Samy

Hi @ErikaS! My H fluctuates a lot through the day, it’s crazy. T too. Sometimes I can forget I have it, sometimes spikes out of nowhere. Trying to avoid the forum, to calm my mind and survive. How are you doing? I read that you are trying the stem cells. I hope you see a lot of improvement soon!

@ErikaS I have T in both ears, but definitely the right one has louder T. But the left one has horrible hyperacusis. It doesn’t make sense. I dont know about hearing loss… in the «standard» test my hearing is normal. I tried doing the «extended» test at home and I could hear better than my husband haha. But I know I need to do it with a professional someday.

Sounds like blood pressure related, when I bend over it feels like my head gets heavier and I get a pulse in it too. @Samy

When your head is lower than your heart, the blood flow will increase, making everything in your head feel more intense (try standing on your head). We feel it in our ears more as the blood vessels are very fine and delicate in middle and inner ear so are more sensitive to (blood) pressure changes.

My Dad has moderate to severe hearing loss. He only has fleeting tinnitus and it's very rare. I wonder how I won the jackpot???

Yes it does.

I do believe there is a difference in many situations between sudden HL or sudden extreme noise trauma compared to gradual loss over time and it’s affect on the brain and making T come about and even the severity of the T. That sudden loss or damage is obviously harder on the brain to adapt, therefore emitting sounds in response to try to correct it.

@Samy I'd recommed double protection; plugs and muffs. Perhaps move to rear room in house too while work is being carried out.

And watch what time they start in the morning. Don't get caught sleeping-in with no protection in your ears and their jackhammers start up.

@ZFire My God! In your place, I would be looking for another place to live haha. My H is so bad right now that even with protection and closed windows I think I can’t handle the jackhammer. I’m going to stay isolated in my mother-in-law tomorrow.

@Jupiterman Thank you for the advice!!

Hey @Samy how are you doing, how is curable going?

Hi @Erika! I’m trying to stay away from the forums a bit, because I’m a mess at this moment. Sleeping is very difficult and I wake up with panic attacks. I stopped Curable and started DNRS (because I think it’s a more structurated program), doing mindfulness and vagal nerve exercises, and some other things. I hope you are doing well!!

@Samy ugh I am SO sorry to hear, this condition is so awful. Last week I was in the same boat as you, waking up shaking with panic and little sleep. I got Magnesium Calm to do before bed along with melatonin and Benedryl and that seems to help. I am learning that sleep is so vital with this, I hope you can get some asap !

I saw there is a big list of famous people with T, but none of them like to talk about it… It’s horrible, we need visibility, to be taken seriously. Before this happened to me, I thought if we abused our ears, we would only lose hearing. But I found out (in the bad way) if we abuse them, we’ll be torturated by them with T and H like hell. AND NO ONE TALKS ABOUT THIS SH*T

i honestly think theres some conspiracy going on, because it makes ZERO sense in why tinnitus isnt even mentioned. like it wouldnt even be that hard to get people in a frenzy over this, all a top celebrity has to do is make a movie or make an IG video over tinnitus and make it would go viral. shame on ATA, and the rest of these frauds

@Samy I'd like to think maybe if a treatment is found no one will make a big deal and we just take it and go on bout our lives. no big party no celebration just oh heres your cure...Goodbye..we take it and try to make best of this cruel life. i would tho honor the deceased tho and try to make their stories into a film. this is literally hell on earth

Oh and dont forget im only an accident away from what you guys have or worse. KNOCK ON FREAKING WOOD. i have anxiety and fear like a mofo. others like to say its normal I say no ill say its more tolerable for sure but my life is done. spikes new tones randomly uughh its torture. If susan shore comes through for us my life will be back

Hi @sakrt ! Sorry the delay, I didn’t receive a notification about your message. My motor skills are still the same as before (amen). Drawing and painting even in silence make me forget about T. They are great distractions.

@KoolKat This is really unfair, a nightmare. Are you living isolated for about a decade? You never habituated to your T? :/

did it go down or away

@KoolKat the spike is finally subsiding little by little

@Samy sorry I am just seeing this. Yes it seemed like I had more sound sensitivity but I suspect this was due to my fixation on monitoring my ears. It did get better. Hope you're doing better now.

What type of distortions to you get? I've got beeps in my left ear when watching the TV, running water, wind etc so annoying. It flares up and then goes.

Mine is a static white noise overlay to certain frequencies.

@Strawberryblonde Mine reacts mostly to running water and car sounds. Even with protection in the car I hear some strange beeps. And after the shower I always have a spike for about 3-5 minutes. My «distortion» is like a morse code. I think the ET’s are trying to send me a message

Hi! Sorry the delay. Lately, I’ve been really struggling with the hyperacusis... For me it’s worse than tinnitus. Even car sounds make my tinnitus react. I hope you are doing ok!