Repeated Modified Nerve Blocks and Auditory and Non-Auditory Nerve Stimulation

Discussion in 'Research News' started by David S, Mar 1, 2022.

    1. EDDTEKK

      EDDTEKK Member

      Location:
      Germany
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic Trauma
      I also don’t believe in this treatment. For me it looks like super acupuncture, which usually has no effect on tinnitus. Especially for chronic cases.
       
      • Informative Informative x 1
    2. Nick47

      Nick47 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      A massive shout out to those that went through the trouble to get the treatment.

      Looks like a dud but at least we know.
       
      • Good Question Good Question x 1
    3. Padraigh Griffin

      Padraigh Griffin Member Podcast Patron Benefactor

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Unknown/Stress
      Yea, absolutely fair play to everyone that went, did the treatment and reported back. Truly full of admiration.

      Hoping Tom gets relief. I know what it’s like to have a young child and be struck down with this condition. The frustration that the joy of seeing a child grow is taken away from you by severe tinnitus.

      Wishing you well @Tom Parijs.

      Please update us with your progress.
       
      • Agree Agree x 3
      • Like Like x 2
    4. Tom Parijs

      Tom Parijs Member

      Tinnitus Since:
      09/2021
      Cause of Tinnitus:
      Loud music
      Hey guys.

      Sorry for my late response! It was a rollercoaster mentally and emotionally.

      Today I stopped the treatment. I've done 19 in total. Before starting the treatment I had a T-VAS score of 8 in both ears. Normally I would fill in a 10 but, because my friend has it even worse than me, I couldn't do that.

      If I now have to fill in a score, the left ear is still an 8 and the right ear is an 8. It seemed as if the right ear was going to respond to the treatment, but in the end, after 19 treatments, it is still the same as it was in the Netherlands.

      My friend's tinnitus dropped considerably after every treatment, but then later on the same or the next day it goes back up. But in 10 years of trying everything, nothing has before made his tinnitus better even temporarily, so he wants to stay in South Korea until October 18th.

      I am flying home next week, September 23rd. Back to Hell. I had it so bad in the Netherlands last year that I'm very scared going back and winter is coming...

      What should I do? Go to the Brai3n clinic? Wait for FX-322? Or Dr. Susan Shore's device... I am a hopeless piece of grief.

      I cannot recommend this treatment to anyone. It is a very hard journey and time here in a busy city. It is a waste of money. And the results of the research are completely wrong. I mean 52 million people live here, 10% of who have tinnitus on average, and of those 10% have extreme problems with tinnitus. We don't see any Koreans or Western people doing the treatment here at all. If the treatment was that successful, it would have to be super busy here with Koreans. And the references we have so far are 5 Western people with 0 result.

      Next week back to my wife and 2-year-old son. Hopefully I can stay strong until there is something that can help me and you too.

      Greetings,
      Tom
       

      Attached Files:

      • Hug Hug x 21
      • Like Like x 2
    5. Tom Parijs

      Tom Parijs Member

      Tinnitus Since:
      09/2021
      Cause of Tinnitus:
      Loud music
      That's what hurts me the most. Seeing my kid grow up true hell... big mistake from me not to take care of my ears. I cannot forgive myself. I had never heard of tinnitus before... but I should have known better.
       
      • Hug Hug x 6
      • Like Like x 1
    6. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Thanks for getting back to us brother Tom.

      I am sorry it didn't work, we were all cheering for you to have some improvements.

      Take one day at a time and be kind to yourself.

      Big hug,
      Daniel
       
      • Agree Agree x 1
      • Friendly Friendly x 1
    7. Padraigh Griffin

      Padraigh Griffin Member Podcast Patron Benefactor

      Tinnitus Since:
      05/2020
      Cause of Tinnitus:
      Unknown/Stress
      I can only empathise. The stress of the birth of my 23+3 twins caused mine. There is nothing worse than having suicidal thoughts when you only want to allowed to be a loving father. I hope the treatment is working. Please God.
       
      • Agree Agree x 2
      • Like Like x 1
    8. BrysonKingMe

      BrysonKingMe Member

      I would try the Brai3n clinic. They won't cure you but may be able to offer some relief via neuromodulation.
       
      • Like Like x 1
      • Agree Agree x 1
      • Helpful Helpful x 1
    9. OptimusPrimed
      Spaced

      OptimusPrimed Member Benefactor

      Tinnitus Since:
      10/2007
      Cause of Tinnitus:
      Acoustic trauma - Repeated gun blasts
      Bro, it might work for those with skeletomuscular origins of tinnitus or cervical instability. Noise induced tinnitus might be different. I’m sorry it didn’t work for you. Meditate, focus on good healthy living and distracting yourself by staying busy. Try acupuncture, massage therapy, wait for OTO-413, FX-322, Dr. Susan Shore’s device, etc.

      Just because it doesn’t work for noise induced tinnitus, doesn’t mean it won’t work for another type of tinnitus.
       
      • Friendly Friendly x 1
    10. BrysonKingMe

      BrysonKingMe Member

      Officially a scam.
       
      • Like Like x 2
      • Agree Agree x 2
    11. Tom Parijs

      Tom Parijs Member

      Tinnitus Since:
      09/2021
      Cause of Tinnitus:
      Loud music
      How are you my friend? Is the worsening from South Korea still the same?

      We have another Dutch guy here. He has had 9 treatments now, and he says he has worsening from treatment number 9. I told him your story - and warning to us - and advised him to stop the treatment.

      He asked me if your tinnitus is still the same after the worsening in South Korea?

      Greetings,
      Tom
       
    12. Chinmoku

      Chinmoku Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Started with a cold, possibly worsened by medication/noise
      Hi Tom, the worsening never reverted, sadly. I'm struggling a lot these days, to put it mildly. I am sorry it didn't work for you but at least it hasn't made you worse. Overall, with all the feedback we have, I would conclude the study has some kind of bias and results in real life are not as good as in the paper. We haven't seen a single successful case from the west.

      So I cannot recommend this treatment. Best avoided. Not that there weren't any red flags, we discussed them early on, but I decided to try it anyway on a balance of probabilities.
       
      • Hug Hug x 5
    13. Spencer123

      Spencer123 Member

      Tinnitus Since:
      May 24, 2021
      Cause of Tinnitus:
      Moderna Covid Vaccine
      I just wonder if the published results were fabricated.
       
      • Agree Agree x 2
      • Like Like x 1
    14. Tom Parijs

      Tom Parijs Member

      Tinnitus Since:
      09/2021
      Cause of Tinnitus:
      Loud music
      Thanks for your comment, my friend. The other Dutch boy will immediately stop the treatment. It's unbelievable that a treatment like this can be published with such high positive results in 2022 but then turn out to be a serious scam.

      Hope you can keep it up until the seriously researched treatments come on the market, my friend.

      You deserve better! Stay strong.
       
      • Agree Agree x 7
      • Hug Hug x 1
    15. Nick47

      Nick47 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      No placebo, no blinding = no evidence!
       
      • Agree Agree x 2
      • Like Like x 1
    16. BrysonKingMe

      BrysonKingMe Member

      Response from my email explaining disappointment.

      Screenshot_20220918-090017_Gmail~2.jpg
       
      • Like Like x 1
      • Informative Informative x 1
Loading...

Share This Page