My Tinnitus Started One Morning When I Woke Up — I'm from Greece, Hello Everyone!

Hello to all. My name is Athanasios and I am from Greece. I have been experiencing tinnitus symptom since 30/5/2020. It started one morning when I woke up and start noticing a sound like old TV. It is high pitched, around 8,000 Hz. From then, I have had it 24/7. I went to my ENT and the audiogram showed a problematic frequency similar to my tinnitus frequency. I also asked my physiotherapist to help me with some exercises to help my body. I saw good results to my body, but not for tinnitus.

Luckily, it drops in severity when I am sleeping. After I wake up, gradually increases. I am trying to stay calm when it get worse and live healthy. I stopped to drink coffee to avoid caffeine and smoking.

I can't keep it secret that I want to be cured one day. I have heard about Lenire, but it seems hard to buy it in Greece. If you know some good possible treatments, just let me know.

It is hard to have cicadas in your ears all the time.

 

HI @athan86

Although it reads below your avatar cause of tinnitus unknown, this is not usually the case as something usually causes it. The most common cause is exposure to loud noise, using headphones, earbuds or headset at too loud a volume. Stress can cause it too. If you are a regular user of headphones/earbuds/headset then this is likely to be responsible for the tinnitus.

I don't recommend you starting any form of tinnitus treatment at the moment as it likely to improve by itself with time, particularly if it's noise induced. Are you oversensitive to sound? Please click on the links below and read my posts that you might find helpful. Try to avoid quiet rooms during the day and especially at night. This can be achieved by using low level sound enrichment. More about this is explained in the links below.

I advise that you don't use any type of headphones even at low volume.

Take care
Michael

https://www.tinnitustalk.com/threads/new-to-tinnitus-what-to-do.12558/
https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

 

Thank you for your reply. I use headphones for many hours per day, but I don't increase the volume. I never liked high volume music. I don't know... My ENT said that it may be caused by damaged cochlear hair cells. I read that there are some clinical trials tryig to recover these hair cells. I would like to participate in these trials, but it's hard to find anything in my country. I almost forgot to mention, I suffer from Palatal Myoclonus, but it has improved recently. I suspect that these spasms may have caused tinnitus.

 

As I mentioned in my previous post the most common cause of tinnitus is exposure to loud noise. Typically caused by headphones, earbuds, headset. Working in a noisy environment etc. Most of the people that visit this forum have Noise induced tinnitus caused by headphone use especially when used for long periods. Other tinnitus forums I visit many of the people got tinnitus from headphones.

I am here to give advice and suggest, to stop using headphones even at low volume and to never use them again, as you risk making the tinnitus worse.

I wish you well.
Michael

 

Have you experienced any fading compared to how it was three months ago?

 

No, unfortunately not. I am just more calm about tinnitus. The first month it was nightmarish. I noticed today a low pitched buzz, never happened before. At the same time, I have the usual tinnitus sound. The new sound is not loud, but I feel stressed about that. Is it possible to have different frequencies broken?

 

It is possible to be hearing multiple tinnitus sounds...

Many people whose tinnitus hasn't faded report finally beginning to experience habituation after about 2.5-3 years...

 

Hello Bill,

I think you have done a lot of research on tinnitus and that's why you have a lot of knowledge.

I have 2 questions for you, I would be glad if you could answer.

- Regardless whether tinnitus is caused by acoustic trauma or ototoxicity, is the part that is ultimately damaged the same?

- My tinnitus level increases sometimes and sometimes decreases. Will it keep fluctuating after 2-3 years? That is, even if the sound is permanent, will the sound intensity stabilize after a certain period of time?

 

I just tried to do a ''home-made'' audiogram test. I know, it can't be taken seriously, but I think it shows my issue at 8.000 Hz.

 

I have high pitched tinnitus around 9 kHz.

But I wonder what type of tinnitus I have.

Sometimes it's more severe, sometimes not so much. But most of the time it is intense. I am struggling to say exactly how it is, it's like I have cicadas into my head or a high pitched eeeee I suffer from it from 30/5/20. Can I call it chronic? Acute? Please help.

The real problem is that doctors strangely don't seem to consider about tinnitus seriously, so I don't think an ENT can tell me what exactly I have.

My question is how to decide what I have and who? Maybe an online test? Maybe a doctor I don't know? The doctors only say that it doesn't have cure and that's all. But I want to know what the hell I have. This is important because if one day a treatment appears, I want to know that this treatment is for me.

................................................................

I know that nowadays tinnitus is not measurable. All I want to know is if the general label "tinnitus" is enough, or I have to be most specific. As I mentioned above, many researchers are trying to prepare medication. I want to be ready for it to receive the right therapy.

 

I think that they just have no idea what's going on in most cases of tinnitus.

 

Is there any connection between tinnitus and palatal myoclonus?

I forgot to mention it before; I have suffered from palatal myoclonus since 2015. Maybe it caused my tinnitus?

 

How do you get to see these specialists? Three ENTs and not one of them said anything about neuro-whatevers. All I get is to do CBT and learn to live with it.