Temporal Bone Registry — Sign Up to Help Research for a Cure

Here is something you can do today that will further the cause of finding a cure for tinnitus.

The Temporal Bone Registry is like being an organ donor but for ear research. There is no cost. As with being an organ donor, it won't help you, but it could help others suffering from tinnitus.

The program is run by the National Institutes of Health (NIH), which is part of the U.S. Department of Health and Human Services, and serves as the national medical research agency in the United States.

Having more people with tinnitus register may help speed the pace of research to find a cure, so it would be good for everyone on TTalk in the United States to consider signing up. More information is available at the link, but the easiest thing to do is email them, and they will mail you a full information package and the forms you need to fill out and return. It is a bit of work to fill out the forms, but it does not cost anything and it could help make a difference!

http://tbregistry.org/

 

Sorry to bump this thread but I recently signed up for this and would encourage others to do so as well.

You don't need to go through any testing. Just fill out the forms as mentioned in the original post.

You can also volunteer to donate your brain and contribute your DNA to their biobank, which they do by mailing you some swabs for your inner cheeks.

The most annoying part of it was filling out next of kin forms, which is required and may be hard for those without many family members.