MartinPihl
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Gender:
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Birthday:
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Location:
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Occupation:
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MartinPihl

Member, Male, from Denmark

13 months in and absolutely no improvement. Still the same 5 sounds + crackeling/popping in ears when i talk. Darn, life can be tough. Sep 5, 2022

MartinPihl was last seen:
Sep 24, 2022
    1. Lchops
      Lchops
      How are you holding up?
      1. NYCGuy likes this.
    2. MartinPihl
      MartinPihl
      13 months in and absolutely no improvement. Still the same 5 sounds + crackeling/popping in ears when i talk. Darn, life can be tough.
    3. MartinPihl
      MartinPihl
      Sigh.. Since this morning, every sound has sounded "metallic" and loud in left ear. It came after a loud fleeting T. Anyone else tried that?
      1. kingsfan
        kingsfan
        I've had the metallic sound before, not the loudness. It went away after a couple days.
        Aug 22, 2022
        MartinPihl likes this.
      2. MartinPihl
        MartinPihl
        @kingsfan Thank you - it is always a little comforting, knowing that others have experienced the same.
        Aug 23, 2022
    4. Lchops
      Lchops
      Sorry I should’ve specified mem is middle ear myoclonus. I’m quite skeptical on trying the muscle relaxants because they indicate that it can cause ringing in the ears and I don’t want to make that worse. As for surgery it’d be very last resort but cutting the tensor tympani and stapedius. He only does a handful a year and says its 50% chance to get better. How did all your situation start to begin with?
      1. MartinPihl
        MartinPihl
        That's always such an evil dilemma. Would one risk bettering, if there is a chance to get worse.. I'm barely hanging on with my 5 tones.. if it got worse, i would definitely not be able to live with it.
        Jul 13, 2022
      2. MartinPihl
        MartinPihl
        The clicking in the ear - i have no idea how it started! It was just there one day, and having gone away since. However, There are sentences where it goes away for a few seconds - have you also experienced that, and have you found any pattern?
        Jul 13, 2022
      3. 3mmalee
        3mmalee
        May I ask whag muscle relaxanrs they gave you Lchops? Did you try them by now and are they helping?
        Jul 25, 2022
    5. Lchops
      Lchops
      Oh no I’m sorry to hear that. My ent said it’s probably Mem and prescribed me muscle relaxants. Last option would be surgery. Is it getting any better for you?
      1. MartinPihl
        MartinPihl
        Thanks for reaching out!
        What is "Mem" (im not a native english speaker)?

        Wow that sounds great with medicine and an option for surgery? I am VERY interested in hearing, whether the medicine helps and/or if you choose surgery. But what kind of surgery did the ENT suggest? It is very intriguing that the ENT even suggested that - when mine said that absolutely nothing could be done :O
        Jul 11, 2022
    6. Lchops
      Lchops
      How did the apt with your ENT go? Any insights?
      1. MartinPihl
        MartinPihl
        None at all.. she knew about the problem, but: "no available treatments - learn to live with it".
        Jul 3, 2022
    7. MartinPihl
      MartinPihl
      Sigh. EVERYTIME it gets a little better, a new worsening comes. Went to the dentist who used ultrasound.. DO NOT try that fellow t-sufferes!
      1. JPGL, Marshall, Wrfortiscue and 2 others like this.
      2. Damocles
        Damocles
        Noted.
        Apr 21, 2022
        JPGL, MartinPihl and Wrfortiscue like this.
      3. Steph1710
        Steph1710
        There’s no way I would! Never mind, hoping you improve quickly.
        Apr 21, 2022
    8. MartinPihl
      MartinPihl
      Currently suffering a spike from hell, after being hit with a serious round of the flu. Hoping so, so much that it is temporary!!
      1. View previous comments...
      2. MartinPihl
        MartinPihl
        Thank you both so much for your comments - @Stacken77 you are totally back to baseline now?
        Mar 20, 2022
        JPGL likes this.
      3. Stacken77
        Stacken77
        @MartinPihl I did get totally back to baseline, yes. The flu cleared in 5 days or so, but the spike stayed relentlessly for 1,5 weeks before showing sign of receding.
        Mar 20, 2022
        JPGL, Damocles and MartinPihl like this.
      4. MartinPihl
        MartinPihl
        I'm glad to hear that, and thanks for answering!
        Mar 21, 2022
        JPGL and Damocles like this.
    9. MartinPihl
      MartinPihl
      Switching between feeling 20-30% habituated and then BAM - back to 0% again! This happens every other week.. Anyone else feel the same way??
      1. JPGL, Barry098 and NYCGuy like this.
      2. View previous comments...
      3. MartinPihl
        MartinPihl
        @buttercake Thanks for the reply - it means alot to me! Have a good evening friend.
        Mar 14, 2022
      4. NYCGuy
        NYCGuy
        Take times but at least you see progress little by little
        Mar 15, 2022
        Damocles and MartinPihl like this.
      5. Barry098
        Barry098
        Tinnitus is kind of like the movie “groundhogs day” for me.
        Mar 17, 2022
        NYCGuy and MartinPihl like this.
    10. MartinPihl
      MartinPihl
      Fleeting T gone for 4 days. However, baseline T is now higher - keeps me once again awake at night. Why cant this curse at least be stable??
    11. MartinPihl
      MartinPihl
      Down to 1x fleeting tinnitus a day!
      1. Nadia231, Ondine, Leila and 4 others like this.
      2. Leila
        Leila
        That's great!
        Jan 17, 2022
        Damocles and MartinPihl like this.
      3. NYCGuy
        NYCGuy
        You did something to help with that?
        Feb 7, 2022
      4. MartinPihl
        MartinPihl
        Well, i've been taking lots and lots of supplements, suggested by others around the forum.
        But as it is always the case with tinnitus - i dont know if that was the helping hand.. however, now i do not dare to stop again!

        Note, that my "core tinnitus" has not changed - only the massive attacks of fleeting tinnitus.
        And actually - now i only have them approxmatly every other day!
        Feb 18, 2022
        JPGL, NYCGuy and Damocles like this.
    12. MartinPihl
      MartinPihl
      Fleeting tinnitus at least 5 times a day..
      1. JPGL, NYCGuy, Nadia231 and 1 other person like this.
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  • About

    Gender:
    Male
    Birthday:
    January 1
    Location:
    Denmark
    Occupation:
    Teacher
    Tinnitus Since:
    2021
    Cause of Tinnitus:
    Unkown
    5 tones of T plus fleeting T often... Looking for new brain+ears!