Search results for query: TTTS

I'm 'Lucky' to have severe hearing loss, tinnitus, TTTS & hyperacusis, BUT it empowers me to connect with others, educate & help them find relief. 😌 https://yourtinnitusguy.com

...that this drug might be useful to some degree for some of us, as it clearly reaches the right areas. I’m really, really hoping it helps with TTTS, hyperacusis, and noxacusis—maybe even with reducing early-onset tinnitus levels or something similar. I believe tinnitus will be treatable, if...

...long term consequences of my condition. Even now, I am still unsure whether I am dealing with early stage noxacusis, tensor tympani syndrome (TTTS), or just some temporomandibular disorder (TMD) caused by stress and anxiety. With no objective tests available, the only way to find out would...

@IYIiKe, has Mirtazapine helped you? I’ve been prescribed it but haven’t taken it yet. I was hoping to manage my tinnitus-related anxiety and sleep issues without it. One of my concerns is that it can sometimes increase tinnitus perception. Has that happened to you?

...old discovery that was just ignored for ages. It could even lead to some exciting new drugs. All that other stuff would just be a bonus at this point. My main concern is the risk of exacerbating my noxacusis or TTTS—whatever it is. But with its potential anti-inflammatory properties... 🤞

I have reactive tinnitus too, and antibiotics do make it spike. But it usually settles down. It is hard to live with!

...my right side, which is my worse ear, lower frequencies sound off and feel uncomfortable. There is also a possibility that this is related to TTTS, tonic tensor tympani syndrome. At one point, when my tinnitus had started to improve, I experienced a dropout tinnitus episode where my ear...

...appointment, and I am far from an expert on these matters, as I am relatively new to all of this myself. My best guess is that it is some combination of allergies, TTTS, and/or Eustachian tube issues. The fluid sensation seems to be a rare symptom, as I have not found many people talking...

Your success story has given me hope to keep fighting and staying positive. I was starting to lose my spark, but this brought it back and reminded me that things can, will, and do get better over time. I’m only one month into my tinnitus onset, but I’ve already noticed major improvements since...

...experiencing it all for the first time. I started plugging in louder cars and work environments. Dishes became painful again, and my old friend, TTTS (tonic tensor tympani syndrome), came back to say hi. To cope, I purchased 9 dB filters for my plugs and only use them to take the edge off...

Yes, this definitely sounds like TTTS (which is a type of MEM). I have had it for over 1 1/2 years, although I did experience a single incident of it happening shortly after my tinnitus went severe, but it didn't return regularly until 1 1/2 years afterwards. I get both the thumps and...

@DimLeb, thanks. Do you plan on trying any of these medications out?

Not specifically for TTTS, but for my MEM (spontaneous spasms not in reaction to sounds), I tried taking Magnesium and sinus rinses/nasal steroid spray. They had no effect at all. I've read online that Carbamazepine and some other anti-epileptic and muscle relaxer drugs can help both TTTS and...

...It's more like the ear canal itself is squeezing, along with the fullness. Could this be related to Eustachian tube dysfunction (ETD)? I have TTTS (possibly caused by noise?), along with tinnitus, ear fullness, that squeezing sensation, occasional ear canal pain, on-and-off tingling in the...

@DimLeb, have you tried any medication for this condition? I would love to hear about your experiences if you have.

...🤷🏻‍♀️ That’s very interesting—sorry to hear you’re dealing with that. Do you think the Eustachian tube (ET) issues are contributing to your MEM/TTTS? I believe that’s the case for me, but I can’t figure out if it’s due to sinus/blockage issues or the fact that my tubes are also patulous...

...sure if I’ve mentioned it before, but I also experience reactions to certain sounds and even to touching my face, which is probably related to TTTS. Regarding your question, over the past year, I’ve also started dealing with Eustachian tube issues. Some days, I get a blocked feeling, mostly...

...it’s not static or a beep but more like a wave that dips in and out. Before this, I experienced some symptoms of tensor tympani syndrome (TTTS), including a thumping sensation in my eardrum in response to certain noises, but that has since stopped. I’m also fairly certain that this new noise...

...can also be set off by something as simple as moving my neck or turning over in bed. I also experience other symptoms due to having both MEM and TTTS. For example, I get fluttering sensations in response to certain sounds and voices, including my own. Even small movements like shifting my...

...I keep thinking about trying carbamazepine or even surgery, but I worry about making things worse than they already are. I have gotten used to TTTS, but not MEM. Because it is occasional (I might have it once a week for an hour, or I could have daily episodes lasting up to eight hours, it is...

...However, it can take several days for the muffled hearing and loud reactive tinnitus to settle whenever it happens. Oh, and I also have MEM and TTTS (along with many other ear issues). It’s very difficult dealing with so much going on every day! I’ve also read what you mentioned about...

...in both ears—most days, it’s unbearable. When I’m in a quiet room, I notice an intensity to it that wasn’t there before. On top of that, my TTTS has worsened; every keystroke on my keyboard triggers a thumping/fluttering sensation much more than it did before. During the illness, I didn’t...

...permanent mild to moderate multi-tonal tinnitus. It can be particularly bothersome on some days since it's variable. On top of that, I deal with TTTS (spasms triggered by certain sounds) and occasional MEM episodes (spontaneous spasms that can last for many hours). I imagine it could be one...

I don’t think people in this thread fully understand the curse that MEM is. I’ve been dealing with it for a year and a half now (on top of TTTS). My episodes last anywhere from 2 to 14 hours and are often triggered by yawning or hiccups. During these episodes, I experience continuous spasms...

...issue. My advice would be to return to the GP and ask for a trial of something like Gabapentin or a muscle relaxer to see if it’s related to TTTS. You might need to push for this, but if you emphasize your mum’s mental health—something we all understand given the torment she is going...

...won't): Ear pain directly from sound (e.g., as seen with pain hyperacusis). Fluttering, spasms, or clicking in my ears (commonly linked to TTTS). Muffled or distorted hearing, aside from the sensation of fullness. I can tolerate sitting in a fairly noisy room and even engage in...

Thank you for sharing your story, Robert! 😊 It is an inspiring one, and it gives me more hope.

...hear my pulse on the left side when wearing headphones or lying on that side. This side also exhibits symptoms of tonic tensor tympani syndrome (TTTS), particularly in response to low-frequency sounds like typing. Other Ear Noises: My left ear occasionally produces rapid, unexplained...

...ear pressure from even extremely minor changes in elevation), also increase my awareness that I am living with a disability. Similarly, when TTTS flares up and my ears react to sounds like clicks, plates, or utensils, it serves as a reminder that something is damaged. Combined with the...

...sometimes think, “Wow, that is loud,” but I would still fall asleep without much trouble. Fast forward to a couple of years ago: I developed TTTS, reactive tinnitus, shock like sensations (likely due to nerve damage), and mild hyperacusis after a poorly fitted hearing protection episode...

...The hopelessness sets in when you realize they have no real understanding or explanations for tinnitus, reactive tinnitus, loudness hyperacusis, pain hyperacusis, TTTS, or the causes of hearing loss. It’s like taking your car to a mechanic and leaving with a leaflet advising you to get...

...might have made me more vulnerable to an acoustic shock at much lower decibel levels than what would typically cause a problem. I have TTTS and loudness hyperacusis, so the symptoms tied to ETD fall under the broader umbrella of acoustic shock disorder. I stopped taking Gabapentin because...

...cook while wearing ear defenders, and go for walks. I still have fluttering in my left ear, as though something is loose, which is likely TTTS. What I really want now is to talk normally again and have regular conversations, not just whispers. This condition is unimaginable. Nobody could...

Thank you a lot for sharing your story :)

...struggles when I first developed it was the fear of never being able to have (more) children. My tinnitus is moderate, and I also experience TTTS with pain and mild loudness hyperacusis. Here's how my experience went during pregnancy, broken down by trimester: 1st Trimester: No change in...

...I focus, I can hear it in most places. The ringing has also changed since it began. It has moved into my "good" ear, and now I have developed TTTS in that ear as well. My toddler is honestly the only thing keeping me going right now. I feel like everything has worsened because my anxiety is...

...be formed after acoustic trauma, and that is a slow process. Anxiety, “fear of sounds,” tensing up, stress, poor sleep, and similar issues fuel TTTS and are all obstacles to healing. There’s still time, @matt89, and a good chance of improvement. Have faith that you’ll get there with time. I...

You’ll be fine. From what I understand, Prednisone can affect the brain’s neurotransmitters, so it might take some time for things to settle. Four weeks is a short time; improvements are usually more noticeable month by month.

...there. I really hope some of them start to fade in the next few weeks. The hyperacusis seems to be improving slowly as well. However, I have TTTS from the acoustic shock, so I still experience some pain from impact noises at home. Thanks for sharing. @delta784, I’m hopeful that we’ll both...

May I ask if you also experience an increase in ear pressure when you speak? My ear pressure tends to increase in the evening, along with the high-pitched tinnitus.

...volume. Listening only at low volumes wouldn’t make sense for the therapy, especially if you’re looking to recover from hyperacusis and TTTS. Gradually increasing the volume daily is key to helping your auditory system desensitize. One thing Rob may have implied but didn’t specifically...

I’m experiencing similar symptoms, especially the feeling of ear fullness. It might be TTTS or something else affecting my hearing. Yesterday, I came across an article that might be helpful. You could try translating it from German to English...

...tolerate music, I would give Rob's music protocol a fair shot. The aim of music is to rewire some subconscious associations to sound you may have. I stopped my own TTTS symptoms with a shortened version of this. Although he recommends headphones, I still wouldn't use them - accidents can happen.

...fluttering (muscle spasms in response to certain sounds and volumes). However, I do now understand what’s happening with my ears. It’s severe TTTS (Tonic Tensor Tympani Syndrome) that’s causing most, if not all, of my symptoms. Sometimes, the fullness and spasms will completely disappear for...

Would an ENT be able to see if the eardrum is pulled inward, or is it only slightly retracted but enough to affect hearing? I also had my ear's vibration measured by the ENT, and it was normal. I'll try using an infrared warming light over the next few days. Maybe it can help calm down this...

...trauma, the tensor tympani muscle behind the eardrum can become tense or tighten up for several months, sometimes even developing spasms (TTTS). In this case, the eardrum is often pulled inward and not in its normal position because the tightened muscle is still trying to protect the inner...

Hello everyone, Three months ago, I suffered acoustic trauma, and I’ve been dealing with pre-existing hyperacusis, hearing loss, and tinnitus. Now, I’m experiencing some strange hearing issues, and I can’t quite figure out the cause. When I talk for an extended period, a strong pressure builds...

...started experiencing a fluttering sensation in both ears when I hear certain sounds or music. After researching extensively, I'm convinced it's TTTS (tonic tensor tympani syndrome), which can result from acoustic trauma. If I understand correctly, after every acoustic trauma, the ear's...

...I’ve tried going without it, but that doesn’t work for me. The tinnitus isn’t very loud, but I have mild dysacusis at certain frequencies, along with TTTS. However, after 14 months, I’m slowly habituating to it all. I live a normal life and protect my ears when necessary, such as in clubs.

...I’m not sure if you’re still active, but if you are, I would really appreciate it if you could answer some questions about your experience with TTTS (tonic tensor tympani syndrome): You mentioned that it improved over time. If I understood correctly, the TTTS fluttering is still present for...

It’s difficult to explain, but it’s similar to doing the Valsalva maneuver without having to pinch my nose. I can flex my ears to temporarily open the tubes. However, this doesn't help when I experience TTS fluttering or other symptoms—I can't stop the spasms.

Hey, I think I am dealing with severe TTTS after a few long car drives following months in quiet. I am having a metal banging type noise as well as loads of other horrible sounds. How are you now?

Hi Matt, Thank you for your explanation. I do have hearing loss, but it’s not from the recent setback—at least, not a measurable one. I attended a DJ event with my custom silicone hearing protectors, which I’ve used frequently without any problems after concerts or loud events. However, this...

...to improve. The feeling of pressure or fullness is often associated with Eustachian Tube Dysfunction (ETD), inner ear muscle trauma or spasms (TTTS), or cochlear damage. The cochlea can react with pressure or fullness because it lacks pain receptors. If your audiogram does not show...

Hi Matt, It’s been three months since my setback from the DJ event, even though I was wearing hearing protection. I’m still experiencing this pressure, which tends to worsen in the evenings. Sometimes it feels a bit better during the day, but it’s still different. As the pressure increases, my...

...It’s definitely worse in the evenings when the fullness becomes extreme, so I use earplugs, which help me forget about it temporarily. I have TTTS (Tonic Tensor Tympani Syndrome) in my right ear, where I also experience more fullness compared to my left ear. The tensor tympani muscle inside...

...best active and passive noise-cancelling mechanisms out there. I have to be cautious about loud noises being played through them. However, playing brown noise through them while in a grocery store with active noise-canceling turned on has been quite helpful for my hyperacusis, reactivity, and...