Pulsatile Tinnitus with Ear Pain, Ear Fullness and Weird Sensations: So Scared!

Discussion in 'Support' started by MeHereHi, Sep 1, 2020.

?

Do you have ear pain with pulsatile tinnitus?

  1. Yes

  2. Sometimes

  3. No

  4. I don't have pulsatile tinnitus

Results are only viewable after voting.
    1. MeHereHi
      Panicky

      MeHereHi Member

      Tinnitus Since:
      2019/20
      Cause of Tinnitus:
      Unknown
      Hi all,

      I've had pulsatile tinnitus for at least a year because I thought it was impacted wax from wearing earplugs nightly and it actually soothed me to sleep. It wasn't until a casual internet search during lockdown in March that I realized it could be life threatening. I have seen an ENT who has confirmed hearing normal, no bruit from physical examination, no wax and no ear tumor which can be seen via physical exam. I now have an MRI with contrast dye scheduled for September 16 with results to be confirmed September 24.

      Symptoms: I have ear pain and weird sensations on the right side of my face which is the side of the pulsatile tinnitus. Also, I have pain in the bony part of my head behind my ear. Ear fullness.

      I'm terrified that I'm going to die if I sneeze, exercise, drink, sleep etc. I am terrified since I can only see one other member here who has mentioned pain with pulsatile tinnitus and Whooshers is an enigma as far as how to navigate the site so I do not find it helpful. Anyone experienced anything similar to me? Just a voice would be helpful now... I feel terrified and like I'm losing my mind and I need to continue to work just for a distraction..

      I can't focus at work and I can't stop thinking about dying...
       
      • Hug Hug x 2
    2. Kendra

      Kendra Member

      Tinnitus Since:
      08/2017
      Cause of Tinnitus:
      SSNHL/ Acoustic Trauma
      More than likely it isn’t anything to worry about in terms of dying. It could just be you have a slight ear infection and pulsatile tinnitus. I’ve gone in for an MRI, possible acoustic neuroma, because I had an abnormal BAER test and everything came back normal. I know it’s hard. But try not to worry about it.
       
      • Hug Hug x 1
    3. tiniturtle

      tiniturtle Member

      Location:
      Rochester, NY
      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin
      • Hug Hug x 1
    4. AUTHOR
      AUTHOR
      MeHereHi
      Panicky

      MeHereHi Member

      Tinnitus Since:
      2019/20
      Cause of Tinnitus:
      Unknown
      Thanks, the only phobias I have in life are cancer and flying so I am worried about finding out about anything on the scans. It is so nice to hear from someone who has gone through this as I only have my husband to talk to and he can't help since he's never experienced it and Google is a scary thing. Thank you so much for replying - it means the world to me x
       
      • Like Like x 1
    5. AUTHOR
      AUTHOR
      MeHereHi
      Panicky

      MeHereHi Member

      Tinnitus Since:
      2019/20
      Cause of Tinnitus:
      Unknown
      Hi there, and thank you very much. :) I did have a read and suspect if the MRI with contrast and CT come back 'normal', then further investigations will be warranted via ENT or neuro specialist. I live in England so the process is different but seems to lead to the same conclusion especially as I'm paying out of pocket. Thanks for replying and hope you're well :)
       
      • Like Like x 1
    6. ShaunR

      ShaunR Member

      Tinnitus Since:
      June 2004
      Cause of Tinnitus:
      Concert + Motorbike
      Hi,

      I have these exact symptoms... I was putting it down to hyperacusis.

      My right ear is always full, my jaw and cheek on my right side always ache. I also have weird sensations in my face and ear. The only thing I don't have is the pulsatile tinnitus.

      MRI came back clear. Apparently I have some hearing loss.

      Has this got any better for you?

      Shaun
       
    7. AUTHOR
      AUTHOR
      MeHereHi
      Panicky

      MeHereHi Member

      Tinnitus Since:
      2019/20
      Cause of Tinnitus:
      Unknown
      Hi Shaun,

      Unfortunately, it's gotten worse. I had an MRI today without contrast, even though I was supposed to have one with contrast according to ENT, and results next week.
       
    8. CL0292

      CL0292 Member

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      I have Pulsatile Tinnitus, cause unknown
      Hello! Good luck on the MRI! Ive had pulsatile tinnitus on my right ear for a bit over a year and a half, and at times I do get a pressure feeling there. For example I had COVID-19 in early August and it became more loud and more pressure, but as of now the pressure tuned down. It also happens if I get a cold or anything like that. I also got tested for IIH but came back good so I do not have high intracranial pressure. Try to get seen by a Neuro whom can order an MRA and MRV as well, since those tests will look at the veins and arteries as well.
       
    9. robinbird
      Fine

      robinbird Member Benefactor

      Location:
      New Hampshire
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Diagnosed with high pitch hearing loss, both ears, right is worse
      It’s ok to feel that way. I did at first, five years ago. Now I have a constant sizzling, air pressure sound that can get louder or quiet down. My PT and T has a pattern. I know it’s all about blood flow intensity and my body position. I am 66 and I can also hear my blood flow, like water in pipes. It’s annoying now but I know I will never die from it. I did get hearing aids and they are a huge help in hearing sounds I was missing.
       
    10. tiniturtle

      tiniturtle Member

      Location:
      Rochester, NY
      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin

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