Meniere's Disease

Discussion in 'Support' started by Teri, Jul 19, 2014.

    1. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      You should definitely look into it. First, read Dr. Burcon's research. The only problem is that you have to find an upper cervical chiropractor who is able and willing to follow his protocol. I went to an upper cervical chiropractor who ended up making my problems worse b/c he did the wrong things. Be careful. If you happen to live in Michigan or nearby you could go to Dr. Burcon himself.
       
    2. James336

      James336 Member

      Tinnitus Since:
      01/2010
      Cause of Tinnitus:
      Minieres
      Unfortunately I don't and traveling far from home is scary. I don't want to aggravate symptoms or get transported again to another hospital that hasn't seen me before and starts running all kinds of expensive and unnessary tests. 14 trips in one year is enough. E.R. can't really help. More comfortable at home.
       
    3. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      He's not at a hospital. That's OK you can just read the information and see if there is someone who can help you where you live. Or just talk to the drs you already have. I wouldn't want things to get worse for you.
       
    4. Darren13
      Blah

      Darren13 Member

      Location:
      U.K
      Tinnitus Since:
      Aug 2015
      Cause of Tinnitus:
      Menieres Disease
      I did attend ENT for for physical therapy but they said my my balance wouldn't change much and there wasn't a lot I could do but get along with it the best I can.
      This week I've been told I've as good as lost my job after being off work now for 9 months and not being able to return to my job which involves driving and heights etc, my driving licence went last December and I don't see it coming back very soon either if not at all. So I'm sttting in a job pool for a month to see if there is anything that will suit me better, if nothing then they are looking at early retirement. It's all a bit worrying and sad as it was a job I had been doing now for over 25 years suddenly taken away from me. And prospects of retiring at the age of 51. It's given me some sleepless nights I can tell you.
       
    5. AUTHOR
      AUTHOR
      Teri
      Caffeine

      Teri Member Benefactor

      Tinnitus Since:
      4/2014
      @Pinky329

      I don't have anymore severe symptoms as I did with the onset of this condition. The only drugs I take are a double dose of diuretic daily, occasional Benedryl. I have headaches that cycle around but they are not as painful as they once were.
       
    6. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      Is really loud pulsatile tinnitus part of Meniere's?
       
    7. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      I have not known pulsitile tinnitus be a part of menieres but if getting other symptoms ENT need to rule it out if Menieres or not.....lots of love glynis
       
    8. Darren13
      Blah

      Darren13 Member

      Location:
      U.K
      Tinnitus Since:
      Aug 2015
      Cause of Tinnitus:
      Menieres Disease
      I've had pulsatile tinnitus alongside the constant high pitched tone from time to time.
       
    9. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      When did you start losing your hearing? Did anyone just have tinnitus that turned into Meniere's later?
       
    10. AnnaW
      Vegged out

      AnnaW Member Benefactor

      Location:
      London
      Tinnitus Since:
      1998
      Yes my meniere's began with just tinnitus. The vertigo then happened some six months after. And then the deafness.
      I get pulsatile tinnitus.especially after stress.
      I'm starting to realise that Hughes syndrome or anti phospholipid syndrome runs in my family and wonder if this causes vascular events in ears which leads to meniere's symptoms?
       
      • Useful Useful x 1
    11. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      I read your story. I too have had these problems after pregnancy. I also had many miscarriages prior to having my children. Some say that Meniere's may have an Autoimmune component, so your family history may be related. I have been taking Prednisone and it helps a lot, though I have no hearing loss and have not been diagnosed with Meniere's. I also saw that you mentioned having a concussion during your childhood. There is also a theory that head and neck injuries left untreated lead to Meniere's.
       
    12. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      @AnnaW

      How did they know that you had Meniere's when you only had tinnitus?
       
    13. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      This week I had a hearing test with my audiologist and confirmed my hearing is now 50% loss in both ears.
      My tinnitus is sever 24/7 and wear dual purpose hearing aids which im so glad to have.
      I know menieres will take away my hearing so there is nothing I can do about it......put try to remain positive.
      Love to hear from people with hearing loss and Menieres....lots of love glynis
       
      • Hug Hug x 1
    14. undecided
      Fine

      undecided Member

      Location:
      Greece
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Unknown.
      Meniere's makes you feel blessed? That you're gonna be deaf?
      I'm probably not getting it (the way you feel), but I should state the obvious here - you seem to be in some serious denial.
       
    15. Beste
      Disappointed

      Beste Member

      Tinnitus Since:
      02/16/2016
      Cause of Tinnitus:
      Benzo/Clonazepam, Stress
      No I think I get Glynis. She now sees the beauty in everything like no one can see. I feel the same. In my pre T free life, I used to take everything for granted like I did for silence. But now, with an incurable chronic disease, I'm trying my best to enjoy everything in life. This is the only good thing tinnitus did to me.
       
      • Agree Agree x 2
    16. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @undecided,
      I just 're read my post and altered it as can see how you read it from what I put so thank you for replying to it.

      I have to remain positive so try to see the good in everything and blessed for my love ones and still love my life.....lots of love glynis
       
      • Agree Agree x 1
      • Hug Hug x 1
    17. Darren13
      Blah

      Darren13 Member

      Location:
      U.K
      Tinnitus Since:
      Aug 2015
      Cause of Tinnitus:
      Menieres Disease
      My life has changed a lot since the bad start of menieres 11 months ago now.
      I've not worked in all that time lost my job I was doing for 25 years, had my driving licence taken from me and my firm has filed for ill health retirement. My doctor is backing me and agrees that this would help me and my MD. I've over come the fact that at the age of 51 I may be retiring from work for good or for a while and the daunting dread of this and the loss of income. But stepping back out of the fast lane of life and slowing down as you have to with MD you realise these more to see around you that you never noticed before as you were so involved in that mad rat race of life.
       
      • Like Like x 3
    18. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi Darren,
      I totally understand how your life changes with Menieres and tinnitus.
      I work one hour 15 minutes a day in a school Job I love and I'm a sever asthmatic also.
      My doctor supports me 100% and I
      Have just tried get ESA.
      Even though they know I should get It I got turned down as not paid any stamps with only working part time and can not get anything and because my hubby works full time.
      So For Menieres ,sever tinnitus and sever asthma under the sever asthma unit I don't get a penny.
      I hope you get everything you can.
      Lots of love glynis
       
    19. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Menieres giving me a hard time at the moment with blasting ears and throwing up all day long and motion sickness
      Not sleeping and lungs playing up too.....
      Grrrr !.....keep fighting as I do to bounce back.......
      If I'm a little quiet on the forum im just resting up till pick up a bit more.....lots of love glynis
       
      • Hug Hug x 2
    20. Jkph75

      Jkph75 Member

      Tinnitus Since:
      2/27/16
      Cause of Tinnitus:
      Otosclerosis
      What an absolutely awful disease. I that there was more that they could do for you. I'll be praying for you.
       
    21. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Thank you @Jkph75 .....lots of love glynis
       
    22. MichaelM
      Chatty

      MichaelM Member

      Location:
      Finland
      Tinnitus Since:
      mild since ´90 ´s. severe ->2013 on
      Cause of Tinnitus:
      Meniere´s Disease/acoustic trauma?
      Hi there all fellow Meniere folks. Here i am again. Suffering but surviving. more than 3 years now with the this disease.
      tinnitus is getting worse again after a relatively good 12 months. never give up.
      gotta say i dont dare to read my old posts in this thread... they are too sad to read. but what is done is done and those were my thoughts back then.
       
    23. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @MichaelM,
      Sorry to hear your tinnitus is louder for you.
      Stay strong .....lots of love glynis
       
    24. MattL
      Jaded

      MattL Member

      Location:
      Australia
      Tinnitus Since:
      10/2009
      Cause of Tinnitus:
      Meniere's
      Hi all
      I have also returned to this forum after a long layoff. My condition is worsening with vertigo attacks coming more frequently and the hearing in my right ear almost useless.

      I have stopped taking the diuretic because i don't think it provides any help at all. I still believe that Serc is a good drug for the dizziness though.

      Just today i am beginning the John of Ohio supplement regime and i'm actually quite hopeful about it. It seems many people have found relief by using it.
       
    25. MattL
      Jaded

      MattL Member

      Location:
      Australia
      Tinnitus Since:
      10/2009
      Cause of Tinnitus:
      Meniere's

      Hi MichaelM
      Have you had any progress? Are you working now?
       
    26. MichaelM
      Chatty

      MichaelM Member

      Location:
      Finland
      Tinnitus Since:
      mild since ´90 ´s. severe ->2013 on
      Cause of Tinnitus:
      Meniere´s Disease/acoustic trauma?
      Hi there @MattL . thanks for asking. I have worked through this whole Meniere´s thing. i think i have had only a week or so sick leave during these years. Progress... yes in a away that i am still able to work and there hasnt been not a single vertigo attack for over 2 years now. for some reason they stopped coming. i have got no idea why. i havent really done any changes. the biggest change is perhaps stress-free lifestyle as far as i can help it.

      i take betahistine/betaserc 2 x 24mg/day and diuretics every now and then.
      but T is getting worse. hyperacusis worsening... constant ear pain and sense of fullness in the inner ear.
      all these fluctuate a bit so i never know what the day will bring.

      when were you diagnosed yourself?
       
    27. MattL
      Jaded

      MattL Member

      Location:
      Australia
      Tinnitus Since:
      10/2009
      Cause of Tinnitus:
      Meniere's
      2 years vertigo free!! Good job! You must be doing something right.

      Apart from that my symptoms are very similar to yours, but my vertigo attacks have actually been coming more frequently of late. I was starting to get accustomed to the constant T but the vertigo really worries me, and i absolutely MUST start changing my lifestyle to try and alleviate it. I'll keep you updated on my progress with the supplement regime.

      I was diagnosed in November 2014, but i was suffering the classic symptoms for around 4 years before diagnosis.
       
      • Friendly Friendly x 1
    28. MichaelM
      Chatty

      MichaelM Member

      Location:
      Finland
      Tinnitus Since:
      mild since ´90 ´s. severe ->2013 on
      Cause of Tinnitus:
      Meniere´s Disease/acoustic trauma?
    29. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @MattL,
      Sory to hear your vertigo attacks are more close together.
      Ask your doctor about adding proclorperazine to Betahistine as might help you with your attacks ......lots of love glynis
       
    30. MattL
      Jaded

      MattL Member

      Location:
      Australia
      Tinnitus Since:
      10/2009
      Cause of Tinnitus:
      Meniere's

      Thanks Michael.

      Sounds interesting but i want to exhaust every other possibility before attempting any risky procedures. I do still have some good days in between the bad and there are several alternative methods i still need to try. There are so many Meniere's success stories on the internet, it's just a matter of finding the right one. My main concern with many of those stories however is that i know the symptoms can go into remission for several years before returning, so there really is absolutely no way of knowing if any of the methods truly work.
       
      • Agree Agree x 1

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