Sayeed
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Location:
miami fl
Occupation:
if this continues then soon to be unemployed

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Sayeed

Member, Male, from miami fl

I'm back...sorry I was away. I hope everyone is doing well. Sep 21, 2021 at 1:04 AM

    1. Sayeed
      Sayeed
      I'm back...sorry I was away. I hope everyone is doing well.
    2. Sayeed
      Sayeed
      went to the beach. very salty water. immediately my crackling disappeared and my T was lowered. weird...
    3. Sayeed
      Sayeed
      Instead of trying to run or avoid the T noise..I sat in a quiet area and actually listened to it for a few mins. I felt better. Weird
      1. kuromi
        kuromi
        That's the first step to slowly getting better days. It was incredibly difficult for me to do that early on, but eventually I became able to be totally neutral about it when I'm in quiet areas.
        May 21, 2021
      2. Jebbis
        Jebbis
        I entered this stage in the last month or so.. In the beginning I truly thought I could never enter a silent room again. Just goes to show how much progress can really be made! Congrats sayeed on taking your power back, it gets easier:) same to you @kuromi!
        May 21, 2021
        kuromi likes this.
      3. Wrfortiscue
        Wrfortiscue
        Good job I’m working on this
        May 22, 2021
        kuromi likes this.
    4. Sayeed
      Sayeed
      Just got prescribed 15 mg of Mirtazapine for anxiety and sleep...oh boy here we go again. Hopefully it doesn't increase T. Thoughts?
      1. Guywithapug likes this.
      2. View previous comments...
      3. TheDanishGirl
        TheDanishGirl
        I got worsened tinnitus and worsend hyperacusis after being on it a year + a shower of eye floaters. I cant know for sure if its because of mirt but I think so. I know everybody's different but I really cant recommend it.
        May 19, 2021
      4. Sayeed
        Sayeed
        Thanks guys....
        May 19, 2021
      5. Sayeed
        Sayeed
        so far not bad guys. I took the first dosage last night.. i slept like a baby 8 hours for the first time. but I did wake up drowsy and am a bit tired today. lets see if I adjust over the next few days otherwise i reduce dosage. I do know lower dosages make you even more drowsy so maybe i don't. I'm not sure but only one way to find out. T levels are the same as yesterday. I'm just more calm and accepting of it.
        May 19, 2021
    5. Sayeed
      Sayeed
      So...tried Xanax for the 1st time per recommendation of my doctor for an anticipated anxiety filled work call. Woah it works. No T / anxiety
      1. ALS and Keith Handy like this.
      2. View previous comments...
      3. Sayeed
        Sayeed
        Thanks ! I only plan on taking when T spikes or when I really needed.

        On a side note I read you take mirtazapine. I just got prescribed today..15 mg. How does it affect your T?
        May 19, 2021
      4. twa
        twa
        No T at all?
        May 21, 2021
      5. Sayeed
        Sayeed
        I've used it twice this week. Both times work related T spikes and it worked like a charm. I plan on limiting it to 2-3 time a week at most.
        May 21, 2021
        twa likes this.
    6. Sayeed
      Sayeed
      anyone every tried transcendental meditation? any useful podcasts or links out there?
    7. Sayeed
      Sayeed
      So I went for a half mile jog for the first time since getting T. I heard my heart every beat in my ears. Weird experience.
      1. twa and Jebbis like this.
      2. Jebbis
        Jebbis
        This kind of activity gives me short term relief for a few minutes after. Very odd.
        May 16, 2021
        twa likes this.
    8. Sayeed
      Sayeed
      I see my neuro on Thursday. They found some white spots in the mri. I am hoping praying it's not MS..but its seems from what I read it is.
      1. View previous comments...
      2. twa
        twa
        Good news Sayeed! So glad to hear! Thank you for sharing the good news. :-)
        May 21, 2021
        Tanni likes this.
      3. Sayeed
        Sayeed
        thanks for the support guys.. you dont know how much it helps me. I really mean it. bless you guys

        now i do need your opinion on something- if the ent says its not my ears (but the first ent said i have slight hearing loss) and the neuro says its not my brain.. what could it be then? the psych says its anxiety but from what i ready anxiety and stress only make it worse not cause it.. thoughts?
        May 22, 2021
        twa likes this.
      4. twa
        twa
        @ Sayeed I'm kind of in the same boat. I'm not sure what caused my initial T, either medication, MRI w/o ear protection, acoustic trauma or stress. My initial was either meds or MRI. The louder T recently was either meds, anxiety or acoustic trauma. Hard to say. I guess our only choice is to take care of ourselves, protect from loud noises and consider new treatments in the future.
        May 22, 2021
    9. Sayeed
      Sayeed
      Used flonase per my ent orders last night and this AM...tinnitus is higher then usual all of a sudden. Is there a link? Damn I was well too
    10. Sayeed
      Sayeed
      I miss salt and sugar.
      1. Guywithapug likes this.
    11. Sayeed
      Sayeed
      so if I'm reading the MRI and MRA correctly I have nothing major wrong. lets see what the doc says. Next is dentist 4 potential TMJ. tiring
      1. Bill Bauer and Keith Handy like this.
    12. Sayeed
      Sayeed
      Had a couple of decent days but it's back to remind me who's boss. Lol
      1. Keith Handy
        Keith Handy
        May you have more decent days soon. I find the word "merciful" coming to mind when I have a quiet morning or an easy shift at work.
        May 11, 2021
        Eleanor89 and Sayeed like this.
      2. Bill Bauer
        Bill Bauer
        If you are experiencing good days, eventually you'll get to the "can hear it only in quiet rooms" stage.
        May 11, 2021
        Eleanor89, Sayeed and kuromi like this.
    13. Sayeed
      Sayeed
      How strict are you guys with salt? Cheat meals? I miss pizza and burgers
      1. View previous comments...
      2. Steph1710
        Steph1710
        I like how none of our comments are of any use lol.
        May 9, 2021
        kuromi, Keith Handy and Sayeed like this.
      3. Sayeed
        Sayeed
        I'm thinking 3 slices of pizza once a month just to keep my sanity lol
        May 9, 2021
        Keith Handy, Guywithapug and twa like this.
      4. twa
        twa
        @Sayeed that being said, I had butter with popcorn which I hadn't had in 7 months. My son wanted to watch a movie at home and wanted popcorn, so I obliged for Mother's Day!
        May 10, 2021
        Eleanor89 and Sayeed like this.
    14. Sayeed
      Sayeed
      Staying busy is key to battling tinnitus
    15. Sayeed
      Sayeed
      I guess 5 hrs of sleep is better than 4.
      1. musicblue
        musicblue
        25% better.
        May 7, 2021
    16. Sayeed
      Sayeed
      I think my wife is getting jealous of tinnitustalk. Lol
    17. Sayeed
      Sayeed
      Outside of tinnitus....one word I wish that didn't exist is ototoxic.
      1. Stanlex
        Stanlex
        idk about this ototoxicity but it feels like almost every medication on the earth is apparently ototoxic according to ATA. Even common used drugs like ibuprofen is but I have never heard of anyone who got tinnitus from it.
        May 2, 2021
        Steph1710 likes this.
    18. Sayeed
      Sayeed
      Not bad book so far - "living with tinnitus and hyperacusis" by Lawrence McKenna, David Baguley, Don Mcferran
      1. Steph1710 likes this.
    19. Sayeed
      Sayeed
      Yay! 1 month tinnitus anniversary lol
      1. Steph1710 and Vassili like this.
      2. Vassili
        Vassili
        That's the spirit!! ^^ :P
        May 1, 2021
    20. Sayeed
      Sayeed
      So they prescribed me xanax...hummm...or should I say eeeeeeee lol
      1. Stanlex and Bill Bauer like this.
    21. Sayeed
      Sayeed
      Dr increased buspar yesterday from 20 to 30 MG. Last night was my first increased dosage. Been noticing an increase in tinnitus this morning
    22. Sayeed
      Sayeed
      When you guys got tinnitus did you get the following symptoms Head pressure Face numbness Neck pain Exterme muscle pain (neck/shoulders)
      1. Vassili likes this.
      2. View previous comments...
      3. Vassili
        Vassili
        I had these symptoms. First year was really tough.
        Apr 30, 2021
        Keith Handy likes this.
      4. Sayeed
        Sayeed
        OK so what I gather these symptoms lasts few months to a year. Thank you for the feedback guys.
        Apr 30, 2021
        Vassili and Keith Handy like this.
      5. Sayeed
        Sayeed
        Ahh it's happening again lol
        Sep 24, 2021 at 11:48 PM
    23. Sayeed
      Sayeed
      I don't know what I would do without this site..it's life saving for ppl just diagnosed. (If used properly)
      1. Keith Handy, Steph1710 and Vassili like this.
    24. twa
      twa
      Embrace it and enjoy the day!
      1. Keith Handy and aot like this.
    25. Sayeed
      Sayeed
      Tinnitus is down to 1/10 today...not sure what I did differently yesterday. But I'm scared as to what tomorrow will hold.
      1. Keith Handy
        Keith Handy
        You probably didn't do anything differently. If cause and effect were that simple, we'd have figured it out by now. May you have more days like this as time goes on!
        Apr 29, 2021
      2. Sayeed
        Sayeed
        Thanks Keith...and good point. All I can do is control my stress and anxiety. Started meditation yesterday. Hopefully it helps.
        Apr 29, 2021
    26. Sayeed
      Sayeed
      What does "mpp" stand for
      1. Bill Bauer
      2. Sayeed
        Sayeed
        Thank you
        Apr 28, 2021
        Bill Bauer likes this.
    27. Sayeed
      Sayeed
      Damn...now visual snow.. crap.
      1. Vassili likes this.
      2. View previous comments...
      3. Vassili
        Vassili
        Hey, @Sayeed! Well, after 1,5 years I still have it, but in a mild form and it comes and goes. Some days are better, some worse. I also had sensitivity to light for at least first 6 months. Now I don't have it. My health problems are noise-induced so I can't really tell you what's causing your condition.
        Apr 28, 2021
      4. Sayeed
        Sayeed
        I understand thank you. Hoping and praying this is just a side effect of gabapentin or anxiety
        Apr 28, 2021
        Vassili likes this.
      5. Vassili
        Vassili
        Lots of people here said that time was their main healer. It means that with time our body and brain will sort things out on their own. The question is how long will it take and will it be a full recovery. Nerves take tremendous amount of time to recover.
        Apr 28, 2021
        ALS and Keith Handy like this.
    28. Sayeed
      Sayeed
      What are your thoughts on sleep headbands.....
      1. View previous comments...
      2. Sayeed
        Sayeed
        Thats true didn't think of it that way...I was thinking of my wife...because of my abnormal sleep patterns and need to play some noise to drown out the tinnitus, I am unable to sleep in the same bed. I feel for her and just wanted to alteast sleep In the same bed...this was my solution...but I guess not.
        Apr 25, 2021
        twa likes this.
      3. twa
        twa
        @Sayeed, you will have to find what works best for you and your family. I use my phone on my nightstand with water sounds running. I do it more for sound enrichment than for masking. I focus on it for about 10-20 seconds and I'm usually out. I have a sleep specialist and I try to practice good sleep hygiene, like turning down lights, etc.
        Apr 26, 2021
      4. Sayeed
        Sayeed
        So I tried ear plugs and soothing music but very low volume on my phone on a timer. I woke up with normal levels of tinnitus and compared to the headband where I woke up with blaring tinnitus. So it was an improvement. Ditching the headband for now.
        Apr 26, 2021
    29. Sayeed
      Sayeed
      Confused...don't even know what type of tinnitus I have...scared to sleep laying flat because i feel the head pressure will return.
    30. Sayeed
      Sayeed
      Stop gabapentin to stop vision side effects and risk tinnitus increase...I cant decide
      1. Matchbox and VeryUnfortunate like this.
      2. View previous comments...
      3. PortugalTheMan
        PortugalTheMan
        @Sayeed please dont take this decision alone. Speak with your health professional, ok?
        Apr 24, 2021
      4. Sayeed
        Sayeed
        Yes absolutely. I'm waiting till I see my Dr next week. Appreciate the concern. Hope you are doing well
        Apr 24, 2021
        PortugalTheMan likes this.
      5. PortugalTheMan
        PortugalTheMan
        I'm fine as we are all here. :) lacking rest!
        Apr 24, 2021
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  • About

    Gender:
    Male
    Location:
    miami fl
    Occupation:
    if this continues then soon to be unemployed
    Tinnitus Since:
    4/1/21
    Cause of Tinnitus:
    unsure
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