Setbacks...

Discussion in 'Support' started by DebInAustralia, Nov 18, 2014.

    1. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      My Anniversary is coming up this month - November 28. A year that day with t.

      One of those days when I am forced to ask myself 'is this as good as it gets?'

      Sure, I am back to working, sleeping without maskers, socialising a little, staying occupied.......

      But.......my life has changed.

      I don't want to be negative, but this is how I am feeling...flat!

      The people in my life with t aren't bothered by their t, so they don't get my level of distress......

      I feel alone in my experience with t today and just needed to tell someone.
       
      • Hug Hug x 3
      • Agree Agree x 1
    2. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Deb,

      Thanks for sharing your thoughts about your first T anniversary. I certainly understand how you're feeling, and I'm sure there are others here who do, as well. It's good to get back to the routines of life again, but I agree that those of us with tinnitus are forever changed by the experience. It is all about the degree of severity of our tinnitus, or at least our perception of it, that has left us feeling like life is not the same. But I have faith that it can be again -- we just have to keep thinking positive, and putting one foot in front of the other.

      Please don't feel alone, and know that there are others out there who really do understand how you feel. Happy "bittersweet" T anniversary!!

      Best wishes,
      Karen
       
      • Agree Agree x 1
    3. jonathanvg
      No Mood

      jonathanvg Member

      Tinnitus Since:
      07/2012
      since i got T something is lost in myself aswell im really bothered about it anymore
      do i be carefull for it getting worse sure i am
      but i live my life i dont let my T let my life live
       
      • Like Like x 1
    4. Gabrielle
      No Mood

      Gabrielle Member

      Location:
      Netherlands, Utrecht
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Unknown, maybe bad syringing
      Hi Debby... kind of 'funny' everyone remember the day T started.....

      I can imagine you're saying your life has changed. It will never be the same, I quess.
      I am 6,5 month's in. Mine began on May 3th.

      Afther six month's I gave up hope for cure, and stopped searching for the cause.
      Those two things has given me a little 'peace'.

      But it's hard... never sleep again in silence. Never wake up again in silence....
      Always sssssssssssssh and eeeeeeeeeeeeeeeee in my head.

      Although, i have one day in a week, that T is complete silence. Very strange.
      But i am happy with it, so i can 'hear' again what silence is.
      The next morning it's always back, and that's hard...

      But we have to go on... like you I also feel alone in T. Eventhough I've great family and partner.

      I am glad i discoverd this site. Then I know... i am not alone.
      So much people are suffering with T. I am not alone.

      And so are you Deb. We are all in the same boat.
      Feel us when you are feeling alone.
       
      • Like Like x 1
    5. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      Gabrielle is right, we are not alone. Not here and not when we have these connections.

      I hope it's a better year for you Deb. For all of us!
      Don't let T own the day. Easier said than done, but I try and listen through the noise and focus on the other sounds around me.

      As for the noise, well that's just the solar winds I can hear with some special friends on TT.

      Peace,
      Larry
       
      • Like Like x 1
    6. New Guy
      Doh

      New Guy Member Benefactor

      Tinnitus Since:
      3/18
      Cause of Tinnitus:
      Noise Induced Hearing Loss
      @DebInAustralia

      I looked up your posts after you posted on one of mine. I've got a few months until 1 yr. I hoped to see fading, and thought I did, but I suspect my body is getting used to it. I see life before t and life after and don't know if those two will ever meld together.

      I try to look at every day as a blessing. I try to remind myself it could have been worse. I'm still here and unless I'm in a quiet room I can ignore it for the most part.

      Has your attitude toward t changed since this post 4 years ago?
       
      • Hug Hug x 1
    7. AUTHOR
      AUTHOR
      DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      My tinnitus has backed off significantly (or I am just not as bothered by my orchestra). Not experiencing troublesome spikes anymore, that were getting in the way of my habituation.

      I've had a major distraction from tinnitus for over a year now. Lyme and probable pneumonia. That is my focus these days...

      X
       
      • Hug Hug x 1
    8. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
       
    9. New Guy
      Doh

      New Guy Member Benefactor

      Tinnitus Since:
      3/18
      Cause of Tinnitus:
      Noise Induced Hearing Loss
      @DebInAustralia

      Glad to hear your t has backed off sorry to hear about the new issues. If it's not one thing it's another. It's encouraging to know that in time we can move forward.

      Thanks for getting back to me.

      John
       

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