Tinnitus Classification for the General Public

Discussion in 'Support' started by Wolfears, Dec 5, 2018.

    1. Elfin
      Wishful

      Elfin Member Benefactor

      Tinnitus Since:
      08/2004
      Cause of Tinnitus:
      Loud concert
      want you to dig up the bodies of the BTA and ATA members you want dead.

      let them live, Jonny!
       
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    2. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Again: WE NEVER SAID THIS!!!!

      Never ever said that, it was merely your misinterpretation of something else I said, which I've tried to explain to you like 200 million times by now (or so it feels, LOL).

      Wow, you got me to write a message in all caps ;) :D
       
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    3. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @Wolfears

      - come on buddy - have you started writing yet ??
       
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    4. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      if they are going to use their position of influence to down play people's tormented destroyed lives then we would be better off if their existence came to a halt. I'm not advocating violence against them I'm just stating the truth.
       
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    5. derpytia
      Pooptoast

      derpytia Member Benefactor

      Location:
      Rescue, California
      Tinnitus Since:
      04/2014 (many increases since then)
      Cause of Tinnitus:
      Progressive hearing loss / noise / ETD
      It's time for the segment of this thread called "derpytia gives her two cents worth!"

      Have you forgotten that there may be people out there with new, catastrophic tinnitus just like you that is searching these forums for some sort of solace? What about those who are looking for a community of people with tinnitus to be a part of so they don't feel so alone with this condition? And what are they going to find?

      I can only think that such fighting is the result of being struck with desperation borne out of dealing with your tinnitus in either an unhealthy way or alone for too long. And I get that. I really really do. But it DOESN'T EXCUSE this sort of behavior. It just doesn't.

      Your suffering is valid! The moment someone invalidates you doesn't mean that the rest of the world has. Try to wrap your head around that! Tinnitus makes it easy for us to give into our brain's lies that we are alone and no one gives a crap about us. That is a LIE. There are plenty of people who don't care about us unhappy sufferers but there are also people who DO. Don't throw the care and support of those few people down the drain just because it feels like the odds are stacked against us. That is cheapening the support that we do have.

      Before someone chimes in with a "derpytia doesn't understand our suffering" go find my "Success Story" in the Success Stories section of this forum. What I've written isn't anywhere close to being what you think it is.

      If you have wronged or hurt someone in some way on this forum, please consider swallowing your pride and apologizing. Don't expect forgiveness (because no one is owed forgiveness just because they apologize) but be pleasantly surprised and thankful if it is extended to you. Likewise, if someone apologizes to you, consider letting your hurt and anger go and forgiving them so that you and they can move forward. Consider doing these things so that we as a COMMUNITY can move forward, no matter how much it hurts, and accomplish some wins for the team!

      So many TT rules and netiquette have been broken here and I'm disappointed in it. We can do better. <3
       
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    6. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      dude don't speak out against the status quo
       
    7. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      Look... I know you mean well, but you did say what that the aim of the guide is for people not to be afraid.
       
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    8. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      I'm not shy about speaking out...and when I get attacked, I tend to fight back.
      All good here bro...:)
       
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    9. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      That statement can be interpreted in two ways @Wolfears

      It can mean that we're telling people "don't be afraid" - this is how you interpreted it, but not what I meant.

      Or it can mean: "The aim of the guide is something other than telling people: "be afraid"" - This is what I meant. So we are neither telling people to be afraid nor telling them not to be afraid. We are simply not advising them on this topic altogether. They can make up their own minds about that based on objective information.

      Anyway, this is like the 200 million + 1 time I tried to explain. Wow.
       
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    10. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      ...er.....if this battle goes on much longer
      I’m gonna go and put my jock-strap on.

      (I get frightened ye know)
       
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    11. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      I did Dave...but as I was already explaining above, lot of people do not feel comfortable with having their quotes shared on such public platform.

      This is a huge setback needless to say.

      So far I'm still fairly busy at work, so haven't had time to re-think my next strategy.
       
    12. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I apologise for my language but I acted out of sheer frustration. To see the efforts of others pulled apart so easily really touched a nerve tonight.

      I apologise to anyone who took offence including you Wolfears. I’m not here to argue, but you was out of order and I couldn’t help but post in defence of all the effort that’s gone into the work here.
       
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    13. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Bro - if there’s gonna be a fight
      ....,er.....can I hold yer coat....?
       
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    14. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      I know what you said...the way it was worded leaves no room for misinterpretation... unfortunately.

      Again I have nothing against you personally so don't take this the wrong way.
       
    15. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      You sir can hold my coat anytime..;)
       
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    16. AUTHOR
      AUTHOR
      Wolfears

      Wolfears Member Benefactor

      Tinnitus Since:
      Jan 20/2018
      Cause of Tinnitus:
      Most likely accoustic trauma
      All good Ed... bed time for me now.
       
    17. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      - thanks for coming back buddy xx
       
    18. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      I love all of you guys - and gals - and I won’t let any of you talk me out of it
      - so there !!!

      (I can’t help being a soppy old sod)
       
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    19. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      I also have nothing against you personally, but I still think you deliberately misinterpreted my words. Again, you've not read a single word from the guide, so don't judge our work before you've seen it.

      You make a lot of presumptions and assumptions. They're just not founded, that's all - much as you keep insisting otherwise. We are actually here to help all tinnitus sufferers, we're not some evil conspiracy wanting to make your life hell. If you had taken some trouble to look into the work we actually do behind the scenes you would understand this.

      Coming back to my previous call for action (no, I'm not giving up on this one): Will you share your personal story with us in such a way as can be used for awareness raising?!? I also PM-ed you about this, but no response yet. Come on dude :)
       
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    20. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      “Bloody ‘ell
      - will ye just look at these two gladiators,
      - they’ve kissed and made up !!”
       
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    21. Elfin
      Wishful

      Elfin Member Benefactor

      Tinnitus Since:
      08/2004
      Cause of Tinnitus:
      Loud concert
      the wolf has come in for a stroke
       
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    22. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      B520621D-EB6C-4122-88E1-407948E718D1.jpeg
       
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    23. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      these things need to be said. on one hand I sorta understand the people that run the community forum to not be militant towards the ata and bta despite their extremely insulting white gloved and watered down advocacy efforts if you could even call them that, but on the other hand there could be much more attention given to the horrible affect tinnitus has on some of us. to be fair, the people that run this site are probably in a sort of difficult position, they know but they probably want to be professional and not burn bridges. I will at least say ed209 did post criticism of the ata that got them on the defensive regarding their tweet about the lady gaga movie. this is all just fucked. the sad part is that there may be a cure sitting in a cabinet somewhere right now.
       
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    24. Anselmo

      Anselmo Member Benefactor

      Location:
      Miami, Florida
      Tinnitus Since:
      1/14
      Cause of Tinnitus:
      Aspirin
      This forum is a complete freak show.
       
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    25. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      We’re all friends here stop fighting!


      *hides behind @Jazzer in the corner*
       
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    26. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      I have read over 6000 highly professional articles and case studies on physical tinnitus where I have 1200 saved downloads.

      In conclusion of my research almost all physical tinnitus associates to six areas. I have posted many links per each six areas.

      1. Dental, Head, Face, Neck and Shoulder Connection.
      A few easy to read links about this:
      http://www.dentalwholebodyconnection.com/casereports.html
      http://wholehealthdentalcenter.com/head-jaw-neck-back-pain/
      http://www.icnr.com/cs/cs_50.html

      2.Facial interactions to each physical tinnitus condition.

      3. The cervical spine with all relations to somatic physical tinnitus.

      4. Occipital nerve input. Nerve trauma. The brainstem with injury conditions.

      5. Muscles that associate with each different somatic physical tinnitus condition.
      Muscle imbalance.

      6. Possible infection

      If I wasn't in such pain, I would write a complete physical tinnitus handbook - guide with cause and treatment.
       
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    27. Tinker Bell

      Tinker Bell Member Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      SSHL from virus
      To clarify Greg, is this a list of possible physical causes beyond hearing loss?
       
    28. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Tinker Bell. Hearing loss does need to be considered. With physical tinnitus loud noise isn't usually a major involvement, so hearing loss with some forms of physical tinnitus is often not severe.

      This link provides a series of articles (three pages of title articles) where some discuss the relationships of hearing loss to physical tinnitus. I have other links.

      https://trainingandrehabilitation.com/articles/
       
    29. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      I think the major point here is and this has been raised by @Telis and others. Those with severe T are virtually crippled by this condition, drowning in stress, insomnia, financial worries, relationship breakdown....basically isolated and tortured. We’re not really in a position to ‘help’ because we’re clinging to life and just trying to survive. We rely on the BTA to tell the world, ‘look these people are desperate and killing them selves because they have no other escape from daily torture and if they don’t commit suicide their condition gets worse and worse and worse.’

      Anyone who thinks this is fanciful is a fucking delusional apologist because I genuinely don’t know if I’m going to make it through Xmas as a homeless sufferer with zero family or support during this holiday period.

      You can all go and attack Wolfears and me but your version of life with this condition where you run around working on little projects is so far from my fucking nightmare reality it’s untrue.

      I’m done with this bullshit. Good luck all
       
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    30. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      If their help is to create watered down pamphlets about coping with this life destroying disease we don’t need their help.

      We need a strong message to the world that tinnitus needs to be cured above everything else right now or people will keep suffering horrendous torture and killing themselves day in day out.

      End of. That’s the message. Clear and simple.
       
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