Strange Hearing Distortion/Dysacusis?

Discussion in 'Support' started by Nathan McAlum, Jun 7, 2019.

    1. AUTHOR
      AUTHOR
      Nathan McAlum
      Hurting

      Nathan McAlum Member

      Location:
      TN, USA
      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Unknown. Noise maybe?
      Yeah, I had it pretty bad for the first few weeks, it went away for a few months, but it seem to come back worse than ever, hope it goes away soon.
       
    2. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      Same thing for me, it got better, then a bit worse, then better again and so on. Right now it is A LOT better than last year, i rarely ever notice something.
       
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    3. AUTHOR
      AUTHOR
      Nathan McAlum
      Hurting

      Nathan McAlum Member

      Location:
      TN, USA
      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Unknown. Noise maybe?
      That's great to hear, glad to see that you're doing better!
       
      • Like Like x 1
    4. Allan Mcmillan

      Allan Mcmillan Member

      Tinnitus Since:
      April 30 2019
      Cause of Tinnitus:
      Acoustic shock from playing guitar with headphones
      I still have dysacusis but I've noticed that it's fluctuating. I had a couple days since onset where it was barely noticeable. I heard from an LLLT expert that dysacusis usually resolves itself overtime. I'm currently doing home laser therapy and I do feel as if it could help out in the long run.
       
    5. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Location:
      Scotland
      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      @JohnAdams I get this too and have read it’s called ‘exploding head’ syndrome!
       
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    6. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Thankfully I haven't experienced this lately.
       
    7. Allan Mcmillan

      Allan Mcmillan Member

      Tinnitus Since:
      April 30 2019
      Cause of Tinnitus:
      Acoustic shock from playing guitar with headphones
      Mines got alot better and then significantly worse. I'm now dealing with earpain, mild hyperacusis, worse distortions and louder tinnitus. Crept up over days and honestly I'm not even sure what to do anymore. I'm hoping it's a normal fluctuation but I'm 4 months in and I don't think it'll get better if it keeps worsening.
       
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    8. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      I had these fluctuations a lot in the first year, I still have them but not as often. Right now I also have a bit of a spike but just with a bit more noticable tinniuts, nothing else. At 4 months my tinnitus was changing all the time, so I would give it one or two years and hope for it to settle.
       
    9. Vukis

      Vukis Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      MRI or ototoxic drugs
      And how is your situation with dysacusis, it gone, or subsided?
       
    10. Deamon22

      Deamon22 Member Podcast Patron Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      It was mostly gone a few months after onset, first three months were the worst. Now I just notice it a bit when I have some kind of spike. But all the “whistling“ over car noises, rain, rivers etc. is gone.
       
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    11. mylesm

      mylesm Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      unknown
      Man! This thread has pulled me out of a very lonely, scary hole. I have the exact same thing! Whenever a car drives past, whenever I hear the fridge or the tap run I get a morse code distortion.
      I was already dealing with anxiety from the tinnitus and hypercusis and this one has just been piled on top. I thought it was game over for me, as after weeks of reading the forum I hadn't yet stumbled upon this condition.
      Anyone else getting random ear pain? Im not sure if its related to noise exposure as Im getting it randomly throughout the day while sitting on the couch?
       
    12. Hammers

      Hammers Member

      Tinnitus Since:
      04/19
      Cause of Tinnitus:
      Acoustic Trauma: Too close to fireworks with no protection.
      Following a week of loud noise at work I've come down with slight hyperacusis and distorted noise that sounds like whistling. I can't pin down the affected frequency though.
       
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    13. astaff14

      astaff14 Member

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Earwax/Botched Irrigation/Noise Trauma
      I’ve been getting this! I had a noise trauma about 2.5 weeks ago and while my regular ringing is back down to baseline I now get a siren/alarm sounding distortion over a lot of background noises. Tends to go away when I’m not thinking about it I think but it’s definitely reactive! Hope everyone’s doing okay, glad I found this thread as it seems to resolve a bit over time.
       
    14. AlbertJ

      AlbertJ Member Benefactor

      Location:
      Philippines
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Otitis Media
      Hello Everyone,
      I started experiencing the same about more than a week now.
      At first, I heard a different sound on top of running water and I thought it was the exhaust fan. Then the night after, I noticed that my ceiling fan in my room was producing this whistling siren-like sound. Then I realized the sound of AC, television, inside the car, and anything that is loud and at a certain frequency triggers this distortion!
      I was, or still am, downright scared.
      I have bilateral tinnitus that I acquired last year and some form of hyperacusis.
      I am deeply, deeply hoping this would subside.
       
    15. HootOwl

      HootOwl Member Podcast Patron Benefactor Advocate

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      I’m convinced that this distortion that we have here in this thread is a form of synaptopathy (or maybe I’m more desperate than anything to believe that because there are treatments in the pipeline).

      I think if we can restore the synapses, this regenerating the nerve fibers from SGNs, the distortion will resolve since the signal will no longer be dysfunctional.

      The question is if the DCN can “reboot” once it receives the correct signal, and stop the hyperactivity in the fusiform cells.

      Fingers crossed because I can’t live with all this distortion around me...
       
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    16. HootOwl

      HootOwl Member Podcast Patron Benefactor Advocate

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      Does anyone else hear different distortions depending on the source of sound? I feel like I’m the only one who has that...Like the distortion in the fan will be different than the one in traffic, which is different from the one in water.
       
    17. Hammers

      Hammers Member

      Tinnitus Since:
      04/19
      Cause of Tinnitus:
      Acoustic Trauma: Too close to fireworks with no protection.
      I have different distortions from different sources too. One of them is am ear splitting whistle and it drives me nuts.
       
    18. AlbertJ

      AlbertJ Member Benefactor

      Location:
      Philippines
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Otitis Media
      Running water = Has a slight low tone
      Fan = Has a low siren-like sound
      White noise = Whistle
      Car AC = Whistle
      Traffic = Siren-like
      Machines = Whistle

      It is also strange that I mostly hear the distortion if I am at a distance from the sound source.
       
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    19. Nate52

      Nate52 Member

      Location:
      Midwest
      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Unknown
      My ear responds to the noise sources you listed with a ringing sound. If I enter a quiet room the ringing stops.
       
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    20. Hammers

      Hammers Member

      Tinnitus Since:
      04/19
      Cause of Tinnitus:
      Acoustic Trauma: Too close to fireworks with no protection.
      I get it over those same sources, except unfortunately certain voices are having it now too...
       
    21. nicole76
      Depressed

      nicole76 Member

      Location:
      Chicago, IL
      Tinnitus Since:
      07/17 / Worsened 04/19
      Cause of Tinnitus:
      One-Sided Hearing Loss (of unknown origin)
      Yes! I thought I was the only one. If I'm right next to the source there is little to no distortion but is it's further away the distortion is much more noticeable. I hate it more than the tinnitus.
       
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    22. AlbertJ

      AlbertJ Member Benefactor

      Location:
      Philippines
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Otitis Media
      I guess this has something to do with the eardrum.

      I consulted my ENT doctor a few days ago. He found that my left eardrum is a bit inflammed and retracted. Possibly because of eustachian tube dysfunction brought about by an allergy or a cold. I am hoping that this would subside.
       
    23. Hammers

      Hammers Member

      Tinnitus Since:
      04/19
      Cause of Tinnitus:
      Acoustic Trauma: Too close to fireworks with no protection.
      IMO I think this is caused by loudness hyperacusis of certain frequencies. About the same time the distortion started I found I could (and still can) hear lightbulbs buzz. Not like a barely audible buzz either, I mean like a the level of a refrigerator hum. Wacky stuff bro.
       
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    24. AlbertJ

      AlbertJ Member Benefactor

      Location:
      Philippines
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Otitis Media
      Hello @Hammers.
      I now mostly hear the whistling from distant and/or loud vibrating sounds. When I am inside the car and hear the traffic, what I hear is a siren played on post-apocalyptic films. :)
      Some low vibrating sounds "sound" like water running from pipes. Crazy indeed.
       
    25. HootOwl

      HootOwl Member Podcast Patron Benefactor Advocate

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      @Gabriel

      Hey there, what you described with the frequency distortion is basically exactly what I have! I did a frequency sweep and there’s a substantial amount of damage around 1k-1.5k hz. And some sort of buzzing that attaches itself to low frequencies (130-200 hz). What’s odd is if I turn up the tone more loudly the distortion disappears and it becomes normal again. Which makes me think synaptic damage.

      Did things ever get better for you? A lot of music I’ve now come to realize sounds completely distorted and wrong as a result, and it’s completely destroyed me. Other songs completely normal which is I’m assuming because the tones in those songs remained undamaged.

      I’m one month in and there’s been no improvement.

      Also the ocean, traffic, and road noise inside the car has kind of this white noise layer on top of them. Im not sure if this is just distortion or hyperacusis because it makes everything sound so loud to my ears. I can’t stand the heater now because it’s like walking next to a lawn mower - it really does sound that much louder. Or maybe the distorted frequencies are causing this extra sound layer to appear?

      And then there’s my 2 reactive tones (the low siren sound and the high pitched whistle that like to respond to pretty much everything)...god my ears are a mess.
       
    26. Nate52

      Nate52 Member

      Location:
      Midwest
      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Unknown
      I think have similar symptoms. My one ear responds to high pitched sounds with a reactive whistle/ring. I do ok in a quiet room. Unfortunately, the world is a noisy place. If anyone has any treatment or coping ideas it would be appreciated.
       
    27. Phat Tuna

      Phat Tuna Member

      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      Hygienist
      I have the same thing going on. It seems to be highly related to hyperacusis as I noticed them at the same time. There was a period of 2-3 days 3 weeks ago when both seemed much better (I seemed much less sensitive to everyday sounds and I was noticing the sound distortion much less). But then I had an Audiologist appointment I had scheduled a while back. She did an LDL test and she let things get too loud. I would say it's uncomfortable and she would still raise the volume. Both the H and this sound distortion and reactive T instantly got worse and continued to get worse over a period of a week. I have gotten a bit better since then, but not much. Currently, I think I have a cold coming on, which is not helping so I think I will have to wait for this cold to pass before I start to improve again. It's all very weird, but yeah mine seems very much related to hyperacusis.

      One thing that is weird. I also have had this whistling sound in my ear(s) that others have described. It actually started in my right ear. Then moved to my left, then was in both ears for a while, now it is mostly just in my left. I notice it the most when lying in bed. And it seems to react to external sound. At one point even the very low volume of my girlfriend breathing would make it react.

      I also have electric/scary sounding morse code sound in my left ear. I only hear it later in the day though and do not hear it in the morning. Back when I only had normal T I had a high pitched hiss in both ears that wasn't too bad and a morse code beeping in my left that I could always hear if I covered my ears but would only be able to hear uncovered when I was having a bad spike (90% of all my spikes were always from some sort of noise exposure). I do not have that morse code tone anymore. either that or it has evolved into this scary electric sound.

      My original T is from getting my teeth cleaned for first time using via the ultrasonic scaler 9 months ago. And this H, reactive T, and sound distortion seems to originate to getting my teeth cleaned a second time via ultrasonic scaler. I did not realize after the first time that the scaler was the problem. I play, well used to play :'(, in a band so everyone attributed my T to the music. I'm sure being a musician made me more vulnerable, but I'm 99% sure the dentist/hygienist are to blame.

      Also, I noticed when I take Ativan (not often, like twice a week at lowest dose) the symptoms of H and noise distortion are reduced by like 70%. I also take seroquel at night for sleep because when this new H sound distortion reactive T stuff started, my sleep went to complete shit.
       
    28. Gabriel
      Balanced

      Gabriel Member

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      I focused on verifying if I had tinnitus
      Hey, I still have distortion over specific frequencies. Like you I did a sweep and some frequencies, like 1816 Hz for example, are distorted, but like you, only at a very low level! If I increase the loudness level, it comes back normal.

      I think we both did the same experiment and had the same results. My theory is that it's a specific hearing loss, and at a low loudness level only, few hair cells, the ones damaged, are transmitting, but at higher sound levels than the other hair cells that are involved and so the brain decides to hear the good tone, not the distorted one.

      It got better in the sense that I don't hear any distortion anymore.

      What helped me: magnesium and vitamin B + sleeping next to my kitchen which makes a lot of weird noise...
       
    29. Gabriel
      Balanced

      Gabriel Member

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      I focused on verifying if I had tinnitus
      See above, try magnesium + vitamin B. And time heals.
       
    30. Nate52

      Nate52 Member

      Location:
      Midwest
      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Unknown
      What would be a good dosage for the magnesium and b vitamin? Do you recommend sleeping in silence or using white or pink noise?
       

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