Operation Regrow by Hearing Health Foundation

Got this in the mail today:



Anybody up for a fundraiser for this??

 

FANTASTIC NEWS!!!!

Looks like their site will be up Monday.

https://hearinghealthfoundation.org/regrow

 

I'll definitely post about it on Twitter, that's the least I can do. Would be great to see other people posting about it as well!

 

Let's do it.

 

I just posted about them in the Tinnitus Talk Podcast episode suggestions thread.

Hearing Health Foundation looks much more favorable than the ATA.

 

What products or research are they directly supporting?

Or are they doing research in-house?

 

Nice that you guys are with me on this... Like Markku said, I hope everybody will donate to Operation Regrow. I concur that the Hearing Health Foundation seems awesome, when it comes to tinnitus research.

 

And we need @OnceUponaTime too!! She is good.

 

Awww thanx for informing me about this Star. I'll do best that I can by sharing it on Facebook and Twitter and other sites I am a member of. Financially as well. This sounds wonderful.

 

Hearing Health Foundation are collaborating with Hyperacusis Research. It would be cool if they wanted to collaborate with Tinnitus Hub too.

https://hyperacusisresearch.org/partnership-with-hearing-health-foundation/

 

And as @Jcb noted previously you have a whip!!

Just kidding. But you did help a lot of us vote and that was fun back then.

 

Should I bring my whip out and start getting people to share the link??? Bahahahah...

 

So their page is up and it's just a donation page with no information about what their strategy is. Regardless, I am going to donate and the rest of you guys that can, should as well.

 

Just donated! I added "To end tinnitus!" in the comments.

 

This is my preferred hearing non-profit to donate. I gave some money a few months back and got my company to match dollar for dollar. This isn't uncommon for companies to do so be sure to see if yours does as well.

 

They really should have tried to do a better donation page, now it's empty.

 

Similar with Dr. Rauschecker fundraiser. It's not that people don't want to donate. They literally don't know about it. The right way to go about this is to drive traffic to the fundraiser by utilizing Facebook and social media ads, Google ads etc.

 

If we show how much money results in what objective being reached it may make it more real.

Where can we get more funds from? Can we lobby somewhere? The ATA are now in DC, are they lobbying?

I’ve read this lady’s post on The Mighty where the Hearing Health Foundation features a lot. In fact they were asking sufferers questions and there weren’t many responses.

 

I'll be on Twitter tomorrow to help spread this. Mark my words!

Also, does anyone know if this year's fund is matched by an anonymous donor? I think last year's was.

 

Hm. Maybe tinnitus sufferers with burdensome or debilitating tinnitus who may already struggle financially are the wrong 'niche market.' Especially, if they're being told that there's nothing that can be done for them by M.D.s.

Something's amiss that so few people donate. How about trying to market this in a way that hearing problems and tinnitus is something that can happen to absolutely anyone? That it became a serious problem in the modern world with noise pollution and much more demanding environmental factors where stress and depression reign supreme?

Also, thousands of people doesn't sound like much to be honest. In the Podcast Dr. Rauschecker said that millions of $ should be invested to tinnitus research, so at least a few millions of people should see it. Perhaps, instead of donating directly to the fundraiser we could team up and give money to social media influencers, restart the whole thing and promote it on a whole new level.

The fundraiser should also have a clear goal with a set time limit for potential donors to have an idea when to expect results. Not the stereotypical "Please donate, it'll help someone someday." And the campaign should look trustworthy, so people will want to donate (like shopping in a well-established online store).

I'm not trying to be 'clever trousers' here, just thinking out loud.

 

Exactly. This needs to get government funding.

 

Soooo... what's their plan exactly?

 

Sometimes it seems like fundraiser donations seem like a drop in the bucket compared to the tens of millions companies such as Otonomy and Frequency Therapeutics have involved in their R&D for hearing loss/tinnitus treatments.

 

@Candy I gave a lot of money to 'tinnitus' causes over the years.

Researching the web it appears there are many Clinics, Universities, Hospitals all over the world that are researching for a cure for hearing loss and tinnitus.

Not sure it is a matter of money?

Whoever comes up with a better treatment or cure would make billions.

Look how long it took a medical journal to say TRT is ineffective. My guess is at least 26 years. How much money do you think Pawel Jastreboff made in that time?

 

I used to donate money to the ATA every now and then. Nothing much came of it. Membership is $50/year.

 

How many years are they talking about in finding a cure for tinnitus/deafness/hearing loss?

 

I wouldn't donate a dollar more to that organization at this point. We have no idea what they do on a day to day basis, they pitch themselves as "research oriented" when asking for donations, only to find out that 5-15% of contributions go to research. The rest lines the pockets of their bureaucracy and cronies.. .and to produce a printed magazine that while being well done, I sincerely doubt justifies the cost with respect to its contributions to alleviating this experience for people.