Lenire — Bimodal Stimulation Treatment by Neuromod

Hi,

Was it the MuteButton device or the Lenire device that helped your tinnitus? Thanks.

 

This might be a silly question, but do you guys think that wearing braces could affect the effectiveness of this device? Wouldn’t the metal in the mouth affect the electrical signal?

This came across my mind after I read they specifically ask about tongue piercings.

 

I signed up within an hour of receiving the e-mail from Neuromod, so I would guess / hope I'm in the first wave of applicants. I got an automated e-mail acknowledgement back from them, saying they were expecting high demand, based on the amount of people that had signed up for updates, so they were hoping to respond within 14 days with initial appointment details.

The bit about +/- 3months has been misinterpreted. One of the questions in the initial assessment questionnaire was how long have you had tinnitus, with the option to answer either less than 3 months or more than 3 months. There was no more detail regarding this question, but it seems obvious to me that they would exclude any newbies. They didn't ask how longstanding your tinnitus was beyond the 3 months.

They also asked;
- Have you had your tinnitus assessed by a hearing professional?
- If yes, how many times?
- Are you planning to travel to Dublin from overseas / your home country (can't quite remember the wording)?
- What professionals have you seen about your tinnitus? NHS, private, other etc?
- Have you been on one of our trials previously, or used the MuteButton device?
- Do you have any oral / tongue piercings?
- Do you have any implanted devices? Pacemaker, cochlear implants etc?
- There were probably more questions, but these are all I can remember.

Their clinic is a 30 minute bus ride away from Dublin airport. It's going to cost me c.£3k all told, with travel etc, which is an awful lot of money for me. Crucially however, if it doesn't work - and I am well aware this isn't too far removed from putting the money on red or black - it's not going to cripple me financially. If it does work though - and there is just as much possibility that it will as far as I can see from all the info they've released - best money I'll ever spend.

 

For anyone interested, I have emailed them asking if people with heart conditions are excluded. Or people with thickened / scarred ear drums. I would love to make an appointment but unfortunately tinnitus is not my only my problem.

If they say it's ok, then I shall book an appointment and sign up to the user experience group.

Take care everyone and good luck to those who have signed up already.

 

I never thought about that but now you mention it, after my braces were removed, they put a metal wire behind my teeth. Hopefully it still works if I have some type of mouth guard.

 

I can't see why thickened or scarred eardrums would matter. As long as you have reasonable hearing. Plus it would have been in the initial questionnaire.

 

The email came out at 15.36... I applied within an hour and a half, so I expect I'll be in the first wave too.

I imagine lots of people would have been thrown by the 4 visits etc and would need time to determine if they can make that.

I've just had two good tinnitus days following 10 days of nonstop shit, so if I can achieve the same every day I'll be happy with that.

 

Hopefully benign heart conditions are acceptable. I have a slight murmur which thankfully didn't get affected when I had physical therapy done to my wrist a while back. I had a few sessions of electric stimulation therapy.

 

Hi everyone,

This looks very interesting and it looks like they are going to start selling Lenire, wow!

I keep my fingers crossed for you that Lenire works. It would be great!

I will follow how all of you guys are doing. My tinnitus is really mild nowadays, so I
feel like stepping back and not signing up for this yet.

I don't want to take someone's "space" who seriously needs help. And also living in Europe makes things easier for me anyways.

For those who signed up:
Keep us updated please, this is very interesting!

Mandalay

 

Very best wishes ruud1boy.

As you are a paying customer your review will be unsolicited and therefore trustworthy.

Please let us all know buddy.
Good luck,
Dave x
Jazzer

 

For those of you who are not from Ireland and are going to try Lenire, do you think it's safe to be flying so many times in such a short period of time?

Yes, I'm a total newbie to tinnitus, and I am so afraid of flying... I am afraid of making my tinnitus worse.

If I get the Lenire treatment, I would have to fly back to Ireland four times, back and forth, and thinking about that makes me panic.

 

I've had done some on my back too so hopefully it'll be ok. My heart condition is congenital. I'll see what they say, I've signed up anyway

 

I only considered the notion of the flights affecting my tinnitus after I'd signed up to be honest. The pages on the BTA website suggest it's usually not a problem, so I'll 'risk it for a biscuit'.

I haven't flown anywhere in the time I've had severe tinnitus - not through avoiding it, just penniless - but in the 10 years before that when I had mild tinnitus, I never gave it a second thought and it never affected my ears.

I've gone from checking Neuromod's website twice a day to checking my e-mails twice a minute, waiting for the next news from them. Checked the flights times / costs, airport parking, bus passes in Dublin, bus routes / fares, will I have to pay for a bigger bag on the plane back to carry the tackle... aaarghgghhh!!!!

 

->

I sent Neuromod an email as I also have metal wire behind my teeth, I'm not really expecting a reply but I also don't want to travel hours to a doctor only for them to tell me that I can't use the device and need to get the wire removed first.

 

I think it's fine to be honest. People sometimes fly for their job every weekend. Not sure where you're from but if you're in Europe the flights are rarely that long. If it's too much you can get a boat? Might be expensive but if you're that worried then it's an alternative.

 

This is an excellent question. A lot of people have permanent metal retainers on their lower teeth as well. I think the fact that they asked specifically about tongue piercings as opposed to braces, etc. is optimistic.

 

From what I've read and my personal experience flying many times, flying has no effect on tinnitus. I suggest using ear plugs to reduce the engine noise and don't sit near the wings. BUT wear the plugs loosely so you don't increase your perception of the tinnitus by blocking out too much background noise.

I live in Bali, Indonesia and I'll be doing the flight to Dublin for sure.

 

This is where Neuromod Medical are based out of. It looks like they have rented space in a private medical facility outside of Dublin.

It will be easier to get to from the airport, but it's a fair distance from the city centre if you're staying there.

Hermitage Medical Clinic
Lucan Rd Old, Fonthill, Dublin, D20 W722, Ireland
+353 1 645 9000
https://maps.app.goo.gl/74iMmNW5rqkdckfm6

 

Everyone who is planning to use Lenire ASAP and is living in other country, what is your current plan?

As far as I understood it is required to visit a specialist a couple of times during the treatment so I cannot visit Ireland only once and move back to my country.

It would require multiple flights to follow Neuromod's protocol.

Any other ideas? What's your perspective?

 

@acute, I used to be afraid of flying as well. I flew a couple of times after I got tinnitus and it didn’t affect my tinnitus. I do wear noise cancelling headphones but I don’t think it matters much.

 

They make it pretty clear the number of appointments and timeframes in their documentation. Anything outside of that is not known at this time.

Best thing to do is to reach out to them with specific questions or wait until it comes to a location close to you.

 

@Lucifer: can you please let me know what they reply?

 

My tinnitus very rarely spikes but on the one flight I took after getting tinnitus, it did and it took several weeks before it was back to baseline. I had ear plugs in by the way.

So, I try to avoid flying now. But if I have to go another time, I will use ear muffs.

 

I can definitely recommend bringing/wearing earplugs. I hadn't flown since getting my tinnitus until this April, and I was honestly surprised how loud/irritating the noise on the flight was before I put my plugs in (I do have hyperacusis too, though not as bad as a lot of folks). It was just a short one-hour flight, so not a big deal in the end. But it would have been really difficult without the ear plugs.

 

I wondered if the piercings could affect the nerve that they stimulate rather then them being metal.

 

I'm Hungarian so same continent, different country. My plan is to do 1-day excursions: fly there in the morning, fly back in the evening. Minimizes missed time from work. Never had any issues with flying and tinnitus.

 

I don't think it will be a problem as they would have to exclude people with amalgam filings and tooth implants as well, I'm not sure how many but a lot of people have filings and implants. I have them as well.

 

@Clearance

How many weeks of using the device did it take for you to hear silence?

Did you need to use it for three months or less?

How loud was your tinnitus?

 

Any news from your source when it is coming to Germany?

 

Did they get back to you yet?