Tinnitus Flare Up from Hydrops, Fluid in Ears, Eustachian Tube Dysfunction, Marijuana?

Discussion in 'Support' started by FlatDarkEarth, Apr 15, 2021.

    1. FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Hi all,

      I've been having a bad spike in my tinnitus the last 7 weeks, I don’t know what to think and my doctor visits have mostly failed me on this. At this point I’m starting think this isn’t a ‘spike’ and my new normal which is extremely depressing. I’m hoping someone has some experience or perspective to help me understand what’s going on. I'm sorry for the long post but I tried to include all the information I thought was relevant...

      For some context and history;

      May 2017 - I initially developed tinnitus after a loud concert. After this, it was at say a 1 or 2 out of 10. It was annoying, my fault, but not a big deal. I only really heard it in quiet rooms.

      May 2018 – almost overnight, it got much louder. My ENT ran an MRI and ECoG and determined I have endolymphatic hydrops. After about a month of this, it finally quiets down to the 'normal' of 1 or 2 out of 10. For the next three years, I have two or three occasional spikes that were mild and go away after 2-4 weeks.

      January 2019 – My ears start popping/crunching every time I swallow. I’m sure this is something related to Eustachian tubes, but it has never seemed to have any effect on tinnitus, my ENT doesn’t seem worried, so I ignore it. This issue is still happening.

      March 2021 - My ears started ringing worse again. I experience bad ear pain/pressure. I initially just think it's another spike. Over the next 7 weeks, I have a few visits to a walk-in clinic around the ENT appointment I made with mixed results:

      -My first visit is a walk-in clinic on vacation. I'm told there is no infection or anything visible, it is Eustachian tube dysfunction, and I’m given a short course of Prednisone and discharged. Makes pretty much no difference.

      -About a week later, the pain gets so bad I go to the walk-in clinic back home. They say I have an ear infection, and it looks so severe the doctor says I should be prepared for a ruptured ear drum (never happens thankfully). They give me a course of Augmentin and discharge me, and ask I return back after the course.

      -I see my ENT three days later. He inspects my ears and sees nothing. He takes a pressure reading and it comes back completely normal. He chalks my trouble up to allergies. I have a bit of a hard time believing I had a severe ear infection and Augmentin of all things cleared it up totally in 3 days, but not sure what else to think.

      ENT prescribes me Fluticasone spray, Olopatadine spray, Pseudoephedrine, and a course of Cefuroxime just in case.

      -After going through all these medicines, I feel absolutely zero difference. I make my return visit to the local walk-in, and I really like the doctor this time. He takes a long, deliberate look in my ears and says I have fluid buildup. He gives me another course of Prednisone, Claritin-D and an injection of Dexamethasone. Dexametshasone DOES HELP. For about 2 days after the injection, I'm feeling much closer to my normal self, the tinnitus drops down and the ear pain goes away.

      It's now about 16 days since my Dexamethasone injection. I don't really have any ear pain. But the new, worse tinnitus is still there. I feel no lasting improvement at this point.

      TL;DR for folks – 7 weeks of a flare up/spike I’m worried about and can’t seem to get better. Only a Dexamethasone injection has helped.

      I’ve been prescribed:

      -Fluticasone spray
      -Olopatadine Spray
      -Pseudoephedrine Pills
      -Augmentin, Cefuroxime
      -Prednisone oral tablets
      -Claritin-D

      Supplements I’ve taken:

      -5-HTP
      -NAC

      I cannot think of any medication or diet changes I have made recently. The only thing that’s seemed off is my circulation has been a little bad compared to normal. I smoke marijuana somewhat regularly, aside from it getting a little louder while I am high I've never noticed any connection or pattern with it related to tinnitus.

      So here I am, I’m lost why I’m having SO much trouble this time with my ears and hoping for dear life this is just a long flare up or some reaction to something.

      I assume this is some combination of the hydrops, fluid on my ears, and Eustachian Tube Dysfunction causing this but no idea how to get past this and improve. I’d love some help or ideas from all the knowledgeable people here.
       
    2. Sayeed

      Sayeed Member Benefactor

      Location:
      miami fl
      Tinnitus Since:
      4/1/21
      Cause of Tinnitus:
      unsure
      What diet changes have you made? I recently got tinnitus and stopped all sugar, salt, and processed food... I hope it helps.

      You mentioned weed. My tinnitus started the night after I had a gummy bear but my doctor swears weed-induced tinnitus do not last more then 6 hours. He didn't seem to care.
       
    3. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Hey there. I'll admit, as it pertains to sugar/salt/caffeine and things that can affect tinnitus, my diet is pretty poor. With that said, I've had times where there's plenty of those things in excess and my tinnitus is fine, and months where I had a marked improvement/reduction in those things and tinnitus was bad. Just never found any real pattern between the two, but I am working on it now just because nothing else is getting it right...

      Weed makes me tinnitus louder while I'm actively high, but makes me care about it less if that makes sense. Just on my basic understand of the interaction of it doesn't seem like something that could permanently alter/damage your hearing from one use.

      Perhaps there were other ingredients with the gummy that aggravated something? Quality control and safe ingredients are pretty much all over the place for a lot of weed/gummies/CBD stuff....

      Thank you for your reply and suggestions!
       
      • Like Like x 1
    4. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Nobody else has any ideas, huh?

      After doing some reading I am beginning to wonder if a change in circulation could have made this worse as well
       
    5. Wrfortiscue
      Provocative

      Wrfortiscue Member

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      How are you doing now?
       
    6. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Hey there, thanks for following up. I'm not feeling any better, unfortunately.

      I'll get an hour here or there occasionally, where it's closer to how my tinnitus used to be. So, at least I feel like maybe it's something not totally permanent or something that can improve.

      But, the large majority of the time it's just awful. The only thing that's really helped was the Dexamethasone steroid shot, I felt normal for a good 3-4 days after that. I wish I knew what was going on or what mechanism w/ the steroid made it better. The 2 ENTs I've seen have been totally useless!
       
      • Like Like x 1
    7. Wrfortiscue
      Provocative

      Wrfortiscue Member

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Some kind of inflammation issue? Maybe somatic? COVID-19 side effect? I dunno. I'm reaching lol.
       
    8. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Thanks for the ideas. The walk-in clinic doctor I saw I liked the best by far, and seemed the most concerned to get it fixed. He suggested inflammation, too, which could make sense I just don't know what would be causing that all of a sudden.

      What do you have in mind when you describe it as somatic?
       
    9. Wrfortiscue
      Provocative

      Wrfortiscue Member

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Everyone has suggested inflammation and that I should recover over time, yet I’m getting worse.
       
    10. Matchbox
      Wishful

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Any idea what your tinnitus sounds like "hydrops wise"? Have you tried the Reddit head tapping trick at all? There's a poll I have going on with it to try to get data:

      Poll: Residual Inhibition from Head Tapping / "The Reddit Tinnitus Cure"
       
    11. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      I'm sorry to hear that man. Hopefully we both get an uptick and get some improvement. Mine is definitely still fluctuating some.
       
      • Like Like x 1
    12. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      What exactly do you mean hydrops wise?

      I have tried that trick, I seemed to get a little relief when I did so, but it was pretty short lived. I'll have to try some more to get it fresh in mind so I can answer your poll.
       
    13. Wrfortiscue
      Provocative

      Wrfortiscue Member

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      I’m up and down now. Brain is trying to push it out.
       
    14. AUTHOR
      AUTHOR
      FlatDarkEarth

      FlatDarkEarth Member

      Location:
      Tennessee
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Metal Concert/Hydrops
      Well, for what it's worth, a couple of weekends ago I had two days where my tinnitus was back to 'normal' - there, but low and not something I really noticed and definitely not the big problem it is now.

      I get a few hours here and there now where I get relief, and lots of hours where it's crazy loud. The fact that it's had moments where it's good makes me think and hope that perhaps I haven't had some further damage, and there is something aggravating it and making it fluctuate, and that maybe there is room for further improvement.
       
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