Operation Regrow by Hearing Health Foundation

Discussion in 'Awareness & Fundraising' started by TheDanishGirl, Jun 13, 2019.

    1. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Got this in the mail today:

      weLnvWuVEdDe8t1EVZGszdoig6HSZIjOKi22SeBRTNZdFhGFNnIDySRRfHnTfeEKGmKhJE7MMssxK1D_F-Q=w674-h765-no.png

      Anybody up for a fundraiser for this??
       
      • Like Like x 9
      • Informative Informative x 2
      • Agree Agree x 1
    2. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      • Like Like x 3
      • Informative Informative x 2
    3. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      I'll definitely post about it on Twitter, that's the least I can do. Would be great to see other people posting about it as well!
       
      • Like Like x 6
      • Winner Winner x 1
    4. GSC
      Owned

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Let's do it.
       
      • Like Like x 7
    5. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      • Agree Agree x 5
      • Like Like x 2
    6. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Hearing Health Foundation is excellent. Our first contact with them was a conference call all the way back in 2015.

      About a month ago we had a very nice call. Amongst other things, we discussed the Tinnitus Talk Podcast. They are glad to participate, so that's another great episode lined up! We have such an amazing assortment of guests now, this is shaping up to be fantastic.

      And obviously everyone should support their Operation Regrow campaign! We'll post about it on our Twitter and Facebook - those who don't share it or spare at least a few dollars, will see an angry Markku in their nightmares!
       
      • Like Like x 4
      • Winner Winner x 4
    7. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      What products or research are they directly supporting?

      Or are they doing research in-house?
       
      • Good Question Good Question x 4
    8. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Yeah they seem pretty awesome, and are happy to collaborate with us, looking forward to hearing more about their work!
       
      • Winner Winner x 4
      • Like Like x 3
    9. AUTHOR
      AUTHOR
      TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Nice that you guys are with me on this... Like Markku said, I hope everybody will donate to Operation Regrow. I concur that the Hearing Health Foundation seems awesome, when it comes to tinnitus research.
       
      • Like Like x 3
      • Agree Agree x 2
    10. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      And we need @OnceUponaTime too!! She is good.
       
      • Like Like x 2
    11. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Awww thanx for informing me about this Star. I'll do best that I can by sharing it on Facebook and Twitter and other sites I am a member of. Financially as well. This sounds wonderful.
       
      • Winner Winner x 4
      • Like Like x 1
    12. lapidus

      lapidus Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      • Like Like x 3
      • Agree Agree x 2
    13. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      :)

      And as @Jcb noted previously you have a whip!!

      Just kidding. But you did help a lot of us vote and that was fun back then.
       
    14. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Should I bring my whip out and start getting people to share the link??? Bahahahah...:LOL::ROFL:
       
    15. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      So their page is up and it's just a donation page with no information about what their strategy is. Regardless, I am going to donate and the rest of you guys that can, should as well.
       
      • Like Like x 3
    16. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      Los Angeles, CA
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      U.S. Army/Field Artillery Veteran
      Just donated! I added "To end tinnitus!" in the comments.
       
      • Like Like x 3
      • Winner Winner x 2
    17. Otana
      No Mood

      Otana Member Benefactor

      Location:
      US
      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      Noise exposure
      This is my preferred hearing non-profit to donate. I gave some money a few months back and got my company to match dollar for dollar. This isn't uncommon for companies to do so be sure to see if yours does as well.
       
      • Like Like x 1
    18. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      They really should have tried to do a better donation page, now it's empty.
       
    19. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      Similar with Dr. Rauschecker fundraiser. It's not that people don't want to donate. They literally don't know about it. The right way to go about this is to drive traffic to the fundraiser by utilizing Facebook and social media ads, Google ads etc.
       
      • Agree Agree x 1
    20. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Unfortunately, even that has proven to be difficult.

      If my memory doesn't fail me miserably, @Ed209 and @attheedgeofscience spent about $50 and $300 (respectively) on Facebook ads for the Dr. Rauschecker campaign. Those ads reached thousands of tinnitus sufferers.

      Net result?

      Zero new donations.

      I'm not sure what it would take to get people to actually donate to tinnitus research fundraisers? I'd say it's pretty damn difficult. Even with the Danny Boy fundraiser - it had many elements; the emotional impact of someone passing and doing something in their memory; the democratic nature of the fund (donors could choose where the monies go).

      Yet it only raised about £5,000. The donation page was visited by over 60,000 tinnitus sufferers and only a handful ended up giving anything. A few people gave multiple times though.

      I and @Hazel are this year going to launch a new survey on awareness & fundraising, in a bid to figure out the obstacles to fundraising, and to learn more about people's concerns and wants. We'll see if that bears any fruit, maybe some new insights into the minds of tinnitus sufferers.
       
      • Like Like x 1
      • Winner Winner x 1
    21. Candy

      Candy Member Benefactor Advocate

      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Unidentified
      If we show how much money results in what objective being reached it may make it more real.

      Where can we get more funds from? Can we lobby somewhere? The ATA are now in DC, are they lobbying?

      I’ve read this lady’s post on The Mighty where the Hearing Health Foundation features a lot. In fact they were asking sufferers questions and there weren’t many responses.
       
    22. GSC
      Owned

      GSC Member Hall of Fame

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I'll be on Twitter tomorrow to help spread this. Mark my words!

      Also, does anyone know if this year's fund is matched by an anonymous donor? I think last year's was.
       
      • Winner Winner x 1
    23. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      Hm. Maybe tinnitus sufferers with burdensome or debilitating tinnitus who may already struggle financially are the wrong 'niche market.' Especially, if they're being told that there's nothing that can be done for them by M.D.s.

      Something's amiss that so few people donate. How about trying to market this in a way that hearing problems and tinnitus is something that can happen to absolutely anyone? That it became a serious problem in the modern world with noise pollution and much more demanding environmental factors where stress and depression reign supreme?

      Also, thousands of people doesn't sound like much to be honest. In the Podcast Dr. Rauschecker said that millions of $ should be invested to tinnitus research, so at least a few millions of people should see it. Perhaps, instead of donating directly to the fundraiser we could team up and give money to social media influencers, restart the whole thing and promote it on a whole new level.

      The fundraiser should also have a clear goal with a set time limit for potential donors to have an idea when to expect results. Not the stereotypical "Please donate, it'll help someone someday." And the campaign should look trustworthy, so people will want to donate (like shopping in a well-established online store).

      I'm not trying to be 'clever trousers' here, just thinking out loud.
       
      Last edited: Jun 18, 2019
    24. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      Exactly. This needs to get government funding.
       
    25. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      Soooo... what's their plan exactly?
       
    26. just1morething
      Benevolent

      just1morething Member Benefactor

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      barotrauma, noise exposure, TMJ, neck?
      Sometimes it seems like fundraiser donations seem like a drop in the bucket compared to the tens of millions companies such as Otonomy and Frequency Therapeutics have involved in their R&D for hearing loss/tinnitus treatments.
       
      • Agree Agree x 1
    27. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      @Candy I gave a lot of money to 'tinnitus' causes over the years.

      Researching the web it appears there are many Clinics, Universities, Hospitals all over the world that are researching for a cure for hearing loss and tinnitus.

      Not sure it is a matter of money?

      Whoever comes up with a better treatment or cure would make billions.

      Look how long it took a medical journal to say TRT is ineffective. My guess is at least 26 years. How much money do you think Pawel Jastreboff made in that time?
       
      • Agree Agree x 1
      • Good Question Good Question x 1
      • Informative Informative x 1
    28. dan26
      Frustrated

      dan26 Member

      Location:
      NJ
      Tinnitus Since:
      1981
      Cause of Tinnitus:
      complete loss of hearing. motorcycle accident
      I used to donate money to the ATA every now and then. Nothing much came of it. Membership is $50/year.
       
    29. dan26
      Frustrated

      dan26 Member

      Location:
      NJ
      Tinnitus Since:
      1981
      Cause of Tinnitus:
      complete loss of hearing. motorcycle accident
      How many years are they talking about in finding a cure for tinnitus/deafness/hearing loss?
       
      • Good Question Good Question x 1
    30. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      I wouldn't donate a dollar more to that organization at this point. We have no idea what they do on a day to day basis, they pitch themselves as "research oriented" when asking for donations, only to find out that 5-15% of contributions go to research. The rest lines the pockets of their bureaucracy and cronies.. .and to produce a printed magazine that while being well done, I sincerely doubt justifies the cost with respect to its contributions to alleviating this experience for people.
       
      • Agree Agree x 2
      • Winner Winner x 1

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