Nes

Nes

Member From Belgium
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  • Nes
    In one month I made great progress! I'm able to go out with just my ear muffs, and not double protection, again. Most every day noises are tolerable again. It's still not great, but it's progress. My tinnitus however is still pretty reactive and can get VERY loud after just simple conversations. A bit at a loss on whether I should push or not.
    Nes
    In need of a bit of advice : I'm weening off hearing protection at home, my hyperacusis is really settling down, but my tinnitus is getting worse. It gets so loud by just having simple conversations although it does not hurt my ears
    delta784
    im so sorry nes do you have tinnitus felt in skull middle of my brain
    Nes
    @delta784 not really, mine is more localized in my ears directly (both ear are drastically different)
    delta784
    Hello Nes you still take clonazepam occasionally?
    Nes
    Hello! I think the last time I took clonazepam was when I was hospitalized in June and couldn't sleep because I had bad tachycardia. Otherwise no, I don't really need it lately. But I keep pills in my bedside table just in case
    Nes
    My tinnitus is often lower when I'm exhausted. That's a good news because tinnitus is exhausting lol
    Nes
    Actually, my hyperacusis is almost completely gone today. It makes no sense, I'm running on 2h of sleep
    Nes
    Also, quick update: my hyperacusis has gone down to the point I feel comfortable listening to cars passing outside again. Spikes are very short-lived now, at most 3 days compared to the 2 months it used to take. I sleep so much better and it helps a lot
    Kam75
    Hyperacousis does get better over time, if you don't overprotect your ears all the time and if you expose your ears little by little to sound which are not supposed to be harmful (<70 db).
    I wish I could sleep again. I didn't have a restful sleep for like 2 years :(
    Nes
    @Kam75 i took the opposite approach and overprotected until it went down (my H is accompanied by nerve pain and my tinnitus is reactive). Sorry about your situation!
    Nes
    Today I saw a great ENT who told me that recovering from hyperacusis is like recovering from surgery. It takes time, and everyone is different. He told me I was right to protect, that I should continue to do so until I feel comfortable moving to the next step. When I mentioned that other ENT have the opposite discourse, he told me: "Well, they are not up to research then". What a great ENT.
    Nes
    Big progress in june 2025 ! Tinnitus stabilizing, hyperacusis softening a bit, shorter spikes :)
    Nes
    I'm getting weird headaches/tinnitus flare ups in the early morning. It's like my head is pulsating with sound. Hyperacusis has been flaring up too after a noisy day, although it's getting better by day 3
    Nes
    Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !
    Nes
    Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat
    Nes
    I also think I'm starting to develop an outer ear infection because of the constant protection. Good thing I'm already under antibiotics but it's stressing me out
    kingsfan
    Could just be irritation. It happens to me a lot.
    Nes
    Everything was going OK at the hospital until I was put in a room with someone hooked to various extremely loud beeping machines. I got blasted with high pitched pure tones and my tinnitus is not liking that
    T
    can you wear earplugs?
    Nes
    @tobyharrixon fortunately I can. I wore them for almost 48 hours straight though so my ears are getting sore... But today was a quiet day, I did fine with just ear defenders
    Nes
    Currently hospitalised because I have air around my heart. They have to put me on penicilin and I'm SCARED. No choice if I don't want to die though
    Nes
    I accidentally listened to the coil whine on my monitor while looking for the source of some noise I was hearing and now I have this awful new tinnitus sound. It's been 24h. Scared I gave myself a new permanent sound...
    Nes
    False alarm, it's gone after a good night of sleep!
    Nes
    My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days. My hyperacusis today is almost gone and my T doesn't react. I've decided to do sound enrichment by opening the windows
    D
    Oh wow. I recently got an annoying morse code thing that appears on top of some sounds. Maybe the treatment is more sound exposure after all?
    Nes
    @DimLeb I spoke too soon, as yesterday I tried to sound enrich with waves sounds on my phone and it caused me a spike and a bit of pain. I protected for the rest of the night and sleep reset the spike. But so far, sounds not coming from a digital source have been very effective for me!
    delta784
    @DimLeb that morse code i have it too its dysacusis
    Nes
    Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)
    Nes
    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.
    Nes
    Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.
    Nes
    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
    henkess
    happened to me to, i hate that. It takes some days for me to settle down
    Nes
    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
    Nes
    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
    Nes
    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad.
    Does anyone else have that?
    View previous comments…
    Nes
    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
    S
    @Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth.
    Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same feeling?
    Nes
    @Scruffiey IT IS! Why did I never think of that!
    Nes
    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
    vilebubbles
    So sorry. Same for me. Constant cars going by and family. Love them so much but they can be loud.
    Nes
    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a good note, my reactive tinnitus is a bit less reactive.
    S
    Try sticking some cotton wool in your ears, it's a little bit of defence without too much rebound when you take it out, plus it's a fairly comforting feeling.

    But I'd still wear the muffs in the kitchen my self, better safe than sorry!
    Nes
    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear muffs. The cotton lets just enough sound so I can habituate to everyday noises without too much stress and pain
    S
    @Nes Glad it's working out for you! :) Before I knew what I had was hyperacusis (I thought the nasal steroid had just cleared my Eustachian's out and I just wasn't used to how good my hearing was...) I'd started doing it around the house and I attribute it to my natural recovery while keeping my tinnitus in check.
    Alberte
    Hello Nes! Does clonazepam help you?
    Nes
    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from the tinnitus. I still wake up but I don't notice the tinnitus so I fall back asleep. The first time I got a very quiet day, but since i also got my period on the same day, I'm not sure which caused which.
    Nes
    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless legs syndrome/muscle spasms. For those issues, the clonazepam is working perfectly fine
    Nes
    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry :sorry:
    Nes
    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes
    adpolandam
    Do sudden sounds hurt you?
    Nes
    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though
    Nes
    My noiseless pc setup using a steam deck is up and ready ! This console has been the best thing i bought in 2024
    View previous comments…
    Varda
    Some of the PC cases produced by Fractal Design have sound dampening material lining the inside.
    Nes
    @Lurius I will probably make a post with the specifics (comments are way too short) , but I use sunshine and moonlight to stream my pc to my deck, which is connected to a monitor. It works surprisingly well with 0 latency
    Nes
    @Lurius another solution I've stumbled upon and which is my end goal is to use thunderbolt with a kvm extender and optical display port cables to use directly the pc from another room. More expensive and requires cables to run across all appartement, but better quality
    Nes
    Huuuge mold issue in my room. It explains why my nose felt stuffed. Might have something to do with the slightly increased tinnitus of those past
    2 days. At least I hope.
    Nes
    Ironic : my Brain filters out the sound enrichment I use at night because it's too busy focusing on tinnitus. Took me 20min to realize it was still running
    Nes
    My ears popped the other day and the tinnitus disappeared for 1s?! Reactivity and sensitivity have been way down since. WTH happened????
    Nes
    Oh irony, I say it gets better just for it to get worse the next day. It just got higher pitched for no reason
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