ErikaS

ErikaS

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Member From Pennsylvania, USA
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  • ErikaS
    Does reactive tinnitus make any one else's inner ear feel weird? It doesn't feel full, almost that feeling you get with fleeting tinnitus
    View previous comments…
    ErikaS
    @MindOverMatter I developed the T just over 3 months ago in R ear with ear infection. Started as high electric hiss, now 5-6 tones with reactive hiss and distortions. I know it takes time to get better, but what I do not understand is why getting worse?
    ErikaS
    @MindOverMatter i took a leave from work, do not go around very loud sounds, do not wear protection in the house and have low background sound on from something. But going in the car sends my reactivity up and recently the R ear is now "feeling" it through this sensation rather than just hearing it.
    MindOverMatter
    @ErikaS You seem to be doing "what you should", in my humble opinion. T winding up while in the car is, unfortunately, very common for many with different versions of sound sensitivity and reactive t. "Feeling" it, yes. I know what you mean. It will get better with time, 3 months is not a long time. There is a good chance for you to feel at least better within a time frame of 6-9 months.
    ErikaS
    Those with reactivity: anything for sleep when ringing becomes loud when laying down, but obviously can't drown it out? Weaning off Ativan.
    View previous comments…
    ErikaS
    @Joe Cuber thanks for your reply. Mine reacts to anything in the house that's a constant hum, the worst being higher frequency sounds. Thankfully my heater sounds lower in frequency, but it still reacts. For your ambient noises, did you use sounds from your phone when going to bed and in the house?
    S
    Hi @ErikaS took a good break from here so just saw message. My therapist pretty much said to me ditch the ear plugs and get used to normal sound again. Reactive tinnitus just happens according to him and they don't know why :/. 1)
    S
    2) not very helpful in my opinion my hearing therapist as they just don't know much other than sound therapy and white noise generators. Figuring it out myself, well trying too. :-( my T had been reactive this week so sleep has been limited but learning to tune it out which takes a lot of mental strength.
    ErikaS
    Love/hate how a dash of Ativan quiets the T and reactivity, even if it's brief. How have they not figured out a safer med with same affects?
    View previous comments…
    ErikaS
    @Joe Cuber yes, it definitely has an affect which is a blessing and a curse. I have been taking .25mg at night for about 2 months, going to taper soon. I have read on here that it can hold up healing. Glad I'm on such a low amount though.
    ErikaS
    @Strawberryblonde I have been taking .25mg at night for about 2 months, going to me tapering off over the next few weeks. Doesn't really do anything for sleep anymore.
    Forever hopeful
    Travis Henry
    Hope u are ok. How is Neurofeedback going ?
    View previous comments…
    Travis Henry
    Got any tips kn decreasing neurological inflammation
    ErikaS
    @Travis Henry, I would look up things/supplements for nerve inflammation and mitochondrial dysfunction. I don't have anything specific for you as it can be trial and error.
    ErikaS
    @Travis Henry I know ur against meds, but have u considered switch to Valium to wean from Clonaz. more easily, then wean from V? Also wondering if u'd benefit from nerve pain med, with how loud ur T is & if nerve inflammation based, just a thought. I know meds suck, but the goal is to get ur body/mind to come down from the "fire in the house" state, then once you get there, address weaning.
    ErikaS
    I am praying that next week is the start of brain and body healing, as well as a decrease in tinnitus.
    ErikaS
    It's not getting better. Only worse. Especially reactivity. I believe that it has become brain based as I am not showing any hearing loss.
    ErikaS
    I am 3 months into tinnitus that started with ear infection and only on sound in R ear, but has now become multiple sounds and in both ears.
    ErikaS
    Next week I start craniosacral therapy & will do a brain map to begin a specific Neurofeedback therpay progam that is designed for tinnitus.
    DebInAustralia
    Hi Erika, I would be interested in your experience with neurofeedback, if you are open to sharing? I am considering this myself.
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