Tinnitus Classification for the General Public

You don't need to explain yourself anymore.

As I stated earlier, you are doing an excellent job......at delaying any hope for a cure.

Thanx again.

 

Again.. as your colleague had stated earlier, your aim is to make sure that people are "not afraid of tinnitus".

I'm not sure if I'm in some kind of Twilight Zone here and normal logic no longer applies, but if nobody is afraid, then tinnitus is not really a problem.. or is it?

This is exactly why nobody takes tinnitus seriously.
With this kind of representation, who needs enemies.

Look... I'm pretty sure that lot of effort went into this...
I get that part... but you are working for the wrong fu**ing side!!

 

I wholeheartedly agree. Wishy washy tinnitus guides are getting us nowhere. We are stuck in the same hole people were in 10,20,30 years ago because the message is diluted down to absolute nothingness. Now if I want people to understand my condition I send them the Wolfears guide because it says it like it is. I’m in hell and If you can’t cure me I want to die. It’s as simple and horrific as that.

 

Again... don't try to convince me about your worthy cause anymore.
I already explained to you above, what the big issue is.

Put it this way...
Just by doing "nothing" (as you put it), I'm already doing more for the tinnitus cause than you people, because at least I'm NOT further undermining it by telling people that there is "nothing to be afraid of".

Of course... everything is ok.
Just bunch of people killing themselves over this time and time again, because there is "nothing to be afraid of"

 

Wolf, I see your passion, but the irony in what you are saying is that there is a video there of a mother who’s daughter did commit suicide due to tinnitus...

It’s being represented!

 

Did you, or did you not say that your aim is for people not to be afraid of tinnitus?
That one means literally EVERYTHING.

It is a huge deal breaker with me, or anyone who wants tinnitus to be taken seriously.

It's like saying "tinnitus is no big deal, but I want you to check out my videos"...no thanx.

Yes you might have some good material. I do believe that you are being honest here, but you need to realize that you are now sending a mixed, confused message at best.

 

The replies here literally blow my mind and I’ll never understand the logic behind your thought processes. All I ever see is a criticism of those who are actually doing all the legwork whilst all you armchair critics mouth off about what’s wrong with their efforts. If you’re not happy, do something about it!

Yet you are doing this on a platform created by Markku. It didn’t just spring up out of the ground. What would you have done if Markku hadn’t given you a voice via this very forum? Do you not realise how hard people work behind the scenes? The disrespect is unbelievable.

You always have the answers and yet you never do anything more than post on here where nobody else can see what you have to say. It’s so easy to criticise, but incredibly hard to actually effect any change out there in reality.

 

@Wolfears @Bam seriously lads do you hear yourselves? You are both making huge assumptions before the guide has even been released. I agree wholeheartedly with what you say in regards to tinnitus should never be underplayed, never be seen as a little bit of noise etc but @Markku @Hazel @Steve are working there f*****g arses off on this and all the other projects (on their own time I might add)

What exactly are you both doing to help the cause outside of this forum??

Take action guys, all due respect but talking about how misrepresented we are in the medical community, media etc in this forum is doing jack sh** for awareness.

Pull your fingers out of your arses and start making a change instead of criticising people who are genuinely trying to make a change, working their arses off on their own time.

 

P.S.
I seemed to have used the words “arse” and “arses” in my little rant apologies to the forum for my abuse of that word.

 

Ok you got me... I have no respect for people who downplay tinnitus.

The fact that they worked really, really hard does not interest me.

 

Don’t we already know what “tinnitus research” EVIDENCE says?

 

Those are the ones who need support the most... those are the ones whose lives are literally in danger.

 

I'm not making any assumptions... the lady herself said that the AIM of the project is for people not to be afraid of tinnitus.

Do you know what the word AIM means?

 

Jesus, we’ve hit a real low tonight.

(un)civil war...

The point remains unanswered but valid: why moan against the efforts of others whilst not rising up with your own effort?

Be the change you want to see...and all that

#Gandhi

 

I did... I proposed an actual no nonsense tinnitus scale and trying to raise awareness that way.

What else do you exactly want me to do?

 

Again what are YOU doing outside this forum to help and try and make a difference?

Please explain to me. I know I could be doing so much more.

 

I will tell you what I'm doing outside this forum.
I'm NOT undermining the tinnitus cause of those who suffer.
By doing that I'm already doing more than those who do.
So get off your high horse.

 

Ok, good. Now what’s the next step for getting this out there into the wider public domain?

 

So that translates to you are doing f**k all.... cool story bro
I’m not on a high horse, if anybody is trying to make waves on their “high horse” that’s you buddy.
Actions speak louder than words.

 

I was hoping to plant some kind of a seed and maybe people from here to send it to their friends, whom would maybe send it to theirs.

It would be a good start... social media has lot of power...if enough people share it, who knows.

 

So you’re doing nothing then. The tinnitus community is so apathetic it defies belief, and the most effort I see from the naysayers is when they attack the ones who are doing all the work.