Still Really Annoyed With My Doctor!

Discussion in 'Support' started by geg1992, Mar 23, 2015.

tinnitus forum
    1. geg1992
      English

      geg1992 Member

      Location:
      England
      Tinnitus Since:
      05/12/2014
      Cause of Tinnitus:
      Noise exposure + Antibiotics
      It sounds silly, but I had a sinus infection before a gig and was given anti biotics, which end with the mycin.

      I told him I was going to a gig and I believe the combination of these two caused my T. I continued taking the course with T and this made it so much worse. I know I can't blame him as I probably would have got T eventually, but do they not understand medications being ototoxic?

      I guess I need to stop blaming my self and the doctor and just get over it but it's just frustrating, I shouldn't have gone to the doctors!
       
    2. geg1992
      English

      geg1992 Member

      Location:
      England
      Tinnitus Since:
      05/12/2014
      Cause of Tinnitus:
      Noise exposure + Antibiotics
      Maybe it wasn't mycin, I'll try to find out.
       
    3. DebInAustralia

      DebInAustralia Member Benefactor Team Research

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      I understand your frustration.

      I believe I have tinnitus; along with other health conditions as a result of a fluoroquinolone.

      I was initially angry at my dr for not looking at alternative, safer options before proceeding to use a known ototoxic medication.

      I have thought 'if only I had questioned my treatment' many times............but it doesn't get me anywhere emotionally...it just leads me to more despair, anguish, and frustration.........so I try not to focus on the negative....and look for solutions and moving forward............X
       
      • Like Like x 1
    4. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      if oral use of mycin antibiotics has anything to do with tinnitus, and if use of mycin antibiotics during noise exposure is associated with problems, then those are two things that are true but for which there is no research and no prescribing guidelines. Meanwhile, thousands of people take these drugs every week without any problems.

      Your doctor probably did the best he knew how for you, and would be very upset if he thought he'd do any of his patients serious harm.

      edit: note that mycin antibiotics are not the same as micin antibiotics (Aminoglycosides) - micin drugs are definitely known to be ototoxic. Mycin drugs are not, and are among the most commonly used drugs in the world.
       
      • Agree Agree x 1
      • Informative Informative x 1
    5. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      I must agree with @linearb -- doctors aren't infallible, although I agree that some need to take the ototoxic issue more seriously than they do. They also need to be better educated about tinnitus. I had one insist tinnitus and anxiety aren't related - while pretty much everyone agrees that T can spark serious reactions from the automatic nervous system.

      More important: I think its easy to get caught up in trying to figure out what caused our tinnitus, beating ourselves up about not being proactive, etc. Many of us will never know exactly what brought on our tinnitus. Plus it may be a mix of things, as @DebInAustralia. What I have learned after almost two years of constant tinnitus is that at the end of the day, pinpointing a cause really matter in most cases. Fretting about it just makes you more anxious. And by in large, there is no cure or treatment regardless of the cause. Best to leave behind regret, remorse and anger, and move on to building coping skills and regaining your life.
       
      • Agree Agree x 1
    6. James P

      James P Member

      Location:
      Halifax, Canada
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Acoustic Trauma (Club)
      I agree knowing the cause doesn't help much if it still can't be fixed. I know my cause but it doesn't bring me any comfort, more annoyance than anything since I know I could have easily avoided it. I can totally blame my sister for it too since I never had any interest in loud music.

      At the end of it all, nothing I do or think will correct my situation. Only thing I can do, at a painfully slow pace, is try to learn how to live and enjoy life again.
       
      • Agree Agree x 1
    7. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Nice picture James! I <3 Final Fantasy!
       
    8. James P

      James P Member

      Location:
      Halifax, Canada
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Acoustic Trauma (Club)
      Thanks :> Honestly never played final fantasy besides 7 and the start of tactics for Gameboy Advance, but I just love the character design of the black mage. Plus, I read a bunch of 8-bit theater and he was fun to identify with.
       
    9. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Fair enough! Do you like other games? Bloodborne?
       
    10. James P

      James P Member

      Location:
      Halifax, Canada
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Acoustic Trauma (Club)
      PC gamer here, still waiting for news of the port!
       
      • Agree Agree x 1
    11. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      For Bloodborne? It's published by Sony, so it won't ever get a pc release.
       
    12. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      • Like Like x 1
    13. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
    14. Most docs I've come across are completely indifferent to our suffering and certainly won't admit their ignorance on drugs causing tinnitus.
       
      • Agree Agree x 3
    15. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Plus to be honest, it's just clickbait saying it's coming to pc...People on PC would buy a PS4, if they really wanted Bloodborne, thus it's a system seller...Hardly think Sony would release their game on PC, if that were true, why isn't The last of us, infamous, god of war or killzone on pc?
       
    16. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Hey, Lynn! Did you ask Viking about Keppra?
       
    17. Not yet @Danny Boy

      @Viking what is Keppra?

      also my doc just thinks all.I have is anxiety so I doubt she will prescribe it
       
    18. MattK

      MattK Member

      Tinnitus Since:
      2/13/2014
      Well the way I look at it, it's your body and you're not obligated to take anything your doc prescribes for you. If you have a suspicion something can cause T or has caused it for you then don't take it. If your doc doesnt like it, tough.
       
      • Agree Agree x 1
    19. NiNyu

      NiNyu Member

      Tinnitus Since:
      29/12/2014
      Cause of Tinnitus:
      barotrauma? stress?
      Most doctors are plain stupid. I went to hospital with my SSHL and they told me it's just an otitis media and prescribed me an ototoxic antibiotic. The leaflet stated may cause T. Again, how much brain do you need to become an otolaryngologist? By now I've learned more about the ear than they know. It's ridiculous!

      @James P , you might be lucky and your T will solve eventually. I've a felling..
       
    20. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I see. And Tobramycin, for instance...? Neomycin...?
       
    21. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I see. And this?

      http://www.ncbi.nlm.nih.gov/pubmed/7035098

      Perhaps you should also have a read of this standard document (attached).
       

      Attached Files:

    22. Viking
      No Mood

      Viking Member Benefactor

      Location:
      Italia
      aren't you the girl who has solved all his problems with trt mask?
       
    23. You mean "her" and pardon? No. Not me.
       
      • Funny Funny x 1
    24. So Keppra is?????
       
    25. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      Interesting; I did not realize that some of the aminoglycosides do get the mycin suffix, so I am wrong about that. That makes the suffix itself seem pretty worthless as far as evaluating ear risks.

      Geg, do you know which drug it was? Was it a pill, or drops?

      An unfortunate reality is that untreated sinus/ear infections can also cause T. I'm generally very wary of taking antibiotics, but the wrong kind of ear/sinus problem might make me change my mind in a hurry. Take a pill, don't take a pill - it's always a crapshoot to some extent.
       
    26. Viking
      No Mood

      Viking Member Benefactor

      Location:
      Italia
      Keppra is a safer antiseizure... why do you want explanation about it?
       
    27. Someone told me it cured your hyperacusis. Has it helped your tinnitus too?
      I was told to ask you about it.

      How did you discover this drug would be helpful?
       
    28. Well I suppose due to your rudeness I must have offended you at some point @Viking ...anyways found your thread, no explanation needed!
       
    29. Viking
      No Mood

      Viking Member Benefactor

      Location:
      Italia
      ????
      well..... you are doing all alone and it is not a my problem!

      I haven't discovered it but was an advice of my neurologist. I was unable to take Trobalt due to excessive and serious side effect then, after various and long attempt with antiseizures drugs, he switch me on Keppra and after 15 days my hyperacusys disappear and i'm still H free by January. Anyway there aren't scientific evidences who suggest that Keppra can be useful in H. Probably i was "cured" naturally exactly like the single user who think that he was cured by trobalt.....but he is a single.... no others are cured by trobalt. Then the same for Keppra.

      If you want others info there is a useful thread here: https://www.tinnitustalk.com/thread...er-possible-potassium-channel-modulator.7295/

      About rudeness... check your neurologist!

      Best wishes
       

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