Overprotection and Avoiding Most Noise — Yay or Nay?

Discussion in 'Support' started by Athens, Feb 3, 2022.

    1. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      What would you say your LDL is before pain now? Is the pain immediate, delayed or a little of both? How long have you been at this level? Have you had any improvement?

      I’m sorry you are in such pain. We really need one of these regenerative meds to work for noxacusis too.

      I have tried sleeping without protection twice now and each time I’ve had pain and the next day increased sound sensitivity. But the sound in my room is such low level. It has to be in the 40s at any peak really.

      I’m not sure what to do. If I should try to not wear protection while I sleep and deal with this minor pain. Or if I should continue to protect almost 24/7 and just keep periodically trying like once a week to see if I can sleep through the night without pain.

      My pain levels are nowhere near your level. I can imagine dealing with that. But I am concerned I seem triggered to mild pain, by such minor stuff. Wondering if it’s a sign I’m heading toward getting worse.
       
    2. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Geez man you got it rough... fuck me :clown:

      Something, anything has to help you soon.
       
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    3. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      See artificial audio was my downfall at the record store and afterward. I immediately wasn’t able to watch television or listen to music after it happened. But I kept trying in short stints at first. Then I’d give it a week or something and try again. And the pain got worse. But like you said, I was listening at like 50 dB music and lower than that television.

      The night my tolerance just bottomed out I listened to about 20 minutes of music and had no issues till the end and then the pain just kept getting worse. I wouldn’t say it reached severe levels, but it was strong moderate.

      Then I started wearing protection 24/7 for about 10 days. I tried showering without plugs or muffs and it hurt. Never had hurt before. Then I just tried like 30 minutes of exposure in pretty quiet areas of my house and the strong moderate pain would come back.

      Now I’m using a journal and documenting daily exposure at very small levels. Like minutes out of an hour 12 hours of the day. So far I’ve been able to build up a little daily consistently without too much issue. I may have some very mild pain or mild burning here and there depending on the things I’m exposing myself too.

      I can’t drive, shower, watch television, listen to music or sleep now without pain. The sleeping is especially worrisome to me. Even though the pain is low level now, as you say yours kept building and getting worse. I’m 4 months in from the record store and that has been my trajectory so far.

      If I become severe and completely homebound I become useless to my kids and I’ll lose joint custody. I’m really hoping if I just keep up this gradual exposures with a ton of protecting for a long time I’ll start to see some kind of improvement. But it’s hard to be optimistic, since I’ve consistently gone downhill.
       
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    4. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      Shit man :( Anything. If I could work out again without getting worse that would be big. It’s crazy.
       
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    5. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      :( That stage before you get severe is so scary, not gonna lie. Because you don’t know if you will get better or heal. It’s horrible. And when you start getting pain from most things, like you said, it’s like such a kick to the face. I understand this condition better than most people, but even that isn’t much because it’s so unpredictable. I have read crazy success stores and heard crazy horror stories... I mean you never know. I’ll have to get the story and post it, someone told it to me, but some Hungarian guy had it, like me, for 5 years and got ready to end it all. The day he woke up to do it everything vanished. I mean it’s seriously so unpredictable, all it takes is a few nerves just turning off for no reason.

      Just keep being careful like you are. I hope you improve. I forgot if you had really bad pain from the music store but it seems, for me at least, I only get permanently worse when the pain goes over a 7 or 8 and lasts for a while, that’s how I know. Other times I’ll just be in pain for no reason and it will fade. I’m always feeling something now though.
       
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    6. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Hopefully soon.
       
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    7. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      The record store didn’t cause severe pain, but it was familiar pain. Deep jaw shooting pain and pain deeper in my left ear that was like an ache I associate with Tensor Tympani tensing up.

      Now the pain has been different. My ears feel really brittle when they ache and it’s mostly external right now. When I was getting the strong moderate pain that was lasting 8-11 hours, it was that plus my whole face just aching. Not the same as the deep jaw pain, so different. The only thing that was familiar is I used to get tingling and pain on my forehead and that was happening.

      So I’m not really sure if this means the pain is maybe more “superficial” than before and take it as a good sign since it doesn’t feel as “deep” or if this new type of pain is from irritating the inner ear/cochlea and activating the Type 2 afferents more.

      It’s like today, I actually haven’t had much pain. But I’ve had a lot of burning sensation on my outer ear. Not like the chisel in the ear you get deep in the ear. I’ve had that before in the past. And I’ve had the menthol feeling a lot. So since those are nerve pain sensations I’m wondering if that’s a bad sign or just things behaving different.

      I’ve had somewhat of a similar experience to the guy you mentioned where his issues went away. My sensitization in my face kept getting worse for seemingly no reason before I actually had improvement last time. Since there wasn’t a trigger, I was thinking maybe this is just the nerves trying to work out what’s going on now and it’ll get better. I can’t say that is what happened, but things did end up improving.

      I mean they had improved so much that I thought I would be fine in that record store. Not that it would send me on a downward spiral.
       
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    8. Vassili
      Dreaming

      Vassili Member

      Tinnitus Since:
      10/2019
      Cause of Tinnitus:
      Noise-induced
      God had other plans for this man. Very inspiring story. (y)
       
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    9. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      If you’re not in serious pain that’s good. I hope you get better again because this condition is the worst. It’s brutal. All we can do is wait, right.
       
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    10. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      Yes, that can be the only explanation. I mean he went to concerts again with earplugs in. It never returned. That is only dumb luck. The nerves must have just stopped forever or god had a plan for him.
       
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    11. aura

      aura Member Benefactor Ambassador Hall of Fame

      Location:
      Romania
      Tinnitus Since:
      05/2012
      Cause of Tinnitus:
      Unknown
      @SB1981, do you feel ear pain immediately after exposure to a loud sound?
       
    12. Mister Muso
      No Mood

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2011 / April 2019
      Cause of Tinnitus:
      Loud music
      I've experienced hyperacusis so bad that the sound of my own voice or a running tap made my ears instantly uncomfortable. Over the past 2 and a half years I've had three periods of easing off from this effect, and I'm in the third one now. I don't know if it's just the passage of time, but I've been trying not to overprotect quite as much as I had been. There have been times when I've tried that and it hasn't helped, which is why I think it may be a combination with the passage of time. I've been to a few small-scale concerts lately and whilst they've been less enjoyable through having to protect my ears, it gives me hope that I may be able to move to less intrusive earplugs i.e. musician's earplugs in future rather than the thick foamy type. I'm already finding I can play the piano quietly with my silicone earplugs only halfway in rather than all the way in, which is progress indeed.

      I've seen people mention two years as being a common threshhold for relief, so I'm hoping this is the shape of things to come and I don't get any further setbacks. That's always the risk we run but we try and manage those risks as best we can.
       
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    13. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      Depends on the sound really.

      This morning even with earmuffs on some sound in a video my son was watching gave me immediate pain. The same the other day when they were watching a movie. I was like 15 ft away with muffs on and the rumble during a certain action sequence gave me immediate pain. The volume wasn’t that loud really either.

      The hand vacuum gave me pain almost immediately with double protection the other day. Was vacuuming out my car. Never had issue before only using single protection Peltor X5A’s.

      Most of the stuff I am exposing myself to without protection right now is not that loud and I only get a little gradual pain in some cases and most often some following after I put protection back on. It’s very low grade pain though. I’m only exposing myself for short periods though.

      I experience immediate discomfort and like my ears tensing up and feeling jumpy to the usual sounds like silverware and stuff. Pain usually comes a little later though.

      Delayed pain is one of the worst aspects of noxacusis to me. You don’t know what’s ok a lot of the times till after exposure.
       
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    14. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      Any long lasting pain? Because yeah, I’ve been dealing with that level for a year and I didn’t have to give everything up until I started getting severe pain from most noise. I miss just having the discomfort because the affects didn’t last. Now If I am not extremely careful, I’ll just be in severe pain for days. I hope I can get back to that level. This sucks. I’m glad you can go out and do stuff. Keep being careful with those ears.
       
    15. Mister Muso
      No Mood

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2011 / April 2019
      Cause of Tinnitus:
      Loud music
      I've certainly had feelings of fullness that can last for days. At the time of the sound spike, it can feel like a stabbing sensation closer to pain, but that sensation would usually wear off in a few minutes, leaving just the fullness. I can still get all these symptoms but just at a reduced level to before.

      Back in 2019 I gave up music completely for three months, before gradually phasing it back in.

      I'm sure I have overprotected at some times, and underprotected at others, especially near the start. I used masking sounds most at the start, but only use them occasionally nowadays.

      I have no idea if I'll ever be able to go back to a "normal" life. But we'll see.
       
    16. Vincent R
      Caffeine

      Vincent R Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Acoustic trauma
      Not wearing hearing protection can significantly worsen your hyperacusis in case you are accidentally exposed to a harmfully loud noise. (Fire alarm, a kid popping a balloon, ambulance sirens and so on.) That's one aspect you may want to consider.

      Save from that, constant protection will most likely make your ears more sensitive to noise. But not in the sense that additional, permanent injury is done to your ears; your brain just adjusts to the lower input. Thus, hyperacusis caused by noise incidents and hyperacusis caused by constant protection are different conditions. The latter can probably be cured at any time simply by ditching the protection.
       
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    17. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Shooting/loud noise
      Yeah normal is hard to get back to from this, but better is always possible and is livable for most people. I had to not listen to any artificial audio for 5 months. Even the slightest noise would leave me in severe pain. I found out my TV with a soundbar makes it possible for me to listen to comedy shows on a low volume. Sound from anything else still hurts like hell. Definitely a sound quality issue with hyperacusis. I never payed attention to it before.
       
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    18. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
      Has there been any follow up to his story? Is he still homebound after all these years?
       
    19. Taw

      Taw Member

      Location:
      Europe
      Tinnitus Since:
      Pain hyperacusis since 03/2021
      Cause of Tinnitus:
      Acoustic trauma (drum lessons)
      I did not speak with him but a friend told me that Tom hasn't had pain for months, although he is still bothered by voices and other noises. So there is an improvement, but a slow one.
       
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    20. AUTHOR
      AUTHOR
      Athens

      Athens Member

      Tinnitus Since:
      09/27/2020
      Cause of Tinnitus:
      Unknown
      It is great to hear some positive news regarding someone with such a severe situation. It sounds like he still has some challenges but has improved to some degree.
       
    21. SB1981

      SB1981 Member Benefactor

      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Multifactorial
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    22. David S

      David S Member Benefactor Ambassador

      Tinnitus Since:
      10/2013
      @Athens, what is your tinnitus like? Does it react to other sounds?
       
    23. AUTHOR
      AUTHOR
      Athens

      Athens Member

      Tinnitus Since:
      09/27/2020
      Cause of Tinnitus:
      Unknown
      Yes, it reacts to all kinds of sounds (running water, squeaky wooden floors). The hyperacusis is worse than my tinnitus. I can only hear the tinnitus in a quiet room, but it sounds like an open radio frequency with some high pitched tones. The tinnitus is 24/7. The tinnitus seems more pronounced than it was last year.
       
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    24. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Well, 1 year later with hyperacusis and tinnitus. You know me, positive as ever lol. In the beginning I was just living my life not protecting, unless I was somewhere where it was very loud. I got worse. So I started protecting while driving and not when shopping. I got worse. So I started protecting while driving/shopping and walking outside. Looking back at my logs, my hyperacusis worsened my tinnitus baseline, and I now spike to the AC when I didn't before. Only fans, rain, etc. My spikes would be short lived but now last longer. I am also getting intermittent pain randomly and only on some days. My ear does feel hot sometimes in the canal.

      So I took the advice of someone here and just letting you guys know I was positive, I was living my life, and got worse.

      I am thinking now I need to protect around my son with lower filters, protect when watching TV with lower filters, always protect outside and allow sound enrichment when alone at home (I work from home) in the quiet. This is my next step.

      I am beginning to feel that dread pit of the stomach feeling like I am screwed lol.
       
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    25. MindOverMatter

      MindOverMatter Member

      Location:
      Norway
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Unknown (possibly stress related, and later sound induced)
      Sorry to hear this @Wrfortiscue.

      You certainly don't deserve it...

      This is just another statement telling that we are all different, and there are no certain answers with the many facets of hyperacusis. Which in turn makes it really difficult to give any advice at all.

      You are still only one year in though, and things can settle for you. Might take you another 1-3 years - only time will tell. There is always hope!
       
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    26. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Yes sir, always hope, thanks for that :)
       
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    27. aura

      aura Member Benefactor Ambassador Hall of Fame

      Location:
      Romania
      Tinnitus Since:
      05/2012
      Cause of Tinnitus:
      Unknown
      In the beginning I didn't protect either when driving, for example, but now I am very sensitive to the sound of the car engine, so I'm always using my earmuffs in the car, not as a preventive measure but because my tinnitus spikes and my hyperacusis gets worse.

      I'm sorry to hear that you're not so good.

      Maybe it would be better to protect your ears when driving, outdoors and, as you said, at home when you play with your kid.

      I also have stabbing ear pain. It doesn't seem to be noise related (yet) but I don't want to push my luck so I'm trying to be extra careful. I think you should do that too for a period of time.

      I am not a very positive person but in the same time I can't accept the fact that this will be our life from now on.

      I don't know how or when, but things will get better.
       
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    28. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Thanks aura, we will get through this, at least I hope. I’m double protecting driving now. @Exit warned us all lol. Seems us living our lives we still got worse... maybe we are just unlucky. I still think we need sound enrichment. After taking off my earmuffs and earplugs, just crumpling of a bag was LOUD.

      I think our ear pain is a small warning of what’s to come if we keep worsening. Who knows.
       
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    29. Rockman

      Rockman Member Benefactor

      Location:
      MN
      Tinnitus Since:
      1/2021
      Cause of Tinnitus:
      Noise, allergy
      Yes, driving is a weird thing. My setback was from driving. I had a dB meter with me and the max dB was 80 if I hit a bump. Mostly sat around the 65-70 dB mark. One thing that didn't cross my mind was I'm a smoker and I always open the window. I'm thinking the constant pressure changes and wind noise was too much. I remember waking up the next day and my bare feet running across the floor hurt my ears. I just stood there in disbelief. It doesn't bother me now. But it has been a year. Still can't carry grocery bags without earplugs in.
       
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    30. aura

      aura Member Benefactor Ambassador Hall of Fame

      Location:
      Romania
      Tinnitus Since:
      05/2012
      Cause of Tinnitus:
      Unknown
      Same here :(
       
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