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vilebubbles
I don't think I can do this :(
S
You can, I know you're scared but you'll make it through... it feels horrible and intrusive but it's not an actual threat even if your entire being is trying to tell you otherwise, it will get better.

Try and do something to distract (I bought a block of modelling clay and took up sculpting) & to de-stress, even if it's just for 30 seconds with a breathing exercise, we've all got to start somewhere!
DamagedJoe
I left my band today. I had to give up another thing that I loved. Everyone was outraged and no one could understand it. After all, nobody had T. Only me. T takes everything from you. Until there's nothing left of you. Just like listening to music, or sitting in silence. Or sleep.
S
Yeah, how dare you prioritise your wellbeing, health, and hearing over the band? That's messed up... I can't see how an unsupportive group would have worked had you progressed further together and by the sounds of it, some of them might eventually be joining you on this journey.

It does take a lot from us, it's cruel, but, I do think you will make some kind of peace with it within your self imposed time frame.
vilebubbles
Hi! You seem like you're improved somewhat. What was your T and nox like at its worst?
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vilebubbles
Also, about how long was it from debilitating to tolerable?
Joshua Macleod
I'm really sorry to hear you're going through it, @vilebubbles. It is a set of symptoms that people struggle to sympathise with unless they too have suffered.
Joshua Macleod
It was debilitating, for me, for maybe 6-9 months. This doesn't mean yours will be for as long, nor does it mean if you suffer for longer that it won't improve. I tried everything (except medication) to improve, and have subsequently been able to reintroduce many things back into my life (e.g. sitting in a car, attending meetings).
just1morething
I wonder if an infected tooth root can cause tinnitus? I just got my left lower molar extracted after a panoramic dental X-ray showed some issues with at least 2 of my teeth.
DamagedJoe
I made a decision today with a heavy heart. I'm not going to live like this. F*** you "god", or "universe" or whatever it is that has thrown us here into this torturous existence. I'm going to try to last a year, maybe I'll make it to 1.5. If it's not better then, I'm going to kil this useless scrap heap of a body.
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B
I started waking up at night with panic attacks and developed depression. I've had a lot of stress in my life in recent years which may be the reason for the panic attacks and depression, but I can't figure out where the tinnitus came from. At least four doctors have been of zero help. Like I said, I still have the ringing, but I simply don't notice it as much.
B
I came across something called Zenotone and tried to post about it yesterday, but for some reason it's not showing. I wasn't trying to advertise the stuff, but wan't to know if anyone here had heard about it or tried it. I posted a link to the website for information. I think it's about $100 for three months supply, which I'd pay $1,000 if it actually worked.
B
Are we not allowed to post links here? Maybe that's why it doesn't show up. I know most of the stuff advertised for tinnitus is BS, but this "seemed" to be more legitimate. (I had to break my post into four parts because of the 420 character limit. WOW! WHY?!)
Artemis2K
Last year I tried launching a Kickstarter, and then a hurricane hit my home and things derailed from there. Now that my business model has changed, I might actually get results. I'm so relieved.
vilebubbles
My update; Ear burning getting worse. T fluctuates from pure hell to severe based on Ativan dose.
H
Hey, I am in klonopin withdrawal, 15 months along. My tinnitus is pretty bad the past few days. I have about 8 tones altogether, but some days are a lot better and I it seems more like 3/4 tones. Hang in there… I have an 8 year old and an 8 month old. You seem really scared.
vilebubbles
I am very scared. Thank you for your encouragement.
BrOKeN_1
This current spike is gradually and expertly eroding the layers of psychological defense I built over the last few years. Tinnitus is just Evil. Plain and Simple.
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kingsfan
Samsies... Nearly 4 and half years ago when this all started, I thought I'd just have to turn my music down, get used to it, and that would be that. I wish it had been that simple.
Tryn2BHopeful
I definitely feel that. I keep a card my daughter made for me that says "You got this!" On my dresser and read it every morning. It keeps me going
BrOKeN_1
@Tryn2BHopeful I love that for you. I live for my kids! They a great motivator to fight on.
vilebubbles
My tinnitus got bad after SSRI withdrawal and benzo wd. Do you think I should take b1? Will it
Matter?
BB23
nothing will fix it.
b6 will def. worsen it.
i dont know about b1. It's been a long time ago since i did research on these. Don't remember much.
but if you ask me, i'd say dont take anything at all.
B
Hello everyone 👋 I'm back with an update. My T is still there and spikes have become less and less. I am living life more normally despite this noise..it's still annoying most days but I'm pushing through. Reactivity is wayyyyy down but still there....nothing like it was though. Hyperacusis is about 95% gone. I'm just reaching 2 years into this.
E
On Monday February 24, I had a visit at the dentist where they used a high speed rotationary tool to cut a teeth in half to extract it. The tinnitus got more noticeable today.
dude
HI

Did you personally take dexamethasone ?
any side effects ?
pls advise tku
vilebubbles
How are you doing? My taper is going so so bad.
streifzug
I am a little better despite it all. You have not been on the benzos for long. That is really good I think! I hope you'll get better!
vilebubbles
That's great. Did you stay on clon or taper it?
S
Feel like the first person to ever have a positive ENT trip... didn't change matters, but he agreed with my self-diagnosis, told me to protect as much as possible and was honest that an MRI would be too noisy and probably not find much that would change matters.
Plus I got to look up my nose just for fun.
DamagedJoe
Exactly 4 months ago I woke up wishing it was a nightmare. The last month has really sucked. I definitely very often have the feeling that absolutely nothing has improved. It's this malignant certainty that it will stay like this for the rest of my life. When I use earplugs, it still throws me into a depressive phase because all I hear is the ringing. I want silence back so much.
Tryn2BHopeful
Why is T so fricken variable?... one day its ok, the next is pure hell. Ugh... what did we do to deserve this?!
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Tryn2BHopeful
I hear you, and I know your right. However its just hard to feel that way. I was so close to getting over the hump... and I screwed up. I am tired, stressed and I just don't know how to find my way back again. I need to stop blaming myself and move forward, easier said than done. As always I appreciate your comments.
MindOverMatter
I know the feeling @Tryn2BHopeful I came out from a long lasting spike recently. It took about 2 months to normalize again. But once I was to take a step back and shift my focus again, I started afirming to myself that I'll be okay. I've been here so many times before, and I've done it before.
MindOverMatter
The storm you are in at the moment won't last you forever. You will rise again. Keep your head up mate - you'll get there. One day at a time.
delta784
hey kdmg do you have tinnitus alongside with nox h? and do you have visual snow thx
Andrei88
Have had very bad T and pain H for about 14 years now, it still sucks and robbed me of things I used to be able to do and enjoy. Typing this with raging T and pain. It only ends in my dreams. Waking up feels like a bomb went off in my head every morning.
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