LDN (Low-Dose Naltrexone) Experiences and Effect on Tinnitus, Anyone?

Discussion in 'Support' started by marxxx, Dec 7, 2017.

    1. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      Hi Malin,

      I am on 1 mg.

      I am currently pregnant and under the guidance of my doctor increased 2 mg as I noticed the tinnitus ramping up again over the last week or so.

      My tinnitus has always fluctuated with my hormones, I suspect my hormones cause inflammation at various times in my cycle (before menstruation and for a few days after).

      Obviously at 26 weeks pregnant, my hormones have gone crazy.

      Surely enough, I’ve responded to 2 mg and am enjoying my silence again while coping with my pregnancy.

      I have had no issues with sleep either way, and I’ve noticed maybe more vivid dreams since being on LDN but that’s really it.
       
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    2. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      I wouldn’t go to a GP. They know little about Naltrexone at low doses. It’s just not mainstream sadly.

      I’d seek out an integrative doctor.

      I can recommend Jenny Bromberger.
      She’ll do a phone consult I think, her practice is in Woolloomooloo, and she sends her scripts to Kingsway compounding pharmacy in Sydney.

      I found a doctor closer to home, so I see her.
      but I spoke with Jenny beforehand and she was happy to prescribe LDN.

      I pay just under $100 for 100 1 mg tablets, a dollar a day - totally worth it!
       
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    3. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      thank you! I had gotten used to my tinnitus, so it wasn’t the main focus of my life BUT I still needed to mask at night and it irritated me when trying to watch TV at night.

      I barely think about it anymore and I feel like myself again, or at least 95%.
       
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    4. twa
      Fine

      twa Member Benefactor

      Location:
      US
      Tinnitus Since:
      2017- mild /Sept. 2020-moderate
      Cause of Tinnitus:
      meds/acoustic trauma
      Have you ever stopped the LDN and had the tinnitus increase?
       
    5. AliasM
      Depressed

      AliasM Member

      Location:
      Australia
      Tinnitus Since:
      Dec 2020
      Cause of Tinnitus:
      ? Autoimmune, daily headaches, Ibuprofin, BP meds, Virus?
      I have my script for LDN. I don't think I am going to start now though. The overwhelming majority of people in the LDN Facebook groups said that LDN either increased their tinnitus, or caused it. :(

      I read 1 maybe 2 posts over the course of several days of reading, where they said it reduced tinnitus. No one really had anything to say about hyperacusis.

      I can't risk an increase to my tinnitus volume. I wouldn't survive it.
       
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    6. Mentos

      Mentos Member Benefactor

      Location:
      Cracow, Poland
      Tinnitus Since:
      03/2015
      Cause of Tinnitus:
      Noise induced, loud rock concert
      I just got 28 tablets of 50 mg Naltrexone. Would you recommend me to go with a low dose of 5 mg a day or should I try a high dose of 50 mg a day?

      I have tinnitus, no hyperacusis.
       
    7. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Single 25 mg. Dose of (Anticholinergic) Drug Promethazine
      Hi @Mentos -- I would suggest you start out at a lower dose. I've heard of people getting pretty major reactions at only 5 mg. starting out, but got a lot of good benefits from starting much lower, like about 1 mg. or so, and then gradually increasing it to about 3-4 mg. Some people are ultra-sensitive to it, and it only takes a small amount to make a big difference.
       
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    8. lymebite
      Vegged out

      lymebite Member Podcast Patron Benefactor

      Location:
      United States
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Unknown
      My understanding is that the low dose (1 to 5 mg per day) and the full dose (50 mg per day) produce completely different effects. The low dose tricks your immune system into producing extra endorphins. The 50 mg dose does not do that.
       
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    9. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      In a nutshell yes. The verdict is still out whether or not full dose has anti-inflammatory effects. Definitely LDN has anti-inflammatory effects and as such, is helpful with autoimmune diseases on many levels.

      I wouldn’t start with more than 1mg. Many people start at 0.5 mg and increase weekly or biweekly until they get to a typical maximum of 4.5 mg. My understanding is that Naltrexone at 50 mg will help the “perception” of tinnitus but LDN will help the perception and inflammation (if this is potentially the underlying cause of your tinnitus). Good luck and let us know the results.
       
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    10. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      Hey @Samantha R, I hope you're still doing well.

      Quick question: did you continue on the diuretics during LDN or did you stop after starting LDN?

      I'm wondering if there was a synergistic effect happening.
       
    11. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      Just started taking it last night for Sjogren's. I am at 2 mg and will be amping it up to 4 mg in a couple of weeks. Have read good things, fingers crossed.
       
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    12. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      Any update? I know it’s only been a few days but have you noticed any change?
       
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