Let’s Support Tinnitus Talk!

grate_biff · May 13, 2018

$15 from me.
I have learned a lot during my 3 years here.
Love the investigative minds in the "research section!"
Keeps hope alive!
Thank you TT!

Ed209 · May 13, 2018

volsung37 said: ↑

I stuck in a few dollars. Keep up the good work Ed
Click to expand...

Nice one volsung! Another kind gesture that doesn’t go unnoticed. It all makes a difference.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5

Starthrower · May 14, 2018

derpytia said: ↑

Honestly, if you don't feel comfortable donating to the ATA (I know I don't) or to the BTA or any other organizations, the best thing you ca do is donate to TinnitusTalk.
Click to expand...

@Ed209 I will continue to support Tinnitus Talk. Thanks for your effort and time.

Samantha R · May 14, 2018

@Ed209
Great initiative.
Whilst I've donated once off, I've just set up a regular monthly donation.

derpytia · May 14, 2018

Boom. Donated again

Ed209 · May 14, 2018

Just woke up to see the incredible generosity of you all. The ball really is well and truly rolling now, and with great momentum. Brilliant stuff.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8

Jazzer · May 14, 2018

Every member of Tinnitus Talk should donate.
We all clearly need information, support, advice, and the benefits of friendships that we form.
This is a crucial resource for all of us !!

Ed209 · May 14, 2018

Samantha R said: ↑

@Ed209
Great initiative.
Whilst I've donated once off, I've just set up a regular monthly donation.
Click to expand...

You’re an absolute legend Samantha.

Ed209 · May 14, 2018

@grate_biff, well done bud awesome contribution.

@derpytia, you’re going through an incredibly tough time right now and you have still donated. My heart goes out to you and can’t believe your strength to still think of others.

Holly1987 · May 14, 2018

I just donated again yesterday, if I win please give the money to Tinnitus Talk!

glynis · May 14, 2018

Great work @Ed209.
Love glynis x

Ed209 · May 14, 2018

I’m overwhelmed by the genoristy of you all. @Holly1987, you’re an absolute star.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9

DanLo · May 14, 2018

@Ed209 I have gladly donated so thanks for the nudge.

I have been unable to contribute in helping others so far but I have learnt a lot on here.

Positivity from yourself and others like @glynis has helped me somewhat.

Dan.

Ed209 · May 14, 2018

Nice one @DanLo, your contribution will make a real difference to tinnitus sufferers.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10

Our first milestone of 10. Amazing effort everyone.

Luman · May 14, 2018

Made a small contribution last night, first time since last year.

Ed209 · May 14, 2018

Luman said: ↑

Made a small contribution last night, first time since last year.
Click to expand...

Cheers Luman, thanks for donating bud.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10
Luman: 11

glynis · May 14, 2018

Welcome to add me Ed209. I donate monthly by direct debit... Tinnitus Talk can have the money if I win...

Love glynis

threefirefour · May 14, 2018

Again I'd love to donate but I'm not in a financial or social situation to do so. Right now I'm saving up $6,000 for the SS device. I've saved $1,200 so far. If it succeeds, then I'll donate the remainder to TT for fundraising for future treatments. If it fails then I'll donate all $6,000 to other research.

By the way Ed, thanks for getting people to donate. It makes a ton of difference for this site and research in general.

Ed209 · May 14, 2018

threefirefour said: ↑

Again I'd love to donate but I'm not in a financial or social situation to do so. Right now I'm saving up $6,000 for the SS device. I've saved $1,200 so far. If it succeeds, then I'll donate the remainder to TT for fundraising for future treatments. If it fails then I'll donate all $6,000 to other research.

View attachment 18262

By the way Ed, thanks for getting people to donate. It makes a ton of difference for this site and research in general.
Click to expand...

No problem freefirefour, nobody should feel forced to donate in any way. Only give if you’re in a situation to do so. At the end of the day, it’s a community effort, so anything we can raise benefits us all. We are all here because of tinnitus so let’s fight it together in anyway we can.

@glynis, of course, you are one of the biggest legends here!

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10
Luman: 11
Glynis: 12

Looking good now. Well done everyone.

Bartek · May 14, 2018

Hi,

Lottery is great!!
Can't resist!

In for $15, just donated.

Ed209 · May 15, 2018

Bartek said: ↑

Hi,

Lottery is great!!
Can't resist!

In for $15, just donated.
Click to expand...

And we’re up and running again . Cheers Bartek for your generosity. Every penny of that will make a difference.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10
Luman: 11
Glynis: 12
Bartek: 13

hans01 · May 15, 2018

Done

Ed209 · May 15, 2018

hans01 said: ↑

Done
Click to expand...

Nice one Hans . Welcome to the club

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10
Luman: 11
Glynis: 12
Bartek: 13
hans01: 14

Let’s see if we can make 20 by the end of today (UK time of course ). That would be incredible

Cheers everyone.

Avocado · May 15, 2018

Just donated, and now writing here to encourage others to do the same! If I win the 50£ I want them to go directly to Tinnitus Talk.
Thank you for this site, for all the information, hope and support!

Ed209 · May 15, 2018

Avocado said: ↑

Just donated, and now writing here to encourage others to do the same! If I win the 50£ I want them to go directly to Tinnitus Talk.
Thank you for this site, for all the information, hope and support!
Click to expand...

Thanks Avocado, great to see you supporting the cause.

RobHing: 1
Daniel95: 2
Nanny chocolate: 3
Mellow7: 4
Volsung37: 5
grate_biff: 6
Samantha R: 7
derpytia: 8
Holly1987: 9
DanLo: 10
Luman: 11
Glynis: 12
Bartek: 13
hans01: 14
Avocado: 15

We’re rocking and rolling now

Ed209 · May 15, 2018

I have decided to up the ante. If we can reach 80 donations, at a minimum of £5 ($7 us) per donation, I will give the winner £100 ($140 us).

So, what are you all waiting for! Get donating and join the fun. The winner will be chosen on Sunday the 24th June.

Please remember that nobody personally benefits from any of this. This is entirely to help Tinnitus Talk (Tinnitus Hub) who we all know do remarkable things to help the Tinnitus cause.

Markku · May 15, 2018

As a founder of this community, and a co-founder of Tinnitus Hub, I want to thank @Ed209 for this fantastic initiative (which he started all on his own, we didn't ask for it!). It's remarkable what a single individual can achieve if they put their mind to it.

Many fail to realize it actually does cost something to operate a community, a website, or a volunteering-based organization. This thread has been read some 1,200 times, yet the percentage of people seeing enough value to contribute a minimum of $7 is relatively minuscule, which gives a good idea how difficult it is to raise funds.

But I also don't want to make those feel bad who can't, or won't, chip in financially. We have many such members who haven't, yet they provide an immense value to the community and its members in the form of providing support, experience, friendship. And that's what matters most at the end of the day, a community that thrives, people who work together and support each other.

Speaking of finances, our web server (actually two as we're developing another tinnitus related project) and email hosting alone costs about £1,000 / year. The surveys we organize, we use SurveyMonkey for it, and the plan costs approx £350 / year. Add a couple of other software licenses with annual fees, and it starts to add up.

Want something custom designed, developed? That's a load of money needed unless you have the skills yourself, or find a volunteer. We were very lucky last year when we got an anonymous person wanting to help us with a tinnitus app that we're developing. The access to a development team has been nothing short of amazing. Keep an eye out soon for a beta group call, we will be asking some members to test the app.

I'm not even touching our Facebook stuff (which we've lately neglected in favor of other things). We've used Facebook advertising quite a bit to reach out to a larger audience, whenever we've posted content that we feel needs to be given more of a spotlight. The sky's really the limit there, when it comes to use of funds. Generally speaking, the more funds you have access to, the more people you can reach (and raise more awareness in the process). Of course it's also an art in and of itself, to get the advertising cost to a minimum while still having broad reach and effective engagement.

And other things here and there, such as now, as per @glynis' idea, I'm going to design a shirt for those who are going to this September's Tinnitus Expo in the UK. At least Glynis, Steve and Hazel are planning to attend, maybe more, and all will be wearing our own shirt. Not too costly, but not free either.

Previously, over the last seven years of running Tinnitus Talk, I can only think of one similar initiative to @Ed209's, and that was a couple years back when @attheedgeofscience started a campaign where he would write an article if people contributed $300 to our work - which they did, and the article was written as promised.

That and now Ed's campaign are the kind of vision and ingenuity the tinnitus community needs. Without a doubt, galvanizing the community is extremely difficult, hence some creativity is desperately required.

I also saw Ed is planning to do a research fundraiser later on in the year, that is excellent. There I would maybe think about collaborating with the BTA, whom we have collaborated quite a bit with before (e.g., it was mainly us, BTA and ATA who organized this year's Tinnitus Week, and next year's one is already well in planning).

BTA are able to organize campaigns where funds raised are earmarked for research.

But that's a discussion of its own. Ed, feel most welcome to contact us when the time is right.

Thanks everyone for your support. I look forward to a bright future together.

Ed209 · May 15, 2018

Markku said: ↑

As a founder of this community, and a co-founder of Tinnitus Hub, I want to thank @Ed209 for this fantastic initiative (which he started all on his own, we didn't ask for it!). It's remarkable what a single individual can achieve if they put their mind to it.

Many fail to realize it actually does cost something to operate a community, a website, or a volunteering-based organization. This thread has been read some 1,200 times, yet the percentage of people seeing enough value to contribute a minimum of $7 is relatively minuscule, which gives a good idea how difficult it is to raise funds.

But I also don't want to make those feel bad who can't, or won't, chip in financially. We have many such members who haven't, yet they provide an immense value to the community and its members in the form of providing support, experience, friendship. And that's what matters most at the end of the day, a community that thrives, people who work together and support each other.

Speaking of finances, our web server (actually two as we're developing another tinnitus related project) and email hosting alone costs about £1,000 / year. The surveys we organize, we use SurveyMonkey for it, and the plan costs approx £350 / year. Add a couple of other software licenses with annual fees, and it starts to add up.

Want something custom designed, developed? That's a load of money needed unless you have the skills yourself, or find a volunteer. We were very lucky last year when we got an anonymous person wanting to help us with a tinnitus app that we're developing. The access to a development team has been nothing short of amazing. Keep an eye out soon for a beta group call, we will be asking some members to test the app.

I'm not even touching our Facebook stuff (which we've lately neglected in favor of other things). We've used Facebook advertising quite a bit to reach out to a larger audience, whenever we've posted content that we feel needs to be given more of a spotlight. The sky's really the limit there, when it comes to use of funds. Generally speaking, the more funds you have access to, the more people you can reach (and raise more awareness in the process). Of course it's also an art in and of itself, to get the advertising cost to a minimum while still having broad reach and effective engagement.

And other things here and there, such as now, as per @glynis' idea, I'm going to design a shirt for those who are going to this September's Tinnitus Expo in the UK. At least Glynis, Steve and Hazel are planning to attend, maybe more, and all will be wearing our own shirt. Not too costly, but not free either.

Previously, over the last seven years of running Tinnitus Talk, I can only think of one similar initiative to @Ed209's, and that was a couple years back when @attheedgeofscience started a campaign where he would write an article if people contributed $300 to our work - which they did, and the article was written as promised.

That and now Ed's campaign are the kind of vision and ingenuity the tinnitus community needs. Without a doubt, galvanizing the community is extremely difficult, hence some creativity is desperately required.

I also saw Ed is planning to do a research fundraiser later on in the year, that is excellent. There I would maybe think about collaborating with the BTA, whom we have collaborated quite a bit with before (e.g., it was mainly us, BTA and ATA who organized this year's Tinnitus Week, and next year's one is already well in planning).

BTA are able to organize campaigns where funds raised are earmarked for research.

But that's a discussion of its own. Ed, feel most welcome to contact us when the time is right.

Thanks everyone for your support. I look forward to a bright future together.
Click to expand...

You have all done such a remarkable job Markku. Only people who are the exception can do all of this, in their own free time, to benefit others. If only we all had the drive of you, Steve, and the rest of the TT staff and volunteers.

Jazzer · May 15, 2018

Dear @Markku, @Ed209, @glynis & @Steve,

Thank you all so much,
you guys take my breath away,

Dave x

Nanny chocolate · May 15, 2018

If everyone who uses this site gave only £1.00 it would soon add up!
Ed you are a star and Markku and team have produced something that money can’t buy. Group hug xx

@Ed209 @Markku

Log in or Sign up

Let’s Support Tinnitus Talk!

grate_biff Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Starthrower Member Benefactor Ambassador Hall of Fame

Samantha R Member Podcast Patron Benefactor Ambassador

derpytia Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Jazzer Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Holly1987 Member Benefactor

glynis Member Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

DanLo Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Luman Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

glynis Member Benefactor Ambassador Hall of Fame

threefirefour Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Bartek Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

hans01 Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Avocado Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Jazzer Member Benefactor Hall of Fame

Nanny chocolate Member Benefactor

>1 Month Shock, >2 Months Denial, >3 Months Slight Acceptance, >4 Months, Let’s Be Friends?

Tinnitus Gone? Let’s Hear It!

My Journey from Tinnitus to Hyperacusis to Now TTTS → In Need of Support

Johns Hopkins on Hyperacusis: Damage-Evoked Signals in Cochlear Neurons and Supporting Cells

Frequent Reactive Tinnitus Spikes → Any Advice/Support?

Share This Page

Log in or Sign up

Let’s Support Tinnitus Talk!

Useful Searches

grate_biff Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Starthrower Member Benefactor Ambassador Hall of Fame

Samantha R Member Podcast Patron Benefactor Ambassador

derpytia Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Jazzer Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Holly1987 Member Benefactor

glynis Member Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

DanLo Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Luman Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

glynis Member Benefactor Ambassador Hall of Fame

threefirefour Member Benefactor Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Bartek Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

hans01 Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Avocado Member Benefactor

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

Jazzer Member Benefactor Hall of Fame

Nanny chocolate Member Benefactor

>1 Month Shock, >2 Months Denial, >3 Months Slight Acceptance, >4 Months, Let’s Be Friends?

Tinnitus Gone? Let’s Hear It!

My Journey from Tinnitus to Hyperacusis to Now TTTS → In Need of Support

Johns Hopkins on Hyperacusis: Damage-Evoked Signals in Cochlear Neurons and Supporting Cells

Frequent Reactive Tinnitus Spikes → Any Advice/Support?

Share This Page