Suggestions to Researchers From Tinnitus Sufferers

Discussion in 'Research News' started by wizman, Jan 1, 2015.

tinnitus forum
    1. wizman

      wizman Member

      Location:
      Paris (france)
      Tinnitus Since:
      07/1987
      Cause of Tinnitus:
      fireworks
      Anyone have suggestions or ideas to submit to researchers?
      (There are not idiot ideas)

      Here is mine for example:
      Why not a partial cochlear implant for only the missing frequencies that the brain compensates?
       
    2. Valentin

      Valentin Member

      Location:
      Thailand
      Tinnitus Since:
      17/08/2013
      because a cochlear implant does destroy all haircells.
       
    3. dan
      Chatty

      dan Member

      Tinnitus Since:
      06/2011
      Ok, here is my invention idea.
      Design a hearing aid that amplifies 8-20khz and remap the brain back to normal. If the hearing aid is too bulky (mechanical limitations) then just carry it with you in a backpack like an oxygen tank. Then once the tinnitus is gone (brain rewired back to normal), s l o w l y wean yourself off the machine, as to allow the brain to adjust. Most tinnitus begins because the brain did not have time to adjust - sudden hearing loss.
       
      • Like Like x 2
    4. sanjay doodani
      Amused

      sanjay doodani Member Benefactor

      Location:
      New Delhi India
      Tinnitus Since:
      July 2014
      Cause of Tinnitus:
      Suspect vit d deffeiciency stress high bp ,prediabetic, high stress
      I asked the same question to Starkey people there is a physics of hearing which limits this. I will study this further there is a hearing aid using electrical simulation
       
      • Like Like x 1
      • Helpful Helpful x 1
    5. wizman

      wizman Member

      Location:
      Paris (france)
      Tinnitus Since:
      07/1987
      Cause of Tinnitus:
      fireworks
      VulgariS suggestion:
      Lidocaine on thé brain firing cells (of thé rats)
       
      • Hug Hug x 1
    6. wizman

      wizman Member

      Location:
      Paris (france)
      Tinnitus Since:
      07/1987
      Cause of Tinnitus:
      fireworks
      Suggestions:
      -Cord Blood stem cells inside thé choclea

      -Cholea graft

      -cocaïne

      -nano electrodes on every dead haircell (not réally Science fiction)
       
    7. skoupidis

      skoupidis Member

      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Acoustic trauma or mvc
      Easy: Just find a med company to put to practice your findings in human beings. We are tired of reading any more breakthroughs in mice...
       
      • Genius Genius x 1
    8. wizman

      wizman Member

      Location:
      Paris (france)
      Tinnitus Since:
      07/1987
      Cause of Tinnitus:
      fireworks
      I have heard about a 40_year t supressed accidentaly after à stroke

      Suggestion =
      Simulate a artificial stroke but where?
       
    9. PhilB

      PhilB Member Benefactor

      Location:
      Manchester, UK
      Tinnitus Since:
      12/2013
      I instinctively agree about the possibility of a link between T and sudden hearing loss of the type that might be associated with a serious acoustic trauma or head trauma. It seems logical that sudden hearing loss would be more likely to induce T than gradual hearing loss. I just wondered if the link has been scientifically proven. If not, then that would be my suggestion for further research.

      Even if the link is proven, I am still not sure about the practicality of using hearing aids to amplify the higher frequencies in the way that @dan is suggesting. I am not necessarily saying that he is wrong about this. I just don't know enough about the subject to be sure that he is right.
       
    10. newfie
      Inspired

      newfie Member

      Location:
      Canada
      Tinnitus Since:
      10/2007
      Cause of Tinnitus:
      Acoustic trauma (gun)
      Dan's idea that tinnitus is associated with sudden hearing loss sounds like a good theory to me. On Oct/5/2007 I was tinnitus/distorted hearing free, and on Oct/6/2007 I had tinnitus and distorted hearing. Could even tell you the particular shooting event that caused it. It must be noted however that plenty of folks who aged normally and avoided acoustic trauma also have bad tinnitus. Bottom line is that when hair-cells die, synapses cry. We get tinnitus because the brain searches for the signal that it lost. Or maybe We get tinnitus because when the hair-cell breaks off/dies the signal is stuck on. We don't know. Nobody knows.

      We have hearing aids that administer electrical currents to the cochea; cochlear implants do this. In some cases they cured tinnitus from chronic sufferers, and in others they caused it.

      Honestly I think the best things one can to do help researchers is raise awareness regarding tinnitus and provide funding for both hearing restoration research and tinnitus pathology research.
       
      • Like Like x 1
    11. Sound Wave
      Curious

      Sound Wave Member Benefactor Team Tech

      Location:
      Finland
      Tinnitus Since:
      12/2013
      Cause of Tinnitus:
      Probably headphones
      I was going to post this as an own thread, but lets start here first...

      Are there any Tinnitus researchers active on this board? There clearly should be.
       
      • Agree Agree x 2
    12. Viktor Salvatore
      Smug

      Viktor Salvatore Member

      Location:
      Las Vegas, Nevada
      Tinnitus Since:
      7-5-11
      Ladie and Gentleman sufferers of Tinnitus. As i am one very bad sufferer. Medical research community. Thank you for all your doing, but you unfortunately do not do enough. By today's date you should have already found something in the way of medical that can help us by reducing the loudness of the Tinnitus if not a cure. You have and continue to fail us sufferers as you have produced zero, "0". Nothing, not even a little something to help us get through the day or night or both and give us hope. All we get from you is mice that you are having luck with, or new this or that that produced something in 7 of 10. Garbage. It is sad that you researchers are so behind and continue to eat away the years sucking up research funding and yet producing no results.

      Sad for all of us that we are here and cannot rely on you researchers.
       
      • Like Like x 1
      • Agree Agree x 1
    13. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Map the dead haircells and corresponding damage /frequencies precisely.

      Then feed these frequencies via an hearing apparatus into the ear and manipulate the phase of each frequency to effectively cancel out the tinnitus.
       
      • Like Like x 3
    14. sanjay doodani
      Amused

      sanjay doodani Member Benefactor

      Location:
      New Delhi India
      Tinnitus Since:
      July 2014
      Cause of Tinnitus:
      Suspect vit d deffeiciency stress high bp ,prediabetic, high stress
      Cyclicity of tinnitus offers the hope study the patients in low and high with all correlatin factors
       
    15. wizman

      wizman Member

      Location:
      Paris (france)
      Tinnitus Since:
      07/1987
      Cause of Tinnitus:
      fireworks
      Effectively How is it man can décode human génome and can not map haircells ?
       
    16. Sjoerd

      Sjoerd Member

      Tinnitus Since:
      09-2013
      This does not work. Simply stimulating a certain sense does not drive change in the brain. The brain needs to pay attention in order to drive change. But your idea is not new. Retuning the brain is exactly what they aim to do with VNS (with results in rats and in humans).

      Scientific Explanation of VNS Paired...


      They should expand this study to research if tVNS devices could have the same effect.
       
    17. Sjoerd

      Sjoerd Member

      Tinnitus Since:
      09-2013
      Most people do not like to have their brains cut upon to have a look. Or suffer from the severe consequence of bad/experimental medication. They use animals for a reason.

      It is not really research if you know what the answer is.
       
    18. nills
      Barefooter

      nills Member Benefactor

      Location:
      Belgium
      Tinnitus Since:
      11/2009
      Cause of Tinnitus:
      acoustic trauma
      researcher need to get together and push for changing laws to how long it should take before a patient can be helped ... time is everything here and that is what they are taking away from us everyday!
       
      • Agree Agree x 2
    19. Beste
      Disappointed

      Beste Member

      Tinnitus Since:
      02/16/2016
      Cause of Tinnitus:
      Benzo/Clonazepam, Stress
      Amazing treat. But do we have any tinnitus expert on the forum lately? @Markku? I have been thinking about it lately and maybe we can share our ideas and experiences from our suffering with them. Or maybe we can start a campaign to reach out some labs like SciFluor via mails to make raising awareness about T?

      God I do want to do something because I'm at the edge of my suffering and there is still so little studying going on about T.

      And here is my suggestion to reseachers:

      Please go and work on retigabine which is something science world forgot to search about it for years. We already had some reduction in our Ts but it is so little or temporary.
       

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