Marina Moon
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Marina Moon

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Reminder for me to stick with a soft food diet....also wondering regretfully if i should have gotten that brain scan... May 21, 2024

    1. Marina Moon
      Marina Moon
      Reminder for me to stick with a soft food diet....also wondering regretfully if i should have gotten that brain scan...
      1. View previous comments...
      2. Higo
        Higo
        @Marina Moon What specifically makes you think its brain related?
        May 22, 2024
        Marina Moon likes this.
      3. Marina Moon
        Marina Moon
        @Higo I've had a lot of neurological symtpoms that pointed to multiple sclerosis, or trigeminal neuralgia because of the facial pain.
        May 22, 2024
      4. Higo
        Higo
        @Marina Moon Definitely get an MRI done to try exclude the possibility. Hopefully there isn't any issue on the scan.
        May 22, 2024
    2. Marina Moon
      Marina Moon
      if any doctor can tell me what EXACTLY is the root of my problem then they just answered the million dollar question!
    3. Marina Moon
      Marina Moon
      Now for some good news! My belly button stopped bleeding! There is still some fleeting pain in my abdomen but it is mainly a lot better.
      1. tpj likes this.
    4. Marina Moon
      Marina Moon
      My not so happy 1 year anniversary. Mother's day of last year was the first day i reported my symptoms, not knowing what was awaiting me.
    5. Marina Moon
      Marina Moon
      I'm bleeding from my belly button and it hurts. Don't know why. How am i supposed to live laugh love life like this?
      1. Marina Moon
        Marina Moon
        my mind screams at the idea of more pain, I can't take it anymore. i just can't
        May 5, 2024
        L along the way likes this.
      2. L along the way
        L along the way
        Sorry to read.. (saying to myself too).. trying to be kind to yourself..
        May 5, 2024
        Marina Moon and tpj like this.
    6. Marina Moon
      Marina Moon
      NGL but i really just want to stuff my face with Doritos rn. Nacho cheese, ranch, the good stuff, MMMMMHHH!!!
      1. DesertRain and streifzug like this.
    7. Marina Moon
      Marina Moon
      I'm the shittiest daughter alive. My mom fell & i couldn't catch her. I should have just threw myself down & been used as a human cushion.
      1. View previous comments...
      2. Marina Moon
        Marina Moon
        my mom was trying on outfits today, which is a good sign, because she always tries on outfits, like putting on her own fashion shows, in the mornings (usually). So she's resuming activities again, but slowly, she had to stop because it worsened some symtpoms. But it's a start. She's also taking time off work.
        May 4, 2024
        tpj likes this.
      3. Marina Moon
        Marina Moon
        horrid thought. My mom should have just fell on me. Sure, I would have been in more pain that i absolutely cannot take, but at least my mom would be fine.
        May 5, 2024
      4. tpj
        tpj
        @Marina Moon you are an incredibly caring daughter, but stop saying this.Your mum seems to be improving and you have enough pain to deal with. More than enough.
        May 5, 2024
        Marina Moon likes this.
    8. Marina Moon
      Marina Moon
      I had a follow up appointment with the physiotherapist & i forgot to mention my T. I just didn't want to interrupt everything she was saying
      1. SumGuy likes this.
      2. SumGuy
        SumGuy
        how it go?
        Apr 28, 2024
        Marina Moon likes this.
      3. Marina Moon
        Marina Moon
        @SumGuy She just wanted to check out on how i'm doing, how i'm liking physical therapy, though my pain is still persisting but she doesn't know why i have facail pain. It got worse yesterday actually, and then my mom suffered a head injury and had to be rushed to the hospital. She fainted then fell backwards and hit her head on the ground. Life...ain't too great rn....
        Apr 29, 2024
    9. Marina Moon
      Marina Moon
      Thankful for delicious food <3
      1. tpj, Kiyomi and weehiru like this.
      2. ZFire
        ZFire
        Me two :)
        Apr 30, 2024
        Marina Moon and tpj like this.
    10. Marina Moon
      Marina Moon
      Are twitching muscles considered a headache? When i lay on my left side, the left temporalis muscle starts twitching VERY OFFPUTTING like.
    11. Marina Moon
      Marina Moon
      how am i still alive
      1. ZFire
        ZFire
        You’re stronger than you realize :)
        Apr 16, 2024
      2. Marina Moon
        Marina Moon
        @ZFire I have learned that many of us here are <3 Thank you i'm trying to be :)
        Apr 23, 2024
        tpj, ZFire and 4Grace like this.
      3. ZFire
        ZFire
        Yeah, We’re definitely all resilient.

        Cheers :)
        Apr 24, 2024
        Marina Moon and tpj like this.
    12. Marina Moon
      Marina Moon
      OMG I NEED TO MAKE AN UPDATE ASAP!!!! (what i learned today in PT)
      1. weehiru, BrOKeN_1 and SumGuy like this.
      2. View previous comments...
      3. Marina Moon
        Marina Moon
        Well, at least he's confident that i'll never need rotator cuff surgery lol
        Apr 16, 2024
      4. Marina Moon
        Marina Moon
        But a few things are for certain. TMD is real, and people can have this same condition but experience it differently (the same is true for other conditions and diseases.) It is a multifactorial condition that has different causes and different treatments because no two patients are the same. Alot of poeple have it, but not alot of people treat it. We need more TMD doctors, because we are in a crisis.
        Apr 16, 2024
        weehiru likes this.
      5. Marina Moon
        Marina Moon
        i wonder if my PT doesn't verbally explain much to me is because he has facial pain because of his TMD. That or he simply isn't one for explaining things.
        Apr 16, 2024
    13. Marina Moon
      Marina Moon
      When will i wake up from this terrible nightmare?
      1. SumGuy, tpj and aab like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Let me know when you do! Because I am wondering the same thing!
        Apr 11, 2024
        Marina Moon and tpj like this.
      3. SumGuy
        SumGuy
        waking up is the hardest part of the day. Knowing whats waiting for you :(

        I hope theres a treatment soon.
        Apr 12, 2024
        Marina Moon likes this.
    14. Marina Moon
      Marina Moon
      I WANT MY FULL RANGE OF MOTION AGAIN T_T
    15. Marina Moon
      Marina Moon
      i'm starting to think my dad has tinnitus because he watches movies SO LOUDLY with explosions, gun shots, & screaming. I'M SICK OF IT >:O
      1. Sansa, tpj, Kiyomi and 1 other person like this.
      2. SumGuy
        SumGuy
        I cant remember the last time I watched a movie since getting T lol
        Apr 10, 2024
        Marina Moon and Sansa like this.
      3. Marina Moon
        Marina Moon
        @SumGuy I still watch shows, but never with ear buds. I can't give up movies and shows XD I just can't understand why my dad watches movies with the volume insanely high!
        Apr 12, 2024
    16. Marina Moon
      Marina Moon
      i really need to hold myself accountable for what I eat. I ate 1 torilla on saturday, then crunchy fries today, and I am in pain T_T
      1. SumGuy likes this.
      2. View previous comments...
      3. SumGuy
        SumGuy
        I'm sorry to hear that, I never knew something like that could happen. Are you able to get treatment for it?
        Apr 10, 2024
        Marina Moon likes this.
      4. Marina Moon
        Marina Moon
        @SumGuy I'm currently undergoing physical therapy, it kind of has been working, it's tough to say at this point. However, the PT i've been working with doesn't know how to treat TMD and constantly tells me it's a separate issue, but i know he is blatantly wrong.
        Apr 11, 2024
      5. Marina Moon
        Marina Moon
        Alot of poeple don't know about TMD because we're never told about it and not alot of doctors treat it, and when doctors do know they just say 'oh you've been grinding you're teeth, you need to see a dentist and wear a mouth guard' which is a very narrow tunnel vision view of a multifactorial condition that differs vastly between patients. I've visited so many doctors and none know how to help. I'm very bitter lol
        Apr 11, 2024
    17. Marina Moon
      Marina Moon
      So my throat (and ears/eustachian tubes) is itchy. I use my tongue to itch the back of my throat, and it makes my T louder.
    18. Marina Moon
      Marina Moon
      *sighs dreamily* pancakes
      1. tpj likes this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Sounds good!
        Mar 23, 2024
        Marina Moon and tpj like this.
      3. Marina Moon
        Marina Moon
        @Tryn2BHopeful I bought pancake mix and i hope to make them this week! I'm either going to make them plain or make them blueberry pancakes.
        Mar 28, 2024
        tpj and Tryn2BHopeful like this.
      4. tpj
        tpj
        Mmmm... blueberry pancakes!
        Mar 28, 2024
        Marina Moon likes this.
    19. Marina Moon
      Marina Moon
      It happened again. I bent over the sink, but this time the pain was in the middle of my back, accompanied by nausea.
      1. streifzug likes this.
      2. View previous comments...
      3. Marina Moon
        Marina Moon
        @Tryn2BHopeful The middle of my back has been cracking for a while but this is the first time i've had pain bending down, maybe it's because i've been using a foam roller for my back in PT. I was fine during the exercises, I don't know, but i'm going to stop using the foam roller.
        Mar 23, 2024
        Tryn2BHopeful likes this.
      4. Marina Moon
        Marina Moon
        every time i explain my symptoms the doctors just stare at me in silence, or when i tell the PT about my jaw, he just says it's a separate problem.....it feels like i know more than the doctors do when it should really be the other way around.
        Mar 23, 2024
        Tryn2BHopeful likes this.
      5. Tryn2BHopeful
        Mar 28, 2024
        Marina Moon likes this.
    20. Marina Moon
      Marina Moon
      I had a flare up last night. My face was hurting more & T got louder. It calmed in the morning, i need to start using hot compresses again
      1. View previous comments...
      2. Marina Moon
        Marina Moon
        Funny how no one in my family believed me at the time, so i had to go find evidence aka go through the public camera footage of the beach that particular day and find the exact moment when the demon with wings hit me. It frickin body slammed me from the sky like a pro wrestler. Happy ending, I found the footage and my family believed me. Who knew it was foreshadowing to later problems....
        Mar 22, 2024
      3. Marina Moon
        Marina Moon
        Anyway, never eat food on the beach. Seagulls are aggressive and when they see food they will go for it. Or at least eat under an umbrella, in your car, or any place with a roof in which a seagull won't be able to flop like a cannon ball on top of you.
        Mar 22, 2024
      4. Marina Moon
        Marina Moon
        i'm starting to think i'm a magnet for bad luck....
        Mar 22, 2024
    21. Marina Moon
      Marina Moon
      Happy Saint Patrick's Day! There's a pot of gold at the end of every rainbow :D
      1. BrOKeN_1, crescentsky, Kiyomi and 4 others like this.
    22. Marina Moon
      Marina Moon
      I went to my first physical therapy lesson today! I am sore, but not in any more pain. I need to strenghten my pelvic floor and core.
      1. tpj and Tryn2BHopeful like this.
      2. Marina Moon
        Marina Moon
        I hate to say this, but i cried this morning, hard. I give myself full permission to cry on april 1st, until then stay positive and just think about what i need to do to get through this.
        Mar 14, 2024
    23. Marina Moon
      Marina Moon
      If you're suffering from a TMJ problem then please read "The TMJ Healing Plan" by Cynthia Peterson. It's the best TMD book out there. Truly.
      1. aab likes this.
    24. Marina Moon
      Marina Moon
      I was too scared to jinx this, but ear pain has been down for weeks!!! Don't know why but i'm happy about it!
      1. alwaysmasking, _Shoto_, Sansa and 5 others like this.
    25. Marina Moon
      Marina Moon
      Had an evaluation with the physical therapist today (details in the comments)
      1. View previous comments...
      2. Marina Moon
        Marina Moon
        I told the PT that i have scioliosis and he said i probably had it for 15 years without noticing it. Also that i have foward head posture to which he responded 'don't we all' I wonder how many people he has seen with forward head posture and were fine with it, because mine is just mild, how could mild forward head be so bad? Nobody's posture is perfect!
        Mar 10, 2024
      3. Marina Moon
        Marina Moon
        TMD is very overwhelming and makes me want to scream in horror.
        Mar 11, 2024
      4. Marina Moon
        Marina Moon
        I already knew that doctors are on a time crunch when seeing patients. I don't like that, but what i didn't know is that the computer will lock the doctor out, of whatever program they're using, when they go beyond their alotted time with a patient. Forcing them to keep things short. i don't like the system anymore, it's wrong, messed up, and evil T_T
        Mar 11, 2024
    26. Marina Moon
      Marina Moon
      (venting) The old me used to be so nice and caring. I'm glad she's dead, she was a pushover to other poeple's bullshit.
      1. streifzug likes this.
      2. View previous comments...
      3. BrOKeN_1
        BrOKeN_1
        I find you nice and caring. But I wouldn't dare mess with you ;)
        Mar 6, 2024
        tpj and Marina Moon like this.
      4. Marina Moon
        Marina Moon
        Mar 6, 2024
        tpj likes this.
      5. Marina Moon
        Marina Moon
        @BrOKeN_1 XD I want to be rough and tough like a biker girl!!
        Mar 6, 2024
        tpj and BrOKeN_1 like this.
    27. Marina Moon
      Marina Moon
      Because my pain hasn't gotten better, I will be starting physical therapy next month. I really hope this helps me...
      1. Tryn2BHopeful and tpj like this.
      2. View previous comments...
      3. cullenbohannon
        cullenbohannon
        Its hard when family doesn't take you seriously, a mental health professional may help you to process what you're experiencing in a more manageable way, and can allow you to better heal your body in the long run.
        Mar 8, 2024
        Marina Moon likes this.
      4. Marina Moon
        Marina Moon
        @cullenbohannon Thank you for reaching out. It's just a really hard time with so many factors at play. All i pray for is better days and healing. It's the most loneliest experience I have ever faced in my life. Sometimes my parents mistake me being less vocal as healing, but I'm just getting so tired of speaking, and i'm crying more.
        Mar 11, 2024
      5. Marina Moon
        Marina Moon
        @cullenbohannon There are definitely benefits in bettering one's mental health with professionals, and necessary when life becomes so turbulent, something i may consider in the future. But now i really need to get the pain down first. Though venting online is sometimes a good outlet, i can just let out my thoughts and then forget about them for a while. Thank you again!
        Mar 11, 2024
        cullenbohannon likes this.
    28. Marina Moon
      Marina Moon
      the video in alerts just made me depressed...
      1. 4Grace, tpj and Tryn2BHopeful like this.
    29. Marina Moon
      Marina Moon
      Another day. Not too thrilled about it.
      1. _Shoto_ and 4Grace like this.
    30. Marina Moon
      Marina Moon
      I feel like i'm living in a cage and every day is a repetition of the last
      1. _Shoto_, streifzug, 4Grace and 5 others like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Same. Groundhog Day... and that happens to be today...
        Feb 2, 2024
        4Grace, gameover, Marina Moon and 2 others like this.
      3. Juliane
        Juliane
        Feel exactly the same
        Feb 2, 2024
        4Grace, 4alien2, gameover and 3 others like this.
      4. Marina Moon
        Marina Moon
        @Tryn2BHopeful I totally forgot it was Groundhog Day! The timing is so wierd (yet i've been thinking about that movie alot recently lol)
        Feb 3, 2024
        4Grace, Tryn2BHopeful and gameover like this.
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  • About

    Tinnitus Since:
    05/2023
    Cause of Tinnitus:
    TMD