Jerad

Are you still getting these zaps? Have you tried altering diet or altering supplements?

@Jupiterman ya I’m still getting them. No diets helped. Haven’t tried supplements extensively bc I’m so sensitive. I spike to everything. Do u get zaps?

Sorry to hear that. I get zaps, but only a few a day and they aren't that intense. In fact they have probably eased in past few months. I noticed when I ran out of Magnesium supplements the zaps became a lot less intense and fewer of them.

I dont have H i had something similar to it briefly , basically when i first got my tinnitus a sharp instant sharp pain in my ears dropped me to my knees, ever since then i had T. and i did have reactive T briefly.

that said I always thought Tinnitus was far worser because at least you can rest in peace with H, and literally hibernate and some what live. Tinnitus follows you everywhere.

Yup. I agree. :(

i mean for christ sakes the freaking twin towers was still burning with smoke literally near the time you got tinnitus, im sorry but it just blows my MIND how much time has passed from 02. God you are strong. you deserve a cure so much. please let us be the last of this generation to deal with this suffering.

It doesn’t look like I can post my pics of my work on here for some reason.

I really like that Batman artwork - quite powerful imagery and you chose very well which images to use. I have a dark sense of humour so actually found myself chuckling at imagery and the mood. You should be able to post your art - there is a thread I think for this purpose in the general chat category. Do you make money out of art? Or just spare time hobby.

Thanks, @Stuart-T. I have a dark sense of humor, too, sometimes. Ya, I’ll have to look into posting it on that thread. It doesn’t let us post images in these chat boxes. I also like the Batman artwork because it’s like a comic strip along with the writing. No, I don’t make $ from art, so it’s just a hobby. For most of my career, I was working in radio and television/NBC until recently.

You’re welcome. :) & thanks, man. I’m glad you enjoy what I have to say.

Distraction.

Haha I feel like I just want to jab an electrical rod in my brain and jolt that noise away

I had that was like a wine glass being rubbed its one of my tones that come during a spike its been a month since i heard it

I replied in your Introduction thread.

Hey Jerad. I can fill you in with some details about my experience if you want. I’m super busy these next few days though.

I wear mine but i have minimal amplification i use for the tones it plays to help with tinnitus i was worried about my hypercacusis but doesn't effect it .. since i control volume keep em low on phone app i have widex ones

@sakrt thanks for the compliments. I’d like to write for a living. It’s an idea I’m exploring. I’m sorry to read that you’re struggling. I hope we can all recover.

@Jerad @Elmer B Fuddled has writer's block over at ccaat and needs a sidekick. @ZFire says it has to be alike Pride and Prejudice. ;)

Poor @ZFire, even the Wim Hof method won't work.

How can the brain be so stupid

Thanks, @DebInAustralia :-) it sounds like anxiety could be a problem, as I never took those meds referenced. But it seemed that my head t/hissing/electrical/zapping started after topical use of colloidal silver. I appreciate u sharing this. Today was a very bad t day. Days like this make me feel like I gotta try something. It’s just not sustainable like this—too torturous and unreasonable. Idk what to do.

Anyway, it seems to me you're saying we can still go FORWARD. So let's do that!

LEEEEEET'S GOOOOOOOOOOOOOOOOOO @Stacken77!!!!!

In theory, going forward is possible. You're right, LEEEEEEEEET'S GOOOOOOOOOOOO. Just chain those researchers to the ground while we go around the world at the speed of light. And a hundred revolutions later, a thousand centuries later (for them, not us), if I spot someone with white noise generators, LEEEEEEET'S crash on the nearest mountain.

Ya, going to the future would be good, too. Let’s say we went 300 years forward, certainly a cure or effective treatment would exist by then (I hope). So I guess we wouldn’t need to go to the past. But if we were stuck in the future, we wouldn’t be able to reclaim our former life in this time period with loved ones, etc.

@DebInAustralia thanks for reaching out! I appreciate it :-) If u pray please pray for me. I’ll pray for u too. It’s been tough and hoping to find a solution soon. Are u trying anything new for ur t?

@Jerad ahhh shite, I'm sorry man, didn't realize you were suffering from both T and pain H. That sounds like hell :( Hopefully there's some kind of underlying physical issue that can be remedied causing this. I know it's apples and oranges, but that was the case for me, and I was stubbornly convinced I had irreversible cochlear/nerve damage for like a year.

@Tweedleman thanks for reaching out. Ya, it’s hell, for sure. How did u improve? Did u take a supplement, med, or do a therapy? I have intrusive t and loudness h. No pain h, but the intrusive t causes pain sensations.

This strongly indicates a form of reactive neuralgia;Sphenopalatine Ganglion Neuralgia, worsened by tension and inflammation. Try Holy Basil Tulsi tea, Spearmint tea and check out Blackseed oil and/or Oregano oil (Takes time to work). Icepacks to back of head/mastoid areas. Deep breathing. -important-

And it sux because if I didn’t have the hissing/zaps, I would be at peace with my t. Rest of it is tolerable, even the low frequency, vibrating hum.

I seem to have this zing after acoustic reflex test just sound like a knife rubbing half a rimof glass once in awhile

@Hottopic29 does the zing cause a feeling of pain too? Like a shrill pain sensation?

mine is such a strange one, came from a very very clogged ear for 2 months like...i had only one ear clogged ,t in both ears even i had only one clogged... i cant understand if is inner ear as i didnt have ears problems whatsoever..sensibility..nothing,,,im afraid was hypoxia in the middle ear..which goes directly in brain steam dysfunction...

there is an efferent specific loop for mechanoreceptors in the middle ear, was dry inflammation from an external mold in the ear canal..they kept giving me sprays only saying is ETD..is like a fizzing thing in the brain...when bad just goes in a full steam hissing that takes over the whole brain

@Ela Stefan sorry to hear that. Do u feel physical pain sensations with the T? Mine wouldn’t be near as bad if it were just a sound. Unfortunately it’s a sensation too where I feel sharp zaps and painful sensations. I think the frequency is so high and shrill that the stupid brain interprets it as painful cuz in real life encountering that sound would be unpleasant. I also have severe hyperacusis.

@DebInAustralia thanks for the suggestions and checking up on me! Have you tried either of those yet? I’m still having a rough time. T feels like electrical currents and zaps. Yesterday was a better day, but today is bad again. If the better days were the norm, I’d feel like this all wasn’t so bad. They’re not unfortunately.

hi Jerad. youre welcome! we are in this together. I have taken chinese skullcap before (lyme), tried it again (t) but didnt take it for long. Think after reviewing data on its ability to drive down neuroinflammation, i will have another crack at it. i just thought id mention it because i know you are hesitant to try the ldn. this might be worth looking into as it also has an effect on pro inflammatory brain cytokines

https://www.sciencedirect.com/science/article/pii/S0753332220311094

have a look at the section under MICROGLIA

it downregulates microglia which are responsible for releasing proinflammatory mediators; including tnf alpha

Our brain*. I have a close friend who had SSHL - one ear almost deaf, only hears a few low tones and she got no tinnitus. Neither does she understand what it means to have it... Me, on the other hand, with no hearing loss even at ultra high freqs...

A shining light in such darkness is that the research associated with sch projects is shared in the scientific community and can be picked up by new people. Even a step back is still a step forward.

Or rather a "set back is a step forward"

@ThomasF good point - very true. Xen1101 for example wouldn’t probably be in development if it weren’t for trobalt. So developers learn from others and build upon that. Hopefully a new effective drug will be developed soon that has funding & the proper channels to push it fwd

Are you still considering LDN?

@DebInAustralia I’m thinking about it, but I’m kind of scared because every time I spike, it causes a permanent worsening. And I’ve seen stories of bad spikes with LDN. Seen great success stories, too, though. T has gotten bad & I can’t afford another worsening, even though I’m kind of desperate for relief. Not sure what to do. How about you?

When ur desperate with bad T tho, u kinda are in a situation where there’s a lot more to lose by not trying, ya know?

There might be ppl in the acute stage that coulda taken trobalt for 3 weeks and been permanently relieved of disaster. And 3 wks use probably would be safe in most situations, even with a hard drug.

I mean, it’s no diff than chemo - look how hard that is on the human body. Tinnitus at its worst can be a life ending monster like cancer so ya I think they shouldn’t have pulled trobalt but rather kept it in use for brief weeks only treatments (for acute)