Meniere's Disease and Neck Pain

[Gin]

I was wondering, does anyone else who has been diagnosed with Meniere's have really bad neck pain at times?

Sometimes in between episodes I have severe neck pain. It starts at the base of my skull and goes down under my ears. It hurts to even turn my head. I have tried hot and cold ice packs. Nothing seems to work.

Suggestions please?

 

[Gin]

Guess not

 

[glynis]

Hi Gin ,
I get neck pain but I think mine is due to sleeping with extra pillows but I also have OA and RA and spondilosis .

Stay strong as I know just how tough the early years with Menieres can be.
Love glynis

 

[Jkph75]

Well, I have some, but you probably don't want them. Lol. I would be really interested to hear what would happen with your Meniere's symptoms if your neck problems were solved.

 

[Gin]

I don't know. I've tried everything. I have NO support. No one to talk to. I have a dr that doesn't know anything about Menieres, my neurologist. I got a new ENT, who is ABSOLUTELY clueless. She keeps wanting me to take tests that I've already taken for the Meniere's diagnosis. Which I got from the World reknown Dr. Schwabber. He, however, is a complete jerk. No bedside manner whatsoever. So I deal with this stuff day after day by myself as I work 50 hours a week just to pay my bills, no choice there. I tried to get on Betahistine for vertigo. My dr called it in. Not available in the US. so told me just take over the counter Allegra. Allergy meds. Does absolutely nothing. I am in 16k worth of debt from medical bills. And no regular meds to take or dr to talk to. Some days I wonder if maybe I'm just insane. My neck and shoulders hurt to the point I can barely lift my hands to put my hair in a ponytail. My vertigo has me to the point of just driving to work and back home. Every single week like clockwork the bass noise starts, vertigo ensues, and I have a full on Meniere's episode with full ears and popping plus the lovely spins. On the days I don't my eyes are so messed up I end up with Migraines. I am completely miserable. I don't bother with makeup and crap anymore. It's to much work. My family is sick of hearing about it so I keep it to myself most days. If this is just the beginning I don't know what I am going to do.

 

[Scared111]

I can't believe you are going thru something this tough but your family is sick of hearing it? if you are having vertigo attacks, shouldn't they be worried that something might happen to you. I don't understand this. Do they live far from you? I think you need some help. You are tough to have put up with this by yourself for so long..

 

[Gin]

My parents live less than a mile away. I work with my brother. I do all of the bookkeeping and phones, dispatch radio, everything. It is my parent's company. They are turning it over to him. He does nothing but watches tv all day and makes three times as much as me. But he's got the grandson. They get mad at me if I have a vertigo attack and am late to work or have to take time off to go to the doctor. Like I am lazy. But I'm not. I am barely hanging on. Their excuse is there's no cure, we aren't doctors, we feel bad for you, but no use talking about it, since there isn't a cure. They just expect me to show up everyday work and just ignore it. I hate it. It sucks.

 

[Gin]

What's worse is I don't have a doctor to help me deal with this. The symptoms etc. I have my neurologist and thank God for him. He prescribes the promethazine and valium. But without an ENT or specialist and not having any support groups to talk to, I feel completely alone.

 

[Scared111]

wow that's harsh . where do you live? can you find a support group in the area? what about friends? i know that it's hard on friends if you are always talking about ur illness. but at least someone to talk to .. You look young. I only have t and feel
like I can't deal. I don't know how you be been managing with all these symptoms.
There's no specialist in your area? maybe arrange a skype session with a specialist that will allow you to try different meds ? is your tinnitus constant? what is bothering you the most right now? the vertigo , neck pain? one step at a time....

 

[Gin]

I have T and vertigo. The vertigo just started. I did talk to my ENT today and she is prescribing Antivert to take daily. And I have the valium and promethazine for the attacks. I did find a Meniere's support forum on Facebook today. I was so relieved. Everyone in there was talking about the same symptoms I have. I felt validated finally. I have been trying to find answers and somewhere to get validation. My T is constant but during the attacks this bass noise comes out of nowhere and then my ears scream with sound. Then the vertigo happens. No warning most of the time. Constant migraines and eyes and vision is blurry. Fatigue is huge too. I get so worked up not knowing what to expect I have broke out into hives everywhere. Sleeping at night is a nightmare. My neck and shoulders hurt from the tension. But I honestly hope/think that a daily med will help and I am very happy to have found a support group. One baby step at a time.

 

[Sara Parsons]

Hi Gin

I had almost identical symptoms to what you described all this weekend. Excruciating pain in the neck extending to the base of my skull. The only thing that seems to help is going to bed! Hope you feel better soon.