Seven Months Update. A Huge Relief. Don't Lose Hope.

Discussion in 'Success Stories' started by Rohit Saluja, Jul 9, 2018.

    1. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Sorry, but I can not carry on this conversation as I can feel it affects me very much and makes me sad :( I am having a rough day because T has been somewhat louder then usual today, I woke up and it was louder from that moment and I struggle only because of the volume being raised, I have experienced this before: T being louder for a day and me struggling more on that day because of this......on my rare "good" T days where it lowers to mild-mild/moderate level, I can forget it and I hardly struggle at all......Ever. So obviously volume directly affects how I deal with it, and it hurts me when someone states that volume does not matter, because it makes it seems like my suffering is not warranted.
       
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    2. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      I dont care what the researchers say! I know from my own experience what tinnitus is and how loud it can get. Please dont lecture me on tinnitus levels, you want to group mild, moderate, severe, catastrophic tinnitus together . There are different intensities of tinnitus as you can see, hek some people have mild tinnitus but more tones than I do. Listen to me very slowly, two of my friends have tinnitus and their T is nothing like mine is, absolutely nothing, they are shocked and even scared when I tell them what my T is like. Their T is mild and sounds like white noise and is very easily maskable, it dosent bother them unless they sit down and search for the sound. They were able to accomplish a lot in life and it dosent impact them as much, they can sleep without masking, read, watch tv, focus/concentrate. Mine is blasting all the time above peoples voices and the faucet running on maximum. Ask some users here what severe tinnitus is and what it can do. It is not perceived volume it is actual volume of the damn thing. T can INCREASE in actual volume, in perceived volume it can increase when stressed out, but here is where things get more interesting. I also was anxious and scared and had realllyyy bad stress when my T was mild, did I perceive the T as louder as a result? Nope. It didnt increase when I was stressed either, nor if I looked for it in my head, searched for it..it didnt go up, but that was in my case dont know about others.


      If you still dont believe me when I had Mild T my tinnitus would spike to Moderate, it would cause distress I didnt perceive it to be louder, it was just louder when I would do stupid stuff like go to a mall or café or restaurant. As soon as three days passed it would subside down to a mild tinnitus which was again tolerable. I didnt perceive my T as being louder, it simply increased in volume, in actual volume that is.
       
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    3. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      I get it. Mine has been around 85 dB since January and above 60 easily for three decades. Are you saying I have no idea what it's like? I just want to make sure that's what your saying. Because from what I read, it's that I somehow don't know what your going through... because if it's all about volume... I'd give anything to be partially masked by something in the 60dBs.
       
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    4. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      and this is why we need a treatment my dear friend. You also have to realize that not everyone has the mental strength to deal with T for 3 decades. I would have 100% failed college with this tinnitus no doubt about it.
      I am sorry for asking this but how does your audiogram look like?
       
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    5. robHing

      robHing Member Benefactor

      Location:
      USA, NJ
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Unknown
      30 years are very long !
      You are really a T hero.
      Please hang in there and God bless !
       
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    6. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      I just want you to feel better and to not give up @dpdx. Its not strength. I had the good fortune of being very young and not knowing any different. I have decent hearing. A little notch from 4-6khz down to 15 in one ear and 20 in the other. Which isn't surprising and isn't the reason for my T. I had a botched eustacian tube surgery when I was younger and then when I was 18 I had my ex best friend fire a pistol a foot from head so I'd have tinnitus worse. But we always shot guns without protection. He also has it. One of those people that thinks louder T is just a sign of being a hard rocker. Screw him. My recent spike is because of fluid build up and dislocated TMJ.
       
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    7. New Guy
      Doh

      New Guy Member Benefactor

      Tinnitus Since:
      3/18
      Cause of Tinnitus:
      Noise Induced Hearing Loss
      Such great news! :woot:
       
    8. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      Can T get worse without
      So tinnitus can increase without causing further damage?
       
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    9. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      Can T get worse without causing more damage?
       
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    10. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      What exactly do you mean?
       
    11. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      It is because for that... we have the technology!
       
    12. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      can t get worse without causing further cochlea damage
       
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    13. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Sure... much of T occurs for other reasons. But it can also lower regardless if the cochlea heals or not.
       
    14. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      I hope my T lowers to mild and I am moving on. I live for the day when I will write a sucess story on here. I still will be fighting for a cure though.
       
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    15. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Never quit fighting!
       
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    16. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      There is only so much fighting before you give up.
       
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    17. AUTHOR
      AUTHOR
      Rohit Saluja
      Alienated

      Rohit Saluja Member

      Location:
      India
      Tinnitus Since:
      2 weeks
      Cause of Tinnitus:
      Noise Induced and sinus infection
      How many hours of sleep do you get? Do you take any med for sleep?
       
    18. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      4-5 hours max, sometimes I sleep 0 hours.
       
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    19. Striveon

      Striveon Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Unknown
      Hi, did you have hearing loss due to the noise induce? Are you taking any medications? Do you have any tips on how to feel mentally better? Thank you. Btw, I am glad you are doing better, it gives us some hope..
       
    20. AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home
      The answer is yes because Tinnitus is now thought to be a dysfunction of our brain adapting to the change in input due to the damage (in many cases). The cochlear damage initiates the problem, but the tinnitus is in our brain and no longer generating from the ear. (http://discovermagazine.com/2010/oct/26-ringing-in-the-ears-goes-much-deeper) This also brings new hope that addressing the issue in the brain, rather than the impossible to reach cochlea, will bring about a cure or, at least, a much better treatment.
       
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    21. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      I want you to develop 5/7 new tones in the first four years plus severe hyperacusis where pain starts at the threshold of hearing and where the pain is so bad it leaves you mostly bedridden at the beginning.

      Yeah and I had to drop out of college, have been home bound for a year and can’t work, travel or do anything really.

      Seriously your tinnitus doesn’t sound that bad (loudness doesn't matter, right?). Seems like it was at least pretty stable for years and apparently you can still do things without severe spikes all the time.
       
      Last edited: Aug 31, 2018
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    22. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      Oh, really?

       
      Last edited: Aug 31, 2018
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    23. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Unfortunately I analyzed the raw data for TT and while they all matter, they are not correlated.

      So yes, o really.

      I'm out TT.

      Peace.
       
    24. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      People can be heavily distressed by mild and loud tinnitus, people commit suicide because of mild and severe tinnitus, but what most people (at least on TT) seem to have in common when they continue to struggle for years is loud, intrusive and/or unstable tinnitus. At least on here, it's rare to see someone with mild tinnitus continue to struggle for years and not to habituate. Most distraught members are either new to tinnitus or are going through a spike.
      And many people with severe tinnitus are limited by their tinnitus. They can't attend certain events anymore, had to give up their jobs or switch careers, can't do certain things anymore, struggle to meet up with friends because every place is too loud, can't concentrate as well anymore and so on.

      You usually don't see stories like "I have had mild tinnitus for years and it's ruining my life" but you can see stories such as "My tinnitus continues to get worse / I developed a new tone / It's getting louder / It's spiking constantly".
       
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    25. IvanRus

      IvanRus Member

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ototoxicity
      Do you exclude all hope in the future related to the regeneration of hair cells, the apparatus of Professor Susan or the University of Minnesota, the medicine of Professor Tsunopolus?
      I also did not have time to taste the grams of this life.
       
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    26. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      If volume does not matter, I say every T researcher should just pack up now! Go home, leave the research, forget all about it!.......Cause why should we get a treatment or cure if louness does not matter and tinnitus distress is caused by personality traits alone. Better we just get TRT or CBT and "learn to live with it". And those who commit suicide because of T? well......too bad......they just couldnt learn how to not be distressed by their T:(

      (FYI: If any reseachers are reading this. We are many people who know loudness/amount of tones is ALL that matters so we very much want you to continue the awesome work you do, to find us something that can give actual relief)
       
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    27. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      I dont know if I can wait that long, my T Is really bad.
       
      Last edited: Aug 31, 2018
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    28. AUTHOR
      AUTHOR
      Rohit Saluja
      Alienated

      Rohit Saluja Member

      Location:
      India
      Tinnitus Since:
      2 weeks
      Cause of Tinnitus:
      Noise Induced and sinus infection
      Update... my tinnitus has been very low. I can only hear it, in complete silence, in closed car, at night while sleep.

      but if I have stress then I can hear it in normal room sound.

      I have also been to a loud party which gives me a spike of one week, now i am not going to do any crazy mistakes for the rest my life, I still hope it fades to zero like jjflyman's case...
       
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    29. AUTHOR
      AUTHOR
      Rohit Saluja
      Alienated

      Rohit Saluja Member

      Location:
      India
      Tinnitus Since:
      2 weeks
      Cause of Tinnitus:
      Noise Induced and sinus infection
      I am sitting in my office and now I cannot hear my tinnitus at all, but the tone has changed a bit, I have to habituate to that... I can only hear that the tone at night sleep time.
       
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    30. AUTHOR
      AUTHOR
      Rohit Saluja
      Alienated

      Rohit Saluja Member

      Location:
      India
      Tinnitus Since:
      2 weeks
      Cause of Tinnitus:
      Noise Induced and sinus infection
      when my hyperacusis increases my tinnitus goes down, and vice versa
       
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