It's There, It's Loud — Yet I'm Fully Habituated — One Year on My Tinnitus Journey

Discussion in 'Success Stories' started by Bryan91, Sep 24, 2020.

    1. Bryan91

      Bryan91 Member

      Tinnitus Since:
      08/19
      Cause of Tinnitus:
      Unknown
      First time poster here, 28-year-old male, but long time reader probably since the very start of my tinnitus journey.

      So pretty much a year to the day since this absolute awful thing started, lying in bed watching tv and an aeroplane like noise started in my left ear, a low rumbling, like a jet liner. Just out of nowhere and it was incredibly loud. Panic almost instantly set in, this was not normal. I had ear problems in the past with ETD and was deaf in said ear for 4 months a few years earlier. Anyway this went on for a few days, eventually got seen by a doctor who said my ears were full of wax and that was the issue. Gave me antibiotic drops which worked for the rumbling, then the ringing started in the right ear. And boy did it start. This was like nothing I had experienced before, it was god awful. Couldn’t sleep, was constantly anxious, crying, was a complete mess to be honest.

      So about a week later I got the wax taken out of both ears, with the suction tool they use. I just prayed this would work, it was pretty disgusting what came out in fairness. When we were done there was no difference, ringing still going mad. I remember just driving home in tears. I had two other appointments with the doctor to see what was going on, ended up on meds for anxiety and depression. This thing had me. Doctor told me it’s neurological and they can’t do anything. Hearing tests were perfect which actually didn’t help, I wanted answers to what was wrong! From September-January I was in a very very dark place. After nearly every shift at work I’d just get in the car and break down. There is not a minute of the day that went by I wouldn’t forget about it, it was taking over my life. If it wasn’t for my amazing partner and 7-year-old son I would definitely not have made it through.

      Then slowly but surely towards the end of January, start of February I started to find myself forgetting about it for a couple minutes here and there. Not a long time but to me this was progress! Then another few weeks later I’d find myself in work going hours without even thinking about it!

      Fast forward to today and I would put myself in the fully habituated category. It’s there, it’s loud, but it doesn’t bother me in the slightest. I can go days without thinking about it, I hear it now but only because I’m talking about it!

      I know we are all different, and habituation comes at different rates. I’d say mine took 9 months to get to the stage where I am at now. But it does happen. If you had told me last Christmas I’d be in the place I am now I would not have believed you for a second. I have spikes quite frequently, actually experiencing one now as have had a bit of a head cold last few days, however I’m well equipped to deal with it and I do know it’ll calm to a baseline level again.

      I found the doctors pretty much useless in this, their go to answer is it’s incurable.

      Please don’t despair. If habituation was possible for me, it’s possible for anyone.
       
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    2. Felix6666

      Felix6666 Member

      Tinnitus Since:
      May 2020
      Cause of Tinnitus:
      Unknown
      Thanks @Bryan91 for posting this it's great to hear some good news like this. I feel bad for you at 28 but delighted you have habituated. I'm much older and getting there slowly but surely. Take care of yourself and your family.
       
    3. GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      Also 28 and jealous of you!!!
       
    4. KWC

      KWC Member

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Ear Infection/TMJ ??
      @Bryan91 thanks for your post as well. I have had right ear tinnitus since January of this year and have had about every test and seen every doctor that I can think of. Like you I really do not know what caused mine, had ear infection, took antibiotic, have jaw TMJ issues - all on the right side. I have been through every emotion as well and have had to have meds to help. I am nowhere near habituation, but have migrated from ear masking to playing background sound on my phone. As you noted everyone is different but it is encouraging to hear your story. I am quite a bit older as well and feel for you at 28 and others.

      I am hoping for habituation as well as it looks like medically I will never identify cause and resolution. Not giving up hope but I hope one day to post a success story such as yours.

      Thanks,
      Ken
       
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    5. Felix6666

      Felix6666 Member

      Tinnitus Since:
      May 2020
      Cause of Tinnitus:
      Unknown
      @KWC I read your posts and it seemed very similar to my own. Mine began in May with no apparent hearing loss even at higher frequency testing. I got a splint for possible TMJ as I had fractured a tooth re clenching and had lost some back teeth. Unfortunately the splint seems to make everything worse. I am very fortunate as its quiet then loud. I have a pure tone continuous static noise in my left ear, crackling and what sounds like a wind chime. After losing my head at the beginning I'm trying to pull myself together but it's not easy. I'm going back to the dentist for another opinion. I use a sound pillow to sleep and get some relief from hearing aids. Hope things improve for you and everyone else trying to deal with this.
       
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    6. KWC

      KWC Member

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Ear Infection/TMJ ??
      Thanks @Felix6666. How did the splint make it worse? How long did you wear it for? When you say yours is quiet does it bother you during the day, etc.? My sound has evolved and it seems the splints changed the sound... I had really bad TMJ pain that the splints seemed to have helped, so riding it out. Right now my tinnitus is a higher pitch static.

      My sleep is with a Mopar sound machine and piano/cricket type music playing on my phone. I am trying to manage with each day of hope to see improvement. I continuously need background noise during the day, with which I can function. I am at a point of where I still have anxiety, frustration and believe in trying to figure this out.

      Hope things improve for you and everyone else as well.
       
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    7. Darren H

      Darren H Member

      Tinnitus Since:
      05/11
      Cause of Tinnitus:
      Unknown
      Hi Bryan, glad to hear you're doing so well. Can I ask you about this? when you say you were deaf, do you mean you couldn't hear as a result of ETD or did you have actual sensorineural hearing loss? I'm 25 and suffered SSHL 4.5 months ago. I had profound loss in high frequencies and I improved to moderately severe a few weeks after it happened. The tinnitus is tough going but I'd love to regain some hearing even at this late stage. Is this what happened you? Or did you just solve the ETD problem?
       
    8. AUTHOR
      AUTHOR
      Bryan91

      Bryan91 Member

      Tinnitus Since:
      08/19
      Cause of Tinnitus:
      Unknown
      Hi Darren. It was the ETD that made me practically deaf in my left ear. The tube stayed closed for around 4 months and There was fluid inside my inner ear causing the profound hearing loss. The doctor did tell me it would come back but after two months I remember I had given up hope, then one day at work I remember I sneezed and boom the biggest ear pop ever. Took a couple days but eventually my hearing returned to normal. I put most of my ear problems down to ETD, my ears Loudly pop constantly when i swallow. I’d say my Eustachian tubes play a massive part in my tinnitus too however I have not yet seen an ENT specialist due to Covid. Maybe one day
       
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    9. ThomasC
      Lonely

      ThomasC Member Benefactor

      Location:
      France
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      hearing loss
      Hey, thank you for sharing your story. How loud would you say it is?
       
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    10. savister

      savister Member

      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Unknown
      Bryan, thanks for your story. It gives me hope. You stated that you were on meds. Can you tell me what meds you were on and for how long? And are you still taking them? I am in a similar situation and I am unable to live a normal life at the moment. I am taking Xanax for anxiety but may look into adding Zoloft for depression. If you could let me know, that would really help me feel better that things could get better for me too. Thanks.
       
    11. Jrblovsky

      Jrblovsky Member

      Location:
      USA
      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      Gunfire (Maybe) & Menieres
      Glad to hear you have figured out how to live with this shit. I'm a year in and I feel worse than when I got it. My ringing was high pitched at first but now it's low pitched and high. Developed Meniere's disease after a noise exposure I guess. Still can't believe this is my life. I'm glad your able to live your life. I cant stand it.
       
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