And the Band Played on — Musical Hallucinations / Musical Ear Syndrome

Discussion in 'Introduce Yourself' started by Pennant, May 25, 2020.

    1. Pennant

      Pennant Member

      Tinnitus Since:
      1981
      Cause of Tinnitus:
      Ear Infection/Noise
      Hello,

      I am new here! And struggling so much! I have had tinnitus since a childhood infection when I was 11 but over the last ten years my hearing has gotten worse, most probably due to loud noise. Over the last ten years my symptoms have worsened and eventually I found it was getting harder to discern some speech. Added to my usual tinnitus sounds I began to hear a loud piercing drill. That was three years ago.

      Eventually the drill stopped only to be replaced by endless music. Yes! I had developed musical ear syndrome. Continuous, unbearable musical hallucinations. I cannot drown out the music with other sounds because my musical hallucinations become louder every time I try. It is as if my musical hallucinations are competing with the outside world for my attention! I am in pain much of the time as well. Concentration on anything is hard, and despite this I am naturally a happy chap : ) Always lively and creative. I don't get down.

      However, after enduring this for more than two years the musical hallucinations are worse than ever now. It is so horrible to listen to (you'd think my brain would choose better instrumentation!) I have been so very tolerant, accepting that this is me from now on.

      But unfortunately I have hit a massive wall. I cannot imagine my life with these musical hallucinations any more. It is simply unbearable and I don't know what to do or where to turn. Anyway, that's me!
       
      • Hug Hug x 3
    2. Peter61

      Peter61 Member

      Location:
      The Netherlands
      Tinnitus Since:
      08/2012
      • Like Like x 2
    3. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
       
    4. hans799
      Mellow

      hans799 Member Benefactor Hall of Fame

      Location:
      Hungary
      Tinnitus Since:
      Born with it
      Cause of Tinnitus:
      Worsened Dec 2016 by headphones
      Are you still being exposed to loud noise? If so, you should stop immediately. Cut out concerts, power tools, loud headphones, etc. Invest in quality earplugs and earmuffs. Hearing damage is cumulative and your ears are already pretty shot. If you're still around loud noise, you're doing yourself a grave disservice and not only are you blocking your own healing, you're making your condition actively worse.
       
    5. AUTHOR
      AUTHOR
      Pennant

      Pennant Member

      Tinnitus Since:
      1981
      Cause of Tinnitus:
      Ear Infection/Noise
      The loud noise was ten years ago, I have avoided it before then and since then. I have always sought to look after my hearing but there was a brief time ten years ago where I should have been more careful. I now live with the consequences of this. I have other hearing issues because of an ear infection and I am due to have an operation later this year - so there's lots happening!
       
      • Like Like x 1
    6. AUTHOR
      AUTHOR
      Pennant

      Pennant Member

      Tinnitus Since:
      1981
      Cause of Tinnitus:
      Ear Infection/Noise
      I am certainly hopeful that treatments and cures may come about. And I am encouraged by the link you kindly sent me. :)
       
    7. GBB

      GBB Member Hall of Fame

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Virus / Microsuction / Acoustic Trauma
      I have this too - if I listen to music I'll continue to hear something vaguely similar for a bit, like music coming from another room, although right now mine is not constant.
       
    8. xyz
      Alienated

      xyz Member

      Location:
      Germany
      Tinnitus Since:
      2006 mild T 2019 T worsening H onset
      Cause of Tinnitus:
      unknown / probably noise induced
      This sounds more like Palinacousis. Seems like some with hyperacusis have it.
       
    9. GBB

      GBB Member Hall of Fame

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Virus / Microsuction / Acoustic Trauma
      My assumption is the brain is receiving a damaged signal from the ears and tries to do contextual interpretation - if I listen to birds I’ll hear something like birds, for example. It lasted about 30 minutes for me.
       
    10. xyz
      Alienated

      xyz Member

      Location:
      Germany
      Tinnitus Since:
      2006 mild T 2019 T worsening H onset
      Cause of Tinnitus:
      unknown / probably noise induced
      I would like to know what must have been damaged in our ears / brain to generate this strange sensation. I did a bit of research on this last year and some papers said "most always found some lesion on the temporal lobe". So I did MRI as I was scared of brain tumor, but it showed up nothing just increased tinnitus + hyperacusis.
       
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