Nes

Nes

Member From Belgium
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  • Nes
    Everything was going OK at the hospital until I was put in a room with someone hooked to various extremely loud beeping machines. I got blasted with high pitched pure tones and my tinnitus is not liking that
    Nes
    Currently hospitalised because I have air around my heart. They have to put me on penicilin and I'm SCARED. No choice if I don't want to die though
    kingsfan
    penicilin should be safe
    W
    I did an entire course of penicillin and it didn't touch my T one iota.
    Nes
    I accidentally listened to the coil whine on my monitor while looking for the source of some noise I was hearing and now I have this awful new tinnitus sound. It's been 24h. Scared I gave myself a new permanent sound...
    Nes
    • Nes

      Nes

    False alarm, it's gone after a good night of sleep!
    Nes
    My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days. My hyperacusis today is almost gone and my T doesn't react. I've decided to do sound enrichment by opening the windows
    D
    Oh wow. I recently got an annoying morse code thing that appears on top of some sounds. Maybe the treatment is more sound exposure after all?
    Nes
    @DimLeb I spoke too soon, as yesterday I tried to sound enrich with waves sounds on my phone and it caused me a spike and a bit of pain. I protected for the rest of the night and sleep reset the spike. But so far, sounds not coming from a digital source have been very effective for me!
    delta784
    @DimLeb that morse code i have it too its dysacusis
    Nes
    Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)
    Nes
    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.
    Nes
    Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.
    Nes
    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
    henkess
    happened to me to, i hate that. It takes some days for me to settle down
    Nes
    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
    Nes
    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
    Nes
    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad.
    Does anyone else have that?
    View previous comments…
    Nes
    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
    S
    @Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth.
    Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same feeling?
    Nes
    @Scruffiey IT IS! Why did I never think of that!
    Nes
    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
    vilebubbles
    So sorry. Same for me. Constant cars going by and family. Love them so much but they can be loud.
    Nes
    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a good note, my reactive tinnitus is a bit less reactive.
    S
    Try sticking some cotton wool in your ears, it's a little bit of defence without too much rebound when you take it out, plus it's a fairly comforting feeling.

    But I'd still wear the muffs in the kitchen my self, better safe than sorry!
    Nes
    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear muffs. The cotton lets just enough sound so I can habituate to everyday noises without too much stress and pain
    S
    @Nes Glad it's working out for you! :) Before I knew what I had was hyperacusis (I thought the nasal steroid had just cleared my Eustachian's out and I just wasn't used to how good my hearing was...) I'd started doing it around the house and I attribute it to my natural recovery while keeping my tinnitus in check.
    Alberte
    Hello Nes! Does clonazepam help you?
    Nes
    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from the tinnitus. I still wake up but I don't notice the tinnitus so I fall back asleep. The first time I got a very quiet day, but since i also got my period on the same day, I'm not sure which caused which.
    Nes
    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless legs syndrome/muscle spasms. For those issues, the clonazepam is working perfectly fine
    Nes
    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry :sorry:
    Nes
    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes
    adpolandam
    Do sudden sounds hurt you?
    Nes
    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though
    Nes
    My noiseless pc setup using a steam deck is up and ready ! This console has been the best thing i bought in 2024
    View previous comments…
    Varda
    Some of the PC cases produced by Fractal Design have sound dampening material lining the inside.
    Nes
    @Lurius I will probably make a post with the specifics (comments are way too short) , but I use sunshine and moonlight to stream my pc to my deck, which is connected to a monitor. It works surprisingly well with 0 latency
    Nes
    @Lurius another solution I've stumbled upon and which is my end goal is to use thunderbolt with a kvm extender and optical display port cables to use directly the pc from another room. More expensive and requires cables to run across all appartement, but better quality
    Nes
    Huuuge mold issue in my room. It explains why my nose felt stuffed. Might have something to do with the slightly increased tinnitus of those past
    2 days. At least I hope.
    Nes
    Ironic : my Brain filters out the sound enrichment I use at night because it's too busy focusing on tinnitus. Took me 20min to realize it was still running
    Nes
    My ears popped the other day and the tinnitus disappeared for 1s?! Reactivity and sensitivity have been way down since. WTH happened????
    Nes
    Oh irony, I say it gets better just for it to get worse the next day. It just got higher pitched for no reason
    Nes
    Almost 6 months in. I'm getting more and more good days and I'm learning things about my T. Prolonged low noise spike me badly...
    Marcello
    Did your march spike subside?
    Nes
    It kind of did, then I got 2 more spikes during that time. My march spike was due to stress definitely, it took 2 weeks to get down. Then I got another one due to a vacuum which did get down a bit but introduced a new sound which lasts even today. I got one last spike from a bus ride at the beginning of June which started going down last week. Hope that helps
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