Plucky's Life

I hang on to all of it , all of your encouragement. How is it that we deserve any of this, I am sorry to read what you wrote, now sorry for both of us. You find quickly that some people have no compassion, its a surprise when you see it first hand, and a disappointment. I could go into detail about the reception I've received from certain family members. My dad is still telling people I have a "pain in my ear" if you can believe that in spite of me dropping off ATA pamphlets for him to read explaining everything and my sister has not called once either. The nurse just called the dr wants me to try Aldavan (I think she said) and see how that works and get back to them so I am going to walk and get that now. I think your plan is a good one. I just fret over the drugs more than you do. I want to be happy again, somehow, Aldavan is the next step , drs appointments coming up, and if I get the car sold I'll have enough money to float the boat a little longer
Frank

 

Well, good luck with the Aldavan. I cant find that one on the net. Let us know how you get on.

 

Probably Ativan, I would guess. That is the Benzo I wanted to try.

 

Wonderful, "rebound insomnia" It is Ativan I didn't hear her right, So I read the literature and it sounds like this will take me down the same road but with even more troubling consequences. I was on Klonopin the last two weeks and couldnt wake up from it was wasted on the couch for hrs the next morning. I am afraid of this but will try it tonight because after two nights without sleep I have to do something. Has anyone tried Nyquil (night time liquid cold medicine)? I have to go after Lyrica somehow. The doctor at Jefferson said I would have to make an appointment with a neurologist for it. I was trying to avoid another doctor bill. There does not seem to be too many options. I guess it is important to go this route at first. I would assume, ultimately, you dont want to stay on any of it

 

I met with the ATA support group. It was mostly world war two vets, nice guys, but seemed more concerned with watching memory skill videos than actual support. I waited a month to meet them and went there hoping somebody would give me a hug but ended up going home without one. They were really keen on what neuromonics was all about and hearing about my trip to Phila. to learn it. I promised I would return with literature and a story. and I will

 

I feared you'd heard wrong and it was Ativan. Why is your doctor so keen to give you Benzos and not let you try an antidepressant which is great for sleeping (ie. Remeron)?Its a no-brainer!
My doctors here wont prescribe Benzos. I got mine for a try to see if it reduced the noise as I pleaded with the doc. He didnt really want me to have them.

They stop working after a time, they do. So why wont they let you have something that doesnt stop working ie. Pregabalin & Remeron? Actually with Pregabalin I think I remember reading on Wiki that its licensed for anxiety in Europe but not the US. Maybe thats why with that one drug. Im sure a shrink would prescribe it for you, 'off-label'. They know the best drugs and they are not scared to prescribe them.

Well, hope it does something for you for tonight at least but he's done you no favours!

 

I am on the old "gold standard" Gabapentin + Klonopin for T. The Gabapentin is supposed to magnify the Klonopin effects. Gold standard might be a little strong , but it is what Dr. Shulman in NY recommended. Lyrica is a newer version of Neurontin (gabapentin) and may be better, but is still under patent, so much more expensive. Everyone might have a different opinion on which drugs to use.

 

Wow, now confusion sets in. I don't know if I want to even touch this Ativan. So there is an issue with price with Lyrica along with finding someone to prescribe it. I like the idea of a challenge. I will try my psychiatrist first then try a neurologist I guess. Xanax gradually didnt seem to work and actually seemed to exacerbate the T before I stopped eating it.

 

Confusion indeed Frank. I was just being frank, Frank. I had a frank, Frank for a noon meal but was high in sodium so may aggravate my T.

 

I, really, after reading through these again, don't know what I will end up doing tonight . I dont eat frank franks . Are you sure about the sodium thing? I am trying to buy foods with less than 400 mg per serving, not so easy to find though

 

I think Clonazepam is the most superior of the Benzos. Dont know why he's just substituted another Benzo. Clonaz is 'long-acting' ie. it take about 4 hours to reach peak, Ativan is short-medium acting. So the doc might be thinking itll have more of a knocking out effect. But then why not just prescribe Temazepam? What's up with this guy, why wont he prescribe Remeron for you?

Pregabalin is still in patent, as Dale says. I had to get my privately as the doc was being a PITA and it cost £108 for a months supply. The pricate Psych wrote a letter to the docs about what I need, no problem now getting it free on the NHS.

Even though I sound very pro-drugs Im not. If there was a natural supplements way Ive taken it in the past. But with this I couldnt function, I had no choice. I dont want to take them for life. If I can get a proper grip on T and start habituating then those drugs will be tapered off and gone.

 

Agree with Markku 100%.
I've heard people say that when they are on Xanax they crave their next dose. its very short-acting - has a short half-life and so keeps needing to be topped up. I read one guy got 2 hours help from it and then was craving his next dose for a few hours.

Remeron for sleep (and anti-depressant, which its supposed to be excellent for in a high enough dose) and Pregabalin for anxiety. Thats my prescription for you!!

 

Its lovely that written note Markku.

 

I wont be able to get those till after the weekend so I have to decide what to take if any next three nights. I want no part of Xanax and if Ativan is the same deal only quicker why bother? That leaves me with clonaz, cold medicine (w/alcohol) or both or neither. Help

 

It's better they don't give them out like they do here Markku they are heavily abused here. Thanks for the note

 

I'd go for Clonaz one night, drink the next (not toooo much), then Clonaz the third if you need it. Clonaz has a long half-life and so it will give you relaxation the next day too (it did me). What dosage do you have?

Melatonin can work too, it doesnt have the power of the drugs of course. Its a powerful antioxidant too so thats good all round.

 

The melatonin and valerian didn't work for me, not strong enough but I would rather take one or the other of those. I took the cold medicine last night knocked me out almost instantly but left me feeling weird this morning, unable to get up. My clonaz is 0.5 MG, It's like I'm test driving these things. I slept 5 or 6 hrs which is better than 2-3.

 

Did anyone see the Phillip Roth show last night on PBS? He talked about writing of course but also about his back pain and addiction. That is what made me decide against the pills last night

 

Plucky, a website you might want to look at if you haven't before.
http://www.tinnituscenter.com/

 

Wow I just spent a half hr. reading through all of that. It seems like they are working on something, gives me hope. I'm not too far from NY eother. What is your opinion of it?

 

I think PBS might have an archive of shows, not sure. They showed his house (in Connecticut) He writes standing up, walks around. it was a really interesting profile and made me want to read more of his books. I have only read two but loved them both. I am unable to read now and I really miss it

 

Where did you go how do I contact you?

 

I never actually been there but did talk to Dr. Shulman a couple times. Dr Shulman is semi retired and did not really want new patients. There may be others that took over for him, that I don't know. Dale

 

I got your PM so I guess you worked it out! I have replied to that

 

I've got appointment for the tests at Jefferson hospital on the 29th and I will compare it to what they offer in Brooklyn. I think you have to be careful or youll spend tons of money, maybe wasted. T is so loud today I think from alcohol. I'll probably reach for the Clonaz tonight

 

Does your T fluctuate Plucky?
How has this affected your day to day life?