Those Who Have or Had Middle Ear Myoclonus (MEM), Does It Get Better?

Discussion in 'Support' started by Hariz Nonis, Jan 13, 2019.

    1. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      It's been about a month and a half since I started having Middle Ear Myoclonus (MEM).

      Not confirmed by doctor, but signs seem to point to it. I'm having what seems to be Dysacusis because of it. Supposedly have conductive hearing loss, but I guess my MEM could be the cause.

      If you have or had MEM, does it get better? Especially for the latter, how did it go away? And what steps did you take, if any?
       
      • Hug Hug x 1
    2. Arseny
      Wishful

      Arseny Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Possibly from problems with blood flow
      I think you asked me before in another thread about dysacusis. No, I have never experienced it.
       
    3. Sarah101

      Sarah101 Member

      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      TMJ
      Also hoping to hear from others whether it goes away.
       
    4. AUTHOR
      AUTHOR
      Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      If your tinnitus came from TMJ problems, have you tried to get it fixed? My tinnitus seems to come from TMJ/neck issues as well nowadays. Even my left side (which isn't affected by tinnitus) gets fleeting rings sometimes if I don't take care of my posture, etc. Stretching my neck makes it go away.

      Also, is yours because of TTTS or Stapedial Myoclonus?
       
    5. Myoclonus1984

      Myoclonus1984 Member

      Location:
      UK
      Tinnitus Since:
      2021
      Cause of Tinnitus:
      Unknown
      I know Middle Ear Myoclonus (MEM) appears to be quite rare. Mine is pretty bad right now.

      Is there anything I can try such as muscle relaxers or supplements to try and reduce it?

      It's been crazy for 2 weeks non-stop.
       
    6. GoatSheep

      GoatSheep Guest

      People usually try Magnesium. Liquid form is the best for absorption I believe.
       
    7. Rockman

      Rockman Member Benefactor

      Location:
      MN
      Tinnitus Since:
      1/2021
      Cause of Tinnitus:
      Noise, allergy
      I tried muscle relaxers. It seemed to help a little bit.
       
    8. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I have seen people mention muscle relaxers helping to calm down the muscles in the ear.
       
    9. Myoclonus1984

      Myoclonus1984 Member

      Location:
      UK
      Tinnitus Since:
      2021
      Cause of Tinnitus:
      Unknown
      Can you remember the names of the muscle relaxers you tried? Mine has not stopped for 4 weeks now.

      I have tried Magnesium Glycinate and so far no improvement. It's certainly getting worse lately and I don't get any breaks from it like I used to.
       
    10. Rockman

      Rockman Member Benefactor

      Location:
      MN
      Tinnitus Since:
      1/2021
      Cause of Tinnitus:
      Noise, allergy
      Baclofen.
       
    11. Myoclonus1984

      Myoclonus1984 Member

      Location:
      UK
      Tinnitus Since:
      2021
      Cause of Tinnitus:
      Unknown
      Thank you. I think I need to give Baclofen a try. How is your MEM now?
       
      • Good Question Good Question x 1
    12. Rockman

      Rockman Member Benefactor

      Location:
      MN
      Tinnitus Since:
      1/2021
      Cause of Tinnitus:
      Noise, allergy
      It's ok. Weird sounds like plastic bags and certain people's voices still trigger it.
       
    13. 3mmalee

      3mmalee Member Benefactor

      Tinnitus Since:
      Ringing tinnitus 2016, MEM in 2021
      Cause of Tinnitus:
      Unknown
      I also recently got MEM and am so hoping it will go away. It’s been crazy for about 2 weeks. I’m already on Diazepam so it’s hard to tell how much it helps or if at all. I just want it to stop. The nights are the worst for me. I do have TMJ as well.
       
      • Hug Hug x 1
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