Lenire — Bimodal Stimulation Treatment by Neuromod

She might have hinted at somewhere in that timeframe when I emailed her before, along with other's emails, and she has still been saying that she wants a 2020 commercialization since 2018. In the email I sent her specifically she just said it wouldn't be within the next 12 months from July 2019.

Anyways, even if there are initial worsening, for most the trend looks good for Lenire. Whatever I have access to first, I'm going for it.

 

I had a Neuromod meeting yesterday.

I will receive Lenire 26/11

 

It is said that it's highly unlikely to go away 6-12 months after onset. So after a year we can say that tinnitus has set in.

Someone from Tinnitus Talk has had tinnitus for 30 years and has undergone the same treatment, and he had positive results. I can't remember his username, I think it's @kelpiemsp?

 

I wonder when Neuromod will start contacting us about the 2020 appointments... Has anyone been contacted yet?

 

@Redknight, @Liz Windsor, I am just curious if you have somatic elements to your tinnitus?

 

It seems to be well accepted that tinnitus can remit spontaneously within the first few years but is very unlikely to do so after that. So it would make sense if there was more neuroplasticity in the first few years meaning tinnitus was more amenable to any treatment.

 

I contacted them about this a few weeks ago. I got on the list in late July and they said to expect a scheduling email of dates for early 2020 some time in late September-October 2019.

So hopefully any day now.

 

Curious, are the sounds that you hear through a Lenire unique to everyone? Is it as simple as uploading their tracks online for others to use? I'm not sure how the tongue bit works.

Probably a stupid question.

 

Yes you’re right. Some good testimonies. Has anyone heard when Susan Shore's device
might come to market?

 

Did you fly from Poland to Dublin for your appointment? Why a 2 month wait? It was supposed to be 2 weeks...

 

A... positive effect?

 

When I first read this, I interpreted "downwards" as "my life is going downwards" not "the tinnitus is going downwards." Phew!

 

Considering IF these gamma secretase inhibitor drugs do in fact eleminate or reduce tinnitus by regenerating hair cells, then that means this technology is already obsolete for many of us.

 

No bro, it doesn’t mean that.

Tinnitus has so many sub groupings, this technology will improve and continue to help folks.

For many folks, for example with severe hearing loss, a combination of therapies may be in order. For people with great hearing but have tinnitus from other origins this therapy may be optimal.

Shame tobacco doesn’t have curative properties, I’d love to have a smoke and a cup of coffee... brain likey.

 

Yeah, but devices get to market much faster than drugs do. How long until that drug is actually a purchasable treatment (if it even works)? Even fast tracked I bet you it’s still going to be 2-3 years.

Mind as well use Lenire until then.

Regenerating hair cells also won’t cure everyone’s tinnitus. Only those who have it from NIHL.

 

Given they are not ready nor do we know they actually do that, I'm ready to fly to Ireland to buy Lenire. I want these sounds gone ASAP. Don't care how so long as it works.

Even that we don't know for certain. We know these devices work and are becoming available now. They are far from obsolete because there is nothing else to replace them yet.

In the future when these drugs are proven to work and are available, then yes I very much hope we'll be able to say that.

 

Even if you restore hearing, you’ll still have those neurons that are generating the tinnitus. How do you break that up?

Bimodal Stimulation. We have to remember that tinnitus in the vast majority of cases is neurological/generated by neurons.

I have a feeling these drug therapies a couple years down the road will actually be used in symbiosis with these devices that change the shape of the part of the brain that processes hearing. Why not use both?

 

We all got the same sounds, but you can now request a different set of sounds if you want to. This option wasn't available at the beginning, they must have created them based on customer feedback.

 

Yes, I flew from Poland. It was a long, surreal journey.
I don't know why so long.

 

I believe tinnitus is like cancer - it is not a single disease but a group of related diseases.

Based on the Lenire testimonials we have, it is already evident that it helps the majority, but doesn't work for a significant minority. (Just as the studies predicted, by the way. Science. It works.)

I think hearing cell regeneration will be just like that. We need options. Lenire, the Shore device, gamma secretase inhibitors and whatnot are all complementary to each other.

 

What studies? The big trials have not been published yet. I think it's important to remember that. It is science when it gets past peer review.

 

Why only those who have it from NIHL? What about those who have it from a reaction to medication? Surely the hair cells are also damaged.

 

Who is excluded from using Lenire? Are those with conditions such as OCD and depression excluded?

What about those having suicidal thoughts? Surely much of this forum would be excluded if the latter were true?

 

From Dublin's vaunted tech district?

 

@Liz Windsor Hello Liz, I read your update on the User Experience thread, really happy for you that you're experiencing results. By what you said about your hearing I believe (I may be wrong of course) that you developed hyperacusis (caused by Lenire). This is something never discussed by anyone as far as I know.

Please let us know what Neuromod will say to you about this matter. It is crucial to people like myself who have hyperacusis and booked an appointment to purchase Lenire. If Lenire causes hyperacusis, it will be a major flaw and a reason for many to not purchase the device.

Thank you and wish you a full recovery!

 

I don't believe that's what Liz has said.

 

I don't understand this question. Dublin's vaunted tech district?

I meant, it was surreal flying so far, spending so much money, double-decker buses, a foreign language, amazing hospital.

 

Sorry. I mean are these photos from the building Neuromod is in (apparently they're located in a fancy tech area)?

 

Yes, this is the Hermitage Medical Clinic

 

Https://g.co/kgs/35H6R5