Raising Awareness Now NICE Tinnitus Assessment and Management Guideline — Feedback Committee

Discussion in 'Awareness & Fundraising' started by Hazel, May 1, 2019.

    1. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Dear all,

      Recently, Tinnitus Hub - the managing entity of this forum - registered as an official stakeholder with the UK health authority NICE (National Institute for Health and Care Excellence).

      NICE develops healthcare guidelines and recommendations in the UK, based on which the public healthcare provider NHS decides what to cover or not. Currently, NICE is developing new guidelines for tinnitus, or more specifically "Tinnitus: assessment and management."

      Now that we're registered as a stakeholder, we are allowed to give feedback on the draft tinnitus guidelines. We want this to be a bottom-up exercise, and thus allow anyone intested to take part. But of course, we have to do this in a structured manner, hence we will be forming a dedicated Feedback Committee.

      Requirements to be on the committee are:
      1. You should be living in the UK - this makes you a stakeholder in the most direct sense, but it's also necessary because you must be familiar with the UK healthcare system;
      2. You can make yourself available for at least 10 hours per week during the months of September and October (the feedback window). Beware that the actual time commitment could end up being much higher, it's hard to predict!
      If you are interested, please leave a response below, and we'll be in touch.


      Some useful background information:

      Finally, here's my view on our timelines for this project:
      1. Until end of June - post relevant updates on this thread, and allow people to volunteer for the committee.
      2. July - Compose the final committee, i.e. about 3-5 people who fit the criteria above. If there are many more applicants we will try to find a way for everyone interested to be involved. We will also need to elect a committee chair, who is responsible for leading meetings, defining the feedback process, and compiling the feedback into a final document.
      3. August/September - The committee starts preparing.
      4. End of September until early December - The feedback period; this will be most intense, and we need to make sure all committee members are truly dedicated to spending enough time.
       
      • Winner Winner x 4
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    2. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      This is a really big deal thing!!

      Can you guys use those of us in the United States for feedback to those who are on committees?

      Thanks for explaining this NICE organization so well. I was a bit confused what it actually meant.
      :huganimation:
       
      • Hug Hug x 1
    3. AUTHOR
      AUTHOR
      Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Hey all! Not many takers so far... Come on UK members, this is a unique opportunity to be directly involved in shaping tinnitus policy!
       
      • Agree Agree x 3
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