derpytia
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Gender:
Female
Birthday:
July 29
Location:
Rescue, California
Occupation:
Retail unfortunately

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derpytia

Member, Female, from Rescue, California

Tinnitus still screeching and screaming away. The fact that I can sleep at night after all these years is still nothing short of a miracle. Mar 3, 2020

    1. derpytia
      derpytia
      We are allowed to feel what we feel.
      1. Manny, Phendran, glynis and 3 others like this.
    2. derpytia
      derpytia
      For the fifth time. Another permanent increase. More lost hearing. All from someone dropping something too hard.
      1. View previous comments...
      2. dpdx
        dpdx
        How is this even possible?
        Oct 17, 2018
        Manny and Artazanasss like this.
      3. derpytia
        derpytia
        My doctors think that I have the genetic predisposition (gene expression or mutation) to lose hearing easier than most people.

        It would make sense since I was born with a genetic defect in my eye that resulted in surgery to remove my lens in that eye when I was ten days old.

        Who knows how many genetic things I have going on.
        Oct 17, 2018
        Artazanasss and Jack Straw like this.
      4. Jack Straw
        Jack Straw
        I'm sorry to hear that. I hope you start feeling better soon!
        Oct 17, 2018
    3. derpytia
      derpytia
      Cleaning helps me get my mind off of T :)
      1. Nice likes this.
    4. TuneOut
      TuneOut
      Greetings from gold country! I hope things are going better for you, derpytia.
      1. derpytia likes this.
    5. derpytia
      derpytia
      You know something? I barely hear my T when I'm chewing food... Guess that's another reason to eat more lol
      1. cspc, Bill Bauer and Autumnly like this.
      2. TheDanishGirl
        TheDanishGirl
        I love eating crunchy food cause it masks my T perfectly. Wish I could just eat chips all the time :D
        Jul 27, 2018
        derpytia likes this.
    6. derpytia
      1. Contrast likes this.
    7. derpytia
      derpytia
      Thinking of making a video of myself and other sufferers to try to make viral so somebody does something to help us.
      1. Leoglobe, Manny, TuneOut and 7 others like this.
      2. View previous comments...
      3. derpytia
        derpytia
        I'd have more faith in FB. Youtube is going downhill fast for new users and even old users because of their new rules and regulations.
        May 12, 2018
        Dylan Blake likes this.
      4. Dylan Blake
        Dylan Blake
        Right, maybe what I should have said was do something cross site, like Dtube or Vimeo, limiting it to one site may make it harder to get the message out.
        May 12, 2018
      5. Dylan Blake
        Dylan Blake
        Also look up sounds similar to Yours to add to the video as an example to give folks a feel for what it's like, quote key research sites to put facts out, get this community to back You maybe not financially but in other ways, even if as witnesses they could be assets.
        May 12, 2018
    8. derpytia
      derpytia
      Well this sucks. Two weeks of bliss ended when my medication stopped giving me relief. Swell.
      1. threefirefour likes this.
    9. derpytia
      derpytia
      Be educators and advocates. I've already educated at least five of my current doctors about T and VSS and made them listen and learn. :)
      1. Manny, Charles_T, IvanRus and 2 others like this.
      2. View previous comments...
      3. Dylan Blake
        Dylan Blake
        But did it stick?
        May 12, 2018
      4. derpytia
        derpytia
        One can only hope right? I think with my neurologist it did because I told him "well now when you have patients coming in with my symptoms you won't dismiss it at something else" and he nodded.
        May 12, 2018
        Dylan Blake likes this.
      5. Dylan Blake
        Dylan Blake
        Oooh I would have paid to see that, not that I have anything against Him or whatnot, still professionals today forget that their learning came from folks Who thought outside the box or knew first hand, was there smoke in the room after?
        May 12, 2018
    10. derpytia
      derpytia
      I choose to believe that one day we will have a treatment at the very least. That's what keeps me going.
      1. cspc, robHing, Holly1987 and 2 others like this.
    11. derpytia
      derpytia
      Yay, a fourth anniversary trophy! Thankful for the trophy but not thankful for the reason I have it lmao!
      1. SugarMagnolia likes this.
    12. derpytia
      derpytia
      Is it bad that I miss my old T? It was much easier to bear with over time than the T I have now lol!
      1. threefirefour, Holly1987 and Autumnly like this.
      2. Holly1987
        Holly1987
        I feel the same!
        Apr 26, 2018
        threefirefour likes this.
      3. vermillion
        vermillion
        I wish i had my old tinnitus too.
        Apr 26, 2018
        threefirefour likes this.
    13. derpytia
      derpytia
      So. Apparently my new AD, Rameron, makes my T not so intrusive... Interesting.
      1. threefirefour and Autumnly like this.
      2. View previous comments...
      3. InfiniteLoop
        InfiniteLoop
        ADs can have that capability of modulating the T sound. Sometimes it gets better, sometimes it gets worse. In my case, I would say that is just sounds a bit different, more uniform and slightly easier to deal with. Main AD effect is that I do not care as much about the T.
        Apr 25, 2018
      4. vermillion
        vermillion
        Apr 25, 2018
      5. InfiniteLoop
        InfiniteLoop
        @vermillion. I am taking a low dose of Celexa (5 to 10mg). The standard 20mg tends to agitate the T.
        Apr 25, 2018
        vermillion likes this.
    14. Tfury
      Tfury
      My tinnitus has increased in the past two weeks. I started playing in a live band again. I am about to quit the band because I don’t want my t to get any louder or I won’t be able to drive my car.
      Band isn’t gonna be too happy.
      Thoughts?
      1. Dylan Blake
        Dylan Blake
        Yeah, Whisky Tango Foxtrot?! Your just gonna quit? use earplugs, wear headphones during play sessions, don't just quit the things You love because of Tinnitus, do You remember the guy that quit? neither does anyone else.
        May 12, 2018
      2. Dylan Blake
        Dylan Blake
        I see T and fury are in Your name, is it Tinnitus fury or Your fury against Tinnitus, ROCK ON! seriously if You quit that means one less potentially good band goes with You, and that's just unacceptable.
        May 12, 2018
      3. Jazzer
        Jazzer
        I was a pro jazzer for over 50 years - International Festivals, concerts, clubs, cruise ships etc...
        I packed up three months ago.
        A wise decision for me.
        Best wishes
        Dave x
        Jazzer
        Jul 27, 2018
    15. derpytia
      derpytia
      Welp. My tinnitus loudness has permanently increased. No new sounds thankfully. Just the loudness. I have no idea what caused it this time.
      1. threefirefour and summ like this.
      2. dpdx
        dpdx
        :(
        Mar 7, 2018
      3. LillianLexicon97
        LillianLexicon97
        I'm sorry to hear that. I think not knowing what causes increases/spikes is one of the worst parts.
        Mar 8, 2018
      4. Kratos
        Kratos
        How long have you had the increase?
        Mar 8, 2018
    16. derpytia
      derpytia
      Welp... guess who's got vision problems now? Me. :(
      1. View previous comments...
      2. Rubenslash
        Rubenslash
        Also floaters?
        Feb 17, 2018
      3. derpytia
        derpytia
        A few. I've had one floater for awhile now
        Feb 17, 2018
      4. dpdx
        dpdx
        is visual snow caused by T? What about eye floaters?
        Mar 7, 2018
    17. derpytia
      derpytia
      Welp, I couldn't resist. I ate the salmon again and again a temporary spike! Oh well :P I love my salmon too much to give it up...
      1. jimH likes this.
      2. Julien87
        Julien87
        God, how can you like salmon? eeerrrkk
        Well, if you enjoy it that's great :)
        Feb 2, 2018
        derpytia likes this.
    18. derpytia
      derpytia
      Fingers crossed that 2018 is going to be a whole lot better than the dumpsterfire that was 2017!!
    19. derpytia
      derpytia
      Ugh. I hate depression. I hate having an unhealthy body and being sad all the time. I hate being constantly tired...
      1. threefirefour likes this.
    20. derpytia
      derpytia
      Happy Birthday to me!
      1. Bill Bauer and missingsilence like this.
    21. derpytia
      derpytia
      Habituated again for the third time. And all before my birthday :)
      1. Rosemerry
        Rosemerry
        Fantastic! What a great birthday present!
        Jun 23, 2017
      2. Richard zurowski
        Richard zurowski
        I've lost count of how many times I've habituated. Anyway happy birthday derpytia.
        Jun 23, 2017
    22. better
      better
      Hello @derpytia ! Sorry to bother you. Did you find my message below?
    23. better
      better
      Hello @derpytia! I came across your posts about the use of musicians earplugs and know that you were a college student when you used them. I would like to ask you more about the use of them but I cannot find "start a conversation" in the "conversation" settings of the forum panel . Would you mind sending me a message so I can ask you questions there? Many thanks!
      1. better
        better
        Thanks so much for your reply @derpytia!! I have got your message but could not find a reply button in the inbox. So the conversation is read only. I am not sure if this is because I am a new member ... So maybe I ask you here.
        Do your tinnitus amplify after you wear the musicians earplugs? If yes, how is the intensity of it? Can you withstand it when using the musicians earplugs for hours of lectures?
        Apr 4, 2017
      2. better
        better
        I need to break my message to two as a popup window said I can only enter less than 420 characters in this wall message ...
        You can reply me by message {"conversation"). And
        It would be appreciated if you can pass me your email address("conversation" again) so I can further communicate with you. Thanks a lot again!
        Apr 4, 2017
    24. derpytia
      derpytia
      "Good" T day today on my day off! Woke up from a really sound and extended sleep and went outside for fresh spring air.
      1. vermillion
        vermillion
        Really happy to read this @derpytia! I've read your stories. You deserve many Good T days! All the best!
        Mar 20, 2017
    25. derpytia
      derpytia
      Grrrr... It just galls me that my T has gotten so much worse.
      1. threefirefour likes this.
      2. Paul10
        Paul10
        Same here; but if it got worse it can get better. Deep breaths and plenty of background noise!
        Mar 19, 2017
        vermillion likes this.
    26. derpytia
      derpytia
      Happy Valentine's Day! Today was a good day to have a good day. :)
      1. Rubenslash, Lex and Andrea Lopez like this.
      2. astronomer
        astronomer
        same to you derpytia
        Feb 14, 2017
    27. derpytia
      derpytia
      Again, again!
    28. derpytia
      derpytia
      Noot noot.
    29. derpytia
      derpytia
      T can just suck it! :P
    30. derpytia
      derpytia
      I believe I can now say with certainty that birth control lowers my T a bit or at least lowers my perception of it. Thanks ovarian cysts! xD
      1. Dana likes this.
      2. Sailboardman
        Sailboardman
        Wonder what would happen if a guy took it?
        May 19, 2016
        derpytia likes this.
      3. OnceUponaTime
        OnceUponaTime
        I am glad it helps you. :)
        May 19, 2016
        derpytia likes this.
      4. derpytia
        derpytia
        @Sailboardman well considering its basically a feminine hormone regulator, I'd say nothing. Might be something for men with testosterone in it?
        May 19, 2016
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  • About

    Gender:
    Female
    Birthday:
    July 29
    Location:
    Rescue, California
    Occupation:
    Retail unfortunately
    Tinnitus Since:
    04/2014
    Cause of Tinnitus:
    Hearing loss / ETD