Apolonia
Mood:
Disappointed
Joined:
Feb 15, 2018
Messages:
226
Trophy Points:
186

Post Ratings

Received: Given:
Like 174 69
Agree 60 128
Helpful 3 7
Hug 26 15
Good Question 16 7
Genius 3 1
Funny 0 2
Winner 8 8
Informative 5 5
Friendly 1 0
Useful 1 0
Optimistic 1 0
Creative 1 1
Location:
Croatia

Share This Page

Apolonia

Member, from Croatia

Will I ever be sitting in silence??? NO, but at least my brain got used to it.... Plasticity is a real thing Oct 7, 2018

    1. Apolonia
      Apolonia
      Will I ever be sitting in silence??? NO, but at least my brain got used to it.... Plasticity is a real thing
      1. New Guy likes this.
    2. Apolonia
      Apolonia
      Haven't been Here lately. Any news on a potential drug?
      1. Contrast
        Contrast
        FX-322, OTO-413 are the ones I got my eyes on.
        Sep 29, 2018
    3. Apolonia
      Apolonia
      I think hyperacusis is a very common thing , but people don't like to talk about it
      1. Contrast
        Contrast
        not common, but very mild forms may go unnoticed.
        Sep 23, 2018
      2. New Guy
        New Guy
        I feel that way with pretty much everything t related except with people with t.
        Sep 24, 2018
    4. Apolonia
      Apolonia
      I don't know why, but I've been having terrible problems with my jaw lately
    5. Apolonia
      Apolonia
      I think I have permanently damage my OHC. But only , a couple of them
      1. Contrast
        Contrast
        there is probably more unknowns to hyperacusis with pain then just OHC damage.
        Sep 22, 2018
    6. Apolonia
      Apolonia
      I want to say that my T started silently and it is still silent but Always the same. It was changing kn the beginning but now it's constant
      1. Equalizer likes this.
    7. Apolonia
      Apolonia
      Now I know that my tinnitus Will never go away...It's been 10 months and it is Always the same....
    8. dpdx
      dpdx
      how are you?
      1. Apolonia
        Apolonia
        The same. Tinnitus hasn't changed whatsoever.
        Sep 16, 2018
    9. Apolonia
      Apolonia
      why is this stem cell thing so goddamn expensive???
      1. Equalizer and Artazanasss like this.
      2. Red
        Red
        I'm guessing because it's still so new.
        Sep 10, 2018
    10. dpdx
      dpdx
      Do you still have H?
      1. Apolonia
        Apolonia
        sometimes. I have noticed that my tinnitus is now worse in silence than it was before
        Sep 10, 2018
    11. Apolonia
      Apolonia
      Alzheimer is the worst :,(
    12. Apolonia
      Apolonia
      If the brain were to heal, then we would never die haha XD
      1. dpdx likes this.
      2. Contrast
        Contrast
        other parts of the body would wear down. IE vital organs
        Sep 2, 2018
    13. Apolonia
      Apolonia
      Reading all this research and realizing I have no money for it
      1. dpdx likes this.
    14. Apolonia
      Apolonia
      Or, the injury is in the ear and it affected my lymbic system which is connected to PMS. Makes sense to me. We need to control the lym. syst
      1. Bill Bauer likes this.
    15. Apolonia
      Apolonia
      PMS literally worsens my tinnitus and my H. That is why I believe that my condition has something to do with the lymbic system inst. of ear
    16. Apolonia
      Apolonia
      my nana takes memantine? I am tempted to take one just for H
    17. Apolonia
      Apolonia
      is there some kind of pain killer for H?any kind of pill for the brain??
      1. Contrast
        Contrast
        tinnitus is confirmed neurological, but painful hyperacusis seems to be a ear condition but there could be more to it.
        Aug 29, 2018
      2. Apolonia
        Apolonia
        Hyperacusis is definitely connected with the brain. Each time I have PMS it gets worse
        Aug 29, 2018
    18. Apolonia
      Apolonia
      Ginger plays a crucial role in reducing H. I know it from my own experience. However, it worsens my tinnitus :/
      1. dpdx likes this.
    19. Apolonia
      Apolonia
      However, my H got reduced after one month, but that was bc I drank ginger tea and took a lot of vitamins in the beginning.
      1. dpdx likes this.
    20. Apolonia
      Apolonia
      Update: I have had tinnitus now for 9 months. The only thing that got better is H. Tinnitus is always the same. Sometimes it gets worse...
      1. dpdx likes this.
    21. Apolonia
      Apolonia
      I still can't stand the sound of glasses :'(
      1. dpdx likes this.
    22. Apolonia
      Apolonia
      Tinnitus louder than usual.
      1. dpdx
        dpdx
        Woke up this morning to blasting tinnitus. I think I have more then just 25db hearing loss on 4khz, I would put it at least at 35db.
        Aug 22, 2018
    23. Apolonia
      Apolonia
      I feel like I am losing hearing very very gradually.....
      1. Contrast
        Aug 22, 2018
      2. dpdx
        dpdx
        :( :(
        Aug 22, 2018
    24. Apolonia
      Apolonia
      Any news on understanding and treating hyperacusis?
      1. SugarMagnolia likes this.
      2. View previous comments...
      3. Apolonia
        Apolonia
        Is there a possible treatment that does not include hair cell regeneration?
        Aug 13, 2018
      4. dpdx
        dpdx
        How are you doing?
        Aug 15, 2018
      5. Apolonia
        Apolonia
        the same. Nothing has changed except from hyperacusis.. It is better now. Sometimes it comes back but then goes back to normal. I am still scared of the condition getting worse but I am more prepared now and I am ready to wear hearing aids in the near future if the condition gets worse
        Aug 16, 2018
    25. Apolonia
      Apolonia
      I belong to those poeple whose H gets better after a lot of physical activity. Yes,I am back.
      1. SugarMagnolia and Bill Bauer like this.
    26. cspc
      cspc
      @Apolonia I read your past threads (ear pressure, morse code tinnitus). I went through these things too in March and April and I still ger morse code tinnitus and ear pressure from time to time. If you need a friend to talk to you can talk to me.
      1. cspc
        cspc
        I am trying to find something to relieve my ear pressure that might also work out for you. My ear pressure doesn't respond to chewing gum or sucking candy either.
        Jul 30, 2018
    27. Apolonia
      Apolonia
      Good luck to you all and ne safe and killing should stop. Stay safe and sound!!!!
      1. dpdx
        dpdx
        what happened?
        Jul 28, 2018
        Bill Bauer likes this.
      2. annV
        Jul 28, 2018
    28. Apolonia
      Apolonia
      I am leaving the group. I just can't stand People killing themselves over the condition I have as well. This makes me really depressed.
      1. Contrast likes this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        If (like me) you didn't know this member and had never talked to him, I am not sure why you are so upset.
        Jul 29, 2018
      4. Apolonia
        Apolonia
        I don't knoe the guy but from what I see it seems tinnitus played a role in is suicide. It scares me a lot the fact that hearing damage leads people to killing themselves. Why can't we just accept hearing aids like we accept glasses fof our eyes? Losing hearing is part of life just like losing vision and we should all acknowledge that and try and find ways to treat the symptoms of h.loss
        Aug 12, 2018
      5. Apolonia
        Apolonia
        please just don't take your own lives. There are so many chronic diseases that have not been discussed yet. Life sucks, but it is what it is. Our weaknesses make us stronger.
        Aug 12, 2018
    29. Apolonia
      Apolonia
      Positive things that tinnitus has brought me: Strength, groundedness, knowing that life is not forever and that is ok. Appreciating life.
      1. Menachem, Bill Bauer, cspc and 4 others like this.
    30. Apolonia
      Apolonia
      Success story: Nothing. Habituation.Acceptance.Vitamins.Earplugs.Saying goodbye to my dream of becoming a professional musician.Moving on.
      1. Autumnly and dpdx like this.
      2. dpdx
        dpdx
        Yupp......accept it and move on.
        Jul 27, 2018
        Autumnly and Apolonia like this.
      3. Apolonia
        Apolonia
        there is no other option... people suffer from a lot of hidden diseases that cannot be cured forever. Everyone has something. we need to find a way to manage this....
        Jul 27, 2018
      4. dpdx
        dpdx
        I would be ok if my T was mild, but its very intrusive/loud. Not maskable. On top of that I have Hyperacusis, Visual snow, and dark/black eye floaters. I am also dealing with a swollen lymph node...idk why.
        Jul 28, 2018
        Autumnly likes this.
  • Loading...
  • Loading...
  • About

    Location:
    Croatia
    Tinnitus Since:
    December 2017
    Cause of Tinnitus:
    Noise induced, acoustic trauma