and Bill Bauer like this.
    3. cspc
      cspc
      @Apolonia I read your past threads (ear pressure, morse code tinnitus). I went through these things too in March and April and I still ger morse code tinnitus and ear pressure from time to time. If you need a friend to talk to you can talk to me.
      1. cspc
        cspc
        I am trying to find something to relieve my ear pressure that might also work out for you. My ear pressure doesn't respond to chewing gum or sucking candy either.
        Jul 30, 2018
    4. Apolonia
      Apolonia
      Good luck to you all and ne safe and killing should stop. Stay safe and sound!!!!
      1. dpdx
        dpdx
        what happened?
        Jul 28, 2018
        Bill Bauer likes this.
      2. annV
        Jul 28, 2018
    5. Apolonia
      Apolonia
      I am leaving the group. I just can't stand People killing themselves over the condition I have as well. This makes me really depressed.
      1. Contrast likes this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        If (like me) you didn't know this member and had never talked to him, I am not sure why you are so upset.
        Jul 29, 2018
      4. Apolonia
        Apolonia
        I don't knoe the guy but from what I see it seems tinnitus played a role in is suicide. It scares me a lot the fact that hearing damage leads people to killing themselves. Why can't we just accept hearing aids like we accept glasses fof our eyes? Losing hearing is part of life just like losing vision and we should all acknowledge that and try and find ways to treat the symptoms of h.loss
        Aug 12, 2018 at 11:19 PM
      5. Apolonia
        Apolonia
        please just don't take your own lives. There are so many chronic diseases that have not been discussed yet. Life sucks, but it is what it is. Our weaknesses make us stronger.
        Aug 12, 2018 at 11:21 PM
    6. Apolonia
      Apolonia
      Positive things that tinnitus has brought me: Strength, groundedness, knowing that life is not forever and that is ok. Appreciating life.
      1. Bill Bauer, cspc, lena_ and 3 others like this.
    7. Apolonia
      Apolonia
      Success story: Nothing. Habituation.Acceptance.Vitamins.Earplugs.Saying goodbye to my dream of becoming a professional musician.Moving on.
      1. Autumnly and dpdx like this.
      2. dpdx
        dpdx
        Yupp......accept it and move on.
        Jul 27, 2018
        Autumnly and Apolonia like this.
      3. Apolonia
        Apolonia
        there is no other option... people suffer from a lot of hidden diseases that cannot be cured forever. Everyone has something. we need to find a way to manage this....
        Jul 27, 2018
      4. dpdx
        dpdx
        I would be ok if my T was mild, but its very intrusive/loud. Not maskable. On top of that I have Hyperacusis, Visual snow, and dark/black eye floaters. I am also dealing with a swollen lymph node...idk why.
        Jul 28, 2018
        Autumnly likes this.
    8. Apolonia
      Apolonia
      You are all wrong. there is no TMJ. Hyperacusis is the cause of the pain in the jaw and facial pain... It is the inner ear not TMJ.
    9. Apolonia
      Apolonia
      How to get rid of Hyperacusis? How???
      1. Autumnly likes this.
      2. TnH
        TnH
        Nothing, just got let the body do what it does. It improves somewhat overtime. Protect your ears when needed to avoid a setback
        Jul 25, 2018
        Bill Bauer likes this.
    10. Apolonia
      Apolonia
      So, my strong H is officially back today... :/ Wearing earplugs again. I knew I shouldn't be exposed to a strong wind. :/
      1. Contrast
        Contrast
        Did your hyperacusis increase with your H?
        Jul 25, 2018
    11. Apolonia
      Apolonia
      I really do believe taking vitamins helps in a way...
      1. Bill Bauer likes this.
    12. Apolonia
      Apolonia
      Today I am in pain . My whole Jaw and head hurt.
    13. Apolonia
      Apolonia
      So, I Just realized I can't Hear People talking over a sound of bags or anything else I am doing, even water running or washing machines
      1. cspc likes this.
      2. Taylorslay
        Taylorslay
        You're not alone. I can't either. Generally, we are not suppose to understand and hear everybody over background noise. Even people with healthy ears. Which would explain why they too say or yell "WHAT? I DIDN'T HEAR WHAT YOU SAID.".
        Jul 24, 2018
      3. Apolonia
        Apolonia
        I hope that is the case. Tnx for supporting me :)
        Jul 24, 2018
        Taylorslay likes this.
    14. Apolonia
      Apolonia
      @csps I don't have that. My tonsilitis is much better now .
      1. cspc likes this.
      2. cspc
        cspc
        Jul 21, 2018
    15. Apolonia
      Apolonia
      Has anyone survived ear fullness? Did it go away eventually?
      1. cspc likes this.
      2. nomoredreaming
        nomoredreaming
        Iv had it for a few weeks it's stressing me out
        Jul 11, 2018
      3. Apolonia
        Apolonia
        It sucks
        Jul 11, 2018
      4. cspc
        cspc
        Good question. I also experience high frequency hearing loss with it.
        Jul 17, 2018
    16. Apolonia
      Apolonia
      OMG I am freaking out. I know what I have now. I have this endolymphatic hydrops thing. Is there a cure for this?
      1. cspc likes this.
      2. Nice
        Nice
        I hope you feel better soon.
        Jul 10, 2018
      3. cspc
        cspc
        I have this too. They told me it's from acoustic trauma or from period hormones that change before my period. Are you still on betaserc? I stopped it due to some side effects it gave to my eyes but my ears got out of control. Really wondering if it could prevent hearing loss from ear pressure episodes.
        Jul 17, 2018
      4. Apolonia
        Apolonia
        Now it makes more sense bc my ET is fine and when I chew a gum it does not help. It is deep inside... Well, it is what it is :/
        Jul 17, 2018
        cspc likes this.
    17. Apolonia
      Apolonia
      Should I be scared of a frequent full ear sensation?
      1. View previous comments...
      2. Apolonia
        Apolonia
        It is always the same
        Jul 22, 2018
      3. dpdx
        dpdx
        Damn, mine too...well actually it was quite bad last night. Do you have eye floaters?
        Jul 22, 2018
      4. Apolonia
        Apolonia
        I have had eye floaters since childhood. That has nothing to do with tinnitus. My H is a lot better. Tinnitus is Always the same along with ear fullness
        Jul 22, 2018
    18. Apolonia
      Apolonia
      I don't understand why ear treatments are so expensive and hard to reach. It is absurd and People need help.
      1. Menachem and Nice like this.
    19. Apolonia
      Apolonia
      I had the opportunity to meet a person who says this whole page is full of lies. Why would that person say that?
      1. View previous comments...
      2. Apolonia
        Apolonia
        I mean the alternative treatments, and research studies posted in here
        Jul 6, 2018
      3. Contrast
        Contrast
        i can agree virtually everything in alternative treatment is BS as well as TRT and Levo. Who was it?
        Jul 8, 2018
      4. Apolonia
        Apolonia
        Some weird person. But they even neglect the research studies. They are pro TRT but neglect the effect of Mg and some supplements that have some effect on the nerves... Really rude person I have to admit
        Jul 8, 2018
    20. Apolonia
      Apolonia
      I believe scientists should investigate more the relation between PMS and the intensity of tinnitus and hyperacusis.
      1. SugarMagnolia, glynis and Contrast like this.
      2. View previous comments...
      3. Tinker Bell
        Tinker Bell
        Did they mention if it caused any short-term fluctuations and if PMS had also caused fluctuations for them?
        Jul 7, 2018
        SugarMagnolia likes this.
      4. TheDanishGirl
        TheDanishGirl
        No, I didnt ask about that, but they said it did not affect their T at all, so I guess they had no fluctuations.
        Jul 7, 2018
        SugarMagnolia likes this.
      5. Shera
        Shera
        Huh. My PMS was really messing with my T. Now it just fluctuates so much I can't figure out patterns.
        Jul 13, 2018
    21. Apolonia
      Apolonia
      Stupid hearing damage...
      1. dpdx
        dpdx
        Hey how are you? Are you ok?
        Jun 21, 2018
      2. Apolonia
        Apolonia
        Hi. I am always the same. My tinnitus is always there. The intensity is still the same.I am only coping better. The only thing that gets a little bit better over time is H and I kind of believe that I have some control over it. Best
        Jul 5, 2018
        Greg Sacramento likes this.
      3. dpdx
        dpdx
        I am not coping well. the dark eye floaters and visual snow are terrible...on top of the severe t and h
        Jul 5, 2018
    22. Apolonia
      Apolonia
      I can't stand the traffic noise anymore.. this is killing me... I am in such pain...
    23. Apolonia
      Apolonia
      No improvements... Still the same...
      1. dpdx and JodieStephens like this.
      2. dpdx
        dpdx
        on a scale of 1 -10, with 10 being loudest, how intense is your T?
        Jun 14, 2018
      3. Apolonia
        Apolonia
        No matter how loud it is I hate it only bc it reminds me every day that I have a hearing damage. That is the worst part of it. I am coping better now.
        Jul 5, 2018
    24. Apolonia
      Apolonia
      What does PMS have to do with my ears?
      1. SugarMagnolia likes this.
    25. Apolonia
      Apolonia
      I was exposed today to a lot of traffic noise... I am an idiot...
      1. SugarMagnolia likes this.
      2. View previous comments...
      3. cspc
        cspc
        I saw some videos of trucks on low volume. I heard a truck horn in May when I was driving on the highway next to a big truck.
        Jun 7, 2018
        SugarMagnolia and New Guy like this.
      4. New Guy
        New Guy
        Oooh! That would suck. I hope you had some hearing protection on. Since I got t I realized how randomly people honk horns, rev engines and leave holes in their crappy mufflers. Take any good car, poke a hole in the muffler it and it's ridiculous noise.
        Jun 7, 2018
        SugarMagnolia likes this.
      5. cspc
        cspc
        I had on previous highway trips but not when I heard the truck horn. I couldn't predict it, it was a Saturday morning and thought that the chances of finding one were low. I didn't had much change to my hearing or t following that incident. Me too. People love noise.
        Jun 7, 2018
        SugarMagnolia and New Guy like this.
    26. Apolonia
      Apolonia
      Stupid hyperacusis
    27. Apolonia
      Apolonia
      7th month of tinnitus.... Still, the same. Hyperacusis only when exposed to traffic noise.
      1. cspc likes this.
    28. Apolonia
      Apolonia
      Traffic today made my ears worse...
    29. Apolonia
      Apolonia
      I've Just realized that I have been suffering from H for years. But, I Always thought it was TMJ. Omg...
      1. cspc
        cspc
        Maybe it's a problem with your teeth? Wisdom Teeth? Gum Disease? Cracked Tooth? Decayed Tooth? Not necessarily TMJ.
        Jun 5, 2018
      2. Apolonia
        Apolonia
        I never had problems with teeth.. i have some Jaw misalignment.I Always thought my Jaw pain was from that. But , IT is not.. IT was from the inner ear pain... I had this for 10 years. But now it Got so much worse..
        Jun 5, 2018
    30. Apolonia
      Apolonia
      When the silence begins, my tinnitus activates... This sucks
      1. AZeurotuner
        AZeurotuner
        Noise is a good distraction from the ringing... I'm thinking of purchasing a small fountain to run in the house. Flowing water is a great masker and quite relaxing as well.
        Jun 5, 2018
        cspc and Apolonia like this.
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  • About

    Location:
    Croatia
    Tinnitus Since:
    December 2017
    Cause of Tinnitus:
    Noise induced, acoustic trauma
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