Support Dr. Rauschecker's Tinnitus Research — a Man Who Really Means to Make a Difference

Discussion in 'Awareness & Fundraising' started by dfl, Oct 7, 2018.

    1. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      The vast majority of tinnitus cases are from hearing loss from some sort of damage, which has been largely shown experimentally to be potentially healable. All of this "trying to figure out exactly how tinnitus works" is nonsense, and will only lead to some drug for tinnitus that will have 10,000 side effects. If bimodal stimulation doesn't work then why is there a product coming out for that? No research dollars need to be going towards that either because they've apparently already figured that one out.

      All research dollars for tinnitus need to be going towards getting the damaged parts of the human auditory system healed, and getting treatments to sufferers ASAP.

      Everyone that so much as voices an opinion otherwise are just pushing against the cure and prolonging human suffering.
       
      • Like Like x 1
      • Agree Agree x 1
    2. ringinghours

      ringinghours Member

      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      unknown
      I disagree with your post. A drug for tinnitus would be a very good thing, even if it has bad side effects.
       
    3. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      pic1.PNG
       
      Last edited: May 7, 2019
      • Agree Agree x 3
    4. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      And........
       
    5. just1morething
      Benevolent

      just1morething Member Benefactor

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      barotrauma, noise exposure, TMJ, neck?
      I think Dr. Rauschecker is just trying to figure out why some people with hearing loss get tinnitus and others don't. Just like some of us get a random quiet day for no reason. I don't know if his gating mechanism theory will be fruitful and get any results though, that's the problem.

      Bad side effects from drugs is a big problem though. Nortriptyline is sometimes prescribed for tinnitus, but the dry mouth from it is as bad as my tinnitus IMO.
       
      Last edited: May 7, 2019
      • Agree Agree x 1
    6. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
    7. ringinghours

      ringinghours Member

      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      unknown
      There is no drug on the market for tinnitus so if there was a drug on the market it would be very good for me and a lot of other tinnitus sufferers.
       
    8. just1morething
      Benevolent

      just1morething Member Benefactor

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      barotrauma, noise exposure, TMJ, neck?
      Autifony's drug was supposed to be the one that helped tinnitus sufferer's but it failed miserably. It seems most of the potential treatments are IT type at the moment.
       
      • Agree Agree x 2
      • Informative Informative x 1
    9. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      O rly...
       
    10. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Absolutist thinking can be dangerous. I choose to keep advocating for research for a cure for everyone no matter the cause. I'm glad there is currently quite a bit of private investment into regeneration research so you should be taken care of.
       
      • Like Like x 2
    11. ringinghours

      ringinghours Member

      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      unknown
      Curing the hearing loss is a logical thing to focus on in order to cure the tinnitus, but what if there were a way to stop the tinnitus by a drug that alters the brain in a specific way, why is this so unfeasible to imagine.
       
    12. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Any drug to mask tinnitus is going to adversely affect the entire nervous system.
       
    13. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      #1 We have absolutely no way of knowing that. (i.e. I believe Thanos is zeroing in on specific ion channels related to tinnitus signaling only).

      #2 It's just too early to know what a cure would look like, neuroscience itself is in its infancy.

      And even if it does, it may be the only option for some people and they shouldn't be deprived of that option.
       
    14. just1morething
      Benevolent

      just1morething Member Benefactor

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      barotrauma, noise exposure, TMJ, neck?
      There is not a lot out there to treat tinnitus at the moment. Dr. Wazen at Silverstein Ear in Florida talks about it in the video below. My noise is very bad atm.

      https://www.earsinus.com/tinnitus

      Dr. Shulman’s treatment helps some:

      http://www.tinnitusjournal.com/articles/gabapentin-and-tinnitus-relief.pdf
       
    15. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      You believe that?
       
    16. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Believe what?
       
      • Agree Agree x 1
    17. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      That.
       
    18. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Well I had about 3 points that I made so I guess we're going to have to leave it there.
       
      • Agree Agree x 1
    19. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      • Informative Informative x 1
    20. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      MRIs are the way, they are just too loud.

      I have personally participated in the repair of an MRI machine for the VA hospital in my town while I was an employee in their engineering department. I am probably the resident expert on MRI technology in this forum.

      I've also had more than 100 IT injections and am probably the resident expert on those as well.
       
    21. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      I guess you are right. However, there are new MRIs that are not as loud and other ways to get around this problem. For some reason, I'm concerned with the strength of the magnetic field and what it can do to the body along with the noise.

      Isolating the auditory system from acoustic noise during functional magnetic resonance imaging: Examination of noise conduction through the ear canal, head, and body - see chapter V.
      Hats off to you for having the courage to go and have the procedure. I hope you continue to see improvements. Nonetheless, I talked to some real pros in the field and they remain highly skeptical of the whole "treatment."

      Furthermore, there are many different types of tinnitus and it is thought that tinnitus resulting from a head/neck injury is amongst the most severe ones https://www.hear-it.org/Severe-tinnitus-after-head-and-neck-injuries

      Hence why tinnitus subtyping and understanding its pathology is so important.
       
      • Like Like x 1
    22. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      So did they discuss anything like, uh science, such as why growth factors wouldn't initiate hair cells regeneration? Or did they just say they were skeptical without explaining why?

      Status: Pro
      Opinion: Skeptical
      Explanation: -------

      mmmkay.
       
    23. Jiri
      No Mood

      Jiri Member Benefactor

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      noise + injury
      Yes, they did discuss anything like, uh science. From what I can remember one of the problems right away was with the whole drug delivery process (so the healing agent actually gets to the cochlea & dissolves/stays there, the number of injections was concerning, etc.), then the healing component itself is questionable, the said doctor hasn’t published any peer reviewed studies with regards to his treatment yet he’s claiming on his website to have a ‘method for treatment of the sensory-neuronal hearing losses and tinnitus’ with a price tag $18.000. Why is it so surprising that when other health professionals in the field see something like this they become sceptical?
      You got it right, except for the last point.
       
      • Like Like x 1
    24. JohnAdams
      Greedy

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Because they're stupid and don't even understand this field at all.

      This is why so many people on this forum have stories of screwed up ENTs.

      "Experts" don't always have the best outlook on the field.

      "Lee DeForest has said in many newspapers and over his signature that it would be possible to transmit the human voice across the Atlantic before many years. Based on these absurd and deliberately misleading statements, the misguided public ... has been persuaded to purchase stock in his company ..." -- a U.S. District Attorney, prosecuting American inventor Lee DeForest for selling stock fraudulently through the mail for his Radio Telephone Company in 1913.


      "Heavier-than-air flying machines are impossible." -- Lord Kelvin, British mathematician and physicist, president of the British Royal Society, 1895.


      "The Americans have need of the telephone, but we do not. We have plenty of messenger boys." -- Sir William Preece, Chief Engineer, British Post Office, 1878


      "[Television] won't be able to hold on to any market it captures after the first six months. People will soon get tired of staring at a plywood box every night." -- Darryl Zanuck, movie producer, 20th Century Fox, 1946.


      "When the Paris Exhibition [of 1878] closes, electric light will close with it and no more will be heard of it." -- Oxford professor Erasmus Wilson.
       
    25. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Tinnitus Friends,

      My husband has set up a $1,000 match on GiveCampus to support Dr. Rauschecker's research. This is the birthday gift I requested this year.

      As an Advocate, Tinnitus Talk has now generated 6728 clicks and 26 gifts, totaling $2,741.

      If you would like to make a donation and have it matched, please follow this link and it will be associated with Tinnitus Talk -

      https://www.givecampus.com/jr9gny

      With Thanks!
      TC
       
      • Winner Winner x 2
    26. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      VERY GENEROUS!!!!!

      @Astro you should give a $1,000 to Dr. Rauschecker since you're now making over a million bucks a year in salary.

      https://www.givecampus.com/jr9gny
       
      • Agree Agree x 1
      • Helpful Helpful x 1

Share This Page

Loading...