Danny Boy
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Joined:
Oct 12, 2014
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Gender:
Male
Location:
England

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    1. Tony Joy
      Tony Joy
      did you say you are now tinnitus free
      1. Danny Boy
        Danny Boy
        It's much milder than before, to the point where I barely hear it. Sadly I have Visual Snow, from trobalt....
        Jan 1, 2018
    2. Zita
      Zita
      Hello Danny, you don’t know me as I have no idea how to really use this site.
      I too live close to Bristol and am finding it hard to live with this dentist drill/power lines/hoover in my head that the hot showers do not cover up!
      I was interested to note that you get meds would you mind telling me what and does it help? I have just bought CBD awaiting delivery!
      1. Carlyi
        Carlyi
        the meds are called Trobolt and are no longer available. They have alot of dangerous side effects.
        Dec 14, 2017
        Apolonia likes this.
      2. Danny Boy
        Danny Boy
        Hello, I wouldn't suggest or recommend trobalt to anyone, even if you could obtain it. One of the more serious side-effects is Visual snow and you honestly, do not want that.
        Feb 3, 2018
        Dana, SadMan, zhiyuan and 1 other person like this.
    3. Tony Joy
      Tony Joy
      Hi Danny how`s it going,for a fellow Bristolian ?,I am still on Trobalt,but take it like an aspirin for a bad headache,,only the odd floater which isn`t a bother,Until something else comes out I`ll stick with this,hope you are finding some relief,all the best Tony
      1. Paulmanlike
        Paulmanlike
        How does trobalt help you? How much on a scale for example from a 10 to a 4? How long does the effect last? Cheers!
        Sep 17, 2017
        Tony Joy likes this.
      2. Tony Joy
        Tony Joy
        Hi ,the effect is reducing it with each 200 mg tablet,on some bad days i need 600 mg to take it down from a 10 to a 4 ,those bad days are usually stress days or following a night down the pub
        Sep 25, 2017
        Paulmanlike likes this.
      3. Paulmanlike
        Paulmanlike
        That's great tony fingers crossed a safer drug comes along with a similar therapeutic effect! How long does it last ?
        Sep 26, 2017
        JPGL likes this.
    4. Salih
      Salih
      Hi Danny, i read that you got rid of your H and your reactive T using Keppra. Is that still true or did either of them come back?
    5. Tom Rollison
      Tom Rollison
    6. Taviap14
      Taviap14
      Can you private message me
    7. Taviap14
      Taviap14
      Hi Danny where can I get some trobolt, I am in the USA and I feel like my neurologist will not prescribe me the drug especially at high doses, I'm willing to pay you to ship them to me?
    8. Richard kuzma
      Richard kuzma
      How do you post so everyone can reply
    9. Richard kuzma
      Richard kuzma
      Had ear tube surgery in Sept now I have tinnitus.have you heard of anyone else that has this problem
    10. Robert44
      Robert44
      Haven't seen you around here for awhile. Although I don't wish that anyone has to go on here, it's nice to see your post again . Hope all is well.
      1. Danny Boy
        Danny Boy
        Yeah, I'm fine. Thanks for caring ^^.
        Dec 18, 2016
    11. zwaluw
      zwaluw
      Hi Danny, how is your T at the moment? Do you take medication for your T? Do you still take Trobalt?
      1. Danny Boy
        Danny Boy
        Private message me and I can go further into detail. Cheers.
        Dec 18, 2016
        миша likes this.
      2. zwaluw
        zwaluw
        I don't know how I can send a PM. Could you tell me?
        Thanks!
        Dec 25, 2016
    12. Robert Gratton
      Robert Gratton
      Hi everyone it's really getting me down this ringing in ears I am 55 male from England anyone want seen to chat share how they cope would really appreciate it from robert
      1. Danny Boy
        Danny Boy
        Of course. Private message me, when you can.
        Dec 18, 2016
    13. oric.com
      oric.com
      Hi Danny, as you know a lot about T & H, please have a look at our little application: ORIC is the first vagus-stimulation for iphone. We stimmulate the auricular branch of the vagus and embedd the stimulation in your favourite music. The stimulation also trains the stapedius muscle, which can be quite effective to fight hyperacousis. The app is free to try! Regards oric
      1. Danny Boy
        Danny Boy
        I don't have hyperacusis anymore. But thanks for the information. Also, I don't have an iphone.
        Jul 28, 2016
        SadMan likes this.
    14. brummygirl
      brummygirl
      Hi Danny. I am trying to help our 22 year old son who also has ME. He was weightlifting and suddenly developed severe tinnitus. He is desperate to find help and does not feel that he can live with this volume of continuous sound. I am pretty overwhelmed with all the information out there. Would it by any chance be possible please to pm you for some signposts as to where to find help and what to try? Thanks so much
    15. chegallo69
      chegallo69
      Hello danny. I've been reading a lot of posts, and came across one, were you said you been cured of tinnitus with trobalt. Are you still in remission?
      1. Danny Boy
        Danny Boy
        Very old post. Sadly, it came back after a few weeks. Unfair eh?
        May 21, 2016
      2. chegallo69
        chegallo69
        Sorry to hear that. On what medication are you right now? How is your t?
        May 21, 2016
      3. Danny Boy
        Danny Boy
        Trobalt and gabapentin.
        May 21, 2016
    16. Kyxwz
      Kyxwz
      hello danny! is very important. I need to talk to you. Have you a facebook page? how i cosuld contact you? It is for Trobalt and other cures. I have to make attempts with my neurologist. (sorry for my english, i am italian).
    17. Rina
      Rina
      Love your new profile picture❤️
    18. leon
      leon
      Hi Danny. Can you help me?my t is such a high now i can hear it everywhere. I tried rtms but it didnt work: ( trobalt is my only chance now. Did trobalt make your t lower?sorry can't pm to you(
      1. JPGL and MBH like this.
      2. View previous comments...
      3. leon
        leon
        And your t stays lower although you dont take any trobalt?
        Jan 19, 2016
        JPGL likes this.
      4. Danny Boy
        Danny Boy
        Sadly not.
        Jan 19, 2016
      5. leon
        leon
        Thank you ((
        Jan 19, 2016
    19. Santiago
      Santiago
      Hi Danny hope you doing ok, I'd always been interested on the effecct of keppra on you,How much dose and time did it take to get rid of the hyperacusis and reactive tinnitus, is you T still remaining or lower? and to which doctoe I shoudl go to be prescribed Keppra.
      1. Danny Boy
        Danny Boy
        I took 2000mg a day for 3 months. But, if that doesn't work, I'd suggest trobalt.
        Jan 17, 2016
    20. Danny Boy
      Danny Boy
      Happy Holidays everyone! And a Merry Christmas to you Christians ^_^.
      1. Blackbird26
        Blackbird26
        Merry Merry Danny Boyo!
        Dec 6, 2015
        Danny Boy likes this.
      2. Mark662
        Mark662
        Cheers Danny. Best wishes to you pal
        Dec 6, 2015
        Danny Boy likes this.
      3. Richard zurowski
        Richard zurowski
        All the very best to you Danny.
        Dec 6, 2015
        invictus and Danny Boy like this.
    21. Stotoph
      Stotoph
      Hi Danny I specially registered to this forum to talk to you. I had T since 2011 and a few months ago after my wedding it has worsened. I tried AM-101 etc. Can I drop you a PM?
      1. Danny Boy
        Danny Boy
        Of course! PM me.
        Dec 5, 2015
      2. Stotoph
        Stotoph
        Thanks!
        I'm unable to send a PM? Do I need to have a specific amount of posts before I'm able to send a PM?
        Dec 6, 2015
    22. David007
      David007
      Hi Danny Boy! I've been reading your posts in the forum and I've some questions about Trobalt, is there anyway to contact you, in a private conversation?
      1. Danny Boy
        Danny Boy
        Yep, just PM me.
        Dec 5, 2015
        Rina likes this.
    23. Danny Boy
      Danny Boy
      Have you noticed that all the people in favour of birth control are already born?
      1. davidamee86 likes this.
      2. Sailboardman
        Sailboardman
        Be kinda tough to make a comment, if they weren't. }:-)
        Nov 16, 2015
        Dana and Asvalian like this.
    24. Mikeywill860
      Mikeywill860
      Hi Danny thank you so much for all your insight! Are you still taking phosphcholine? Also since youve stopped trobalt has your t gotten any worse?
    25. PnL67
      PnL67
      Hi I am from France , I would like to take medicine for my mild hyperacusis , what should I take anti epileptic has navis tone for mild hyperacusis ? Keppra ?
    26. Rina
      Rina
      i used to watch benny hill when i was little!!!! good memories!
    27. Bran350
      Bran350
      Hi Danny, just had a spike in my T about 2 months ago now, just wanted to see if I could PM you? I just joined tonight and can't figure out how to PM on here. Thanks man.
    28. dachanique
      dachanique
      Hey Danny I'm new to this "T" thing I was hoping to find answers on how to deal with I just found out about a week that have "T" & it's very difficult I'm only 20 years I haven't worked in days I'm just trying to find away to deal with this .
      1. Danny Boy likes this.
      2. Danny Boy
        Danny Boy
        PM me.
        Oct 22, 2015
    29. Danny Boy
      Danny Boy
      Once I had the rarest rose, that ever deigned to bloom. Cruel winter chilled the bud and stole my flower too soon.
      1. brummygirl, Rina, Dana and 2 others like this.
      2. Blackbird26
        Blackbird26
        Beautiful.
        Oct 7, 2015
        Danny Boy likes this.
    30. grant k
      grant k
      Hey man hope everything is well with you my name is grant and I am 21. What is the reason your tinntius has gone trobalt and iif so how did you get it. Also is there anything you have taken. Thank you
      1. Danny Boy
        Danny Boy
        Hey, Grant. I was taking a combination of trobalt, keppra and campral. I got them in Spain.
        Aug 28, 2015
      2. grant k
        grant k
        Ok thank you. Does that cost and when you stop taking the drugs does the tinntius come back sorry for all the questions
        Aug 28, 2015
      3. grant k
        grant k
        Ok thank you. Doesn't that cost alot and when you finish taking the tablets does the tinntius come bac sorry for all the questions
        Aug 28, 2015
        Dana likes this.
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  • About

    Gender:
    Male
    Location:
    England
    Tinnitus Since:
    7/2014
    Cause of Tinnitus:
    Ear infection
    My name is Daniel and I've had tinnitus since July 2014, it started from an ear infection and decided to migrate to the other ear. I'm trying to stay strong and not consider suicide, but I am struggling. I hope that I can overcome this and learn to adjust, a treatment would be nice, just so I can have some hope. Sorry I sound negative, really don't want to, but I feel sucky at the moment. Hopefully there is a silver lining to this dark time of my life.

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    The incurable is curable.