New University of Michigan Tinnitus Discovery — Signal Timing

I will second that.

 

Do you think that the device will be worn in the same way by participants in the next trial? Or it depends how the patient can modulate his tinnitus?

 

Sticking your jaw out was the most common way to change your tinnitus. It's most noticeable when my T is low.

https://www.tinnitustalk.com/thread...-louder-when-you-move-your-jaw-forward.23317/

 

The reason is because they theorize if it is somatic in nature, part of the T runs through the DCN. The DCN is what this therapy influences. It would negatively bias the results to measure a therapy against something it is not intended to work for.

 

Is there a chance that we could have this as a treatment option in 2020

 

Well Susan Shore has been saying "a couple of years" all year, and said in a livestream that 2020 is a reasonable date, so yeah.

 

Received this earlier this afternoon from University of Michigan:
Thank-you for your interest in our tinnitus device and upcoming clinical trial. The response to our publication in January 2018 was overwhelming. Thousands of tinnitus sufferers have taken the time to reach out, share your stories, and request information about our upcoming clinical trial.

We are so grateful for your interest – you are the reason we're committed to developing clinically validated tools to treat tinnitus. Unfortunately, not everyone will be able to participate in our next clinical trial, but we want to stay in touch with you and keep you updated on our work.

Our next clinical trial will be based in Ann Arbor, MI and will require participants to attend weekly appointments in SE Michigan for 4-6 months. If you live near Michigan or would be willing to travel here weekly for the period of the trial, please click here to share your contact information so that we can reach out to you when we begin recruiting patients in early fall 2018.

If you are not located near Michigan or able to travel, we still want to keep in touch so we can update you on the team's progress and let you know if a device becomes commercially available. You can sign up for our newsletter at ArborTinnitus.com.

Kind Regards,
The Shore Lab
University of Michigan

 

I received the same email and responded and asked to be considered for the trial but I suspect they will be overwhelmed by volunteers. I think it's going to be a little like winning the lottery if you are selected to participate.

 

Agreed. I'm ruling myself out, sadly, as there's no way I can fly back and forth to Michigan for 4 to 6 months.

 

Got the same mail too. Won't participate because I live in Belgium..

But guys I have a small question: won't this machine induce hyperacusis? It's roughly the same frequency and volume as your tinnitus they said.

If it works, then I couldn't be more happy. The first treatment in human history to actually reduce tinnitus loudness.

 

Also from Belgium @Hania and also rooting for this device.

 

I think this test will hopefully produce the results we all want but that remains to be seen. I'm an 8 hour drive away but would consider making the drive if that's what it takes but as I mentioned, the response has to be in the tens of thousands of people and the selected group is most likely going to be from their local area.

 

This device will make them billions if they can pull it off. Keeping my fingers crossed.

 

Fingers crossed

 

Where did you read that ?
I asked on this forum some weeks ago which kind of sound was used in susan shore's therapy, and nobody had the response.

 

It's more than just sound. Sound treatments, masking, notched, nature sounds and white noise have been around forever. They aren't a cure but help. There's some stimulation in addition to sound with the Shore device, I want to say Vagus nerve??
The down side of this it that their research and this technique have been around for years and I can't imagine what miracle has happened to make this round of students different than previous years.
I'm afraid this is just a teaching project that's destined for nowhere but having expressed all these negative thoughts I will remain optimistic and be part of it if they will have me.

 

LOL that being said in 2013

 

I received the email too. We are in the U.K. and so won't be volunteering to go at this stage.
Clicked through, though, and I see that to date 75 people have volunteered. I am a little surprised the number is so low but it is early days yet, I guess.

 

Well this device is moderately low-key in the medical world and the requirements are extremely specific. Have to live around there or commute once a week, 6 months. I'm not surprised at all it's low.

 

Signed up for the trial with their new link. Im 40 minutes away from them so fingers crossed. Ill keep you all updated.

Id imagine they start selecting people soon if they are kicking this off in August.

 

hey guys not to go out off topic but I got this mail... like 4 days ago:

the-shore-lab@umich.edu
12 May (5 days ago)
to me

Hello,

We are reaching out because our previous email was not clear on how tos ubmit your information for interest in our study.

For those of you who are able to come to Ann Arbor once a week for 6 months,please click here to set up a profile and register. Once your information has been received, and you qualify for further evaluation, you will be contacted by a study team member.

Please note this a different link than the one provided in the previous email.

 

It's an email they sent us. Not off topic at all.

Btw, who here plans on participating in the trials?

 

It's not up to show wants to do it, they will be selecting candidates and from the sound of it, they will be drawing from the people who are in their immediate area.

 

At this point it kind of is. There are not 1000s of people signing up to do these studies. If they are recruiting they are not getting the numbers they need. And it sounds like they are still a little short. Plus there is a high drop out rate. When you go in, and read the consent form, and they tell you there is a chance your T will be made permanently louder, it can sure scare you.

Edit: for clarification I am in a similar trial based off the same research.

 

I know that but the more people on here who sign up with the intent to participate, the higher chances one of us has getting on the trial.

 

Well if they need people, I'm ready, I emailed the study and then emailed as many individuals as I could find their email addresses. I told them I am retired with plenty of time to devote to whatever they need but so far no takers.

 

You probably did, but did you try making a umich account and signing up for the study?

 

Awesome! I don't know your age, but there is preference for people under 65 and with a shorter onset of T. But awesome either way!

 

Shorter onset? Like have had it less? According to their paper the two people who didn't have a significant reduction in TFI had tinnitus for less than a year. Granted two people is an extremely tiny sample size, but with our limited information it seems people who have had it longer benefit more.