Angiogram

Discussion in 'Introduce Yourself' started by Stephanie19115, Aug 14, 2016.

    1. Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      Hello! I just found this forum.
      I have been suffering from Tinnitus since 2013.
      It started as a low sporadic hum. I went to my doctor and he said I have Tinnitus and to take some decongestants and it would go away. Didn't work.
      The tinnitus kept getting worse and more frequent. 6 months ago my friend hugged me tight with her head next to my head. She jumped back because she could hear the noise! I then realized that if I push my carotid artery the noise isn't as loud.
      I scheduled another appointment with a new doctor and had an ultrasound done on my carotid artery as well as testing with an ENT. Everything came back negative. Nothing could be found. I was told since the noise doesn't seem to be hurting me, to just try and ignore it.
      I am in sales and I engage with customers all day. Over the next few months, the noise became louder and was happening everyday, all day. It became almost debilitating and difficult to hear customers. In addition, I would get terrible headaches and get lightheaded and dizzy.
      I went back to the doctor. She then referred me to a neurologist. I go to the neurologist and she asks me questions and then begins to listen to my head with a stethoscope. She leaped off the table because she could hear the noise. She said she has never heard that before. She ordered a MRI and CT scan. The CT did show that I have a vascular loop at the base of my brain but she said that there is another reason for the sound. I was referred to a neuro vascular Doctor.
      This brings me to today. I have an angiogram scheduled for Tuesday the 16th. The neuro vascular doctor said he is certain that I have a fistula in my brain. He also thinks something else may be going on. He said after he locates the fistula, I will probably need to have it embolized.
      #1 has anyone had an angiogram of the brain and #2 has anyone had an embolized procedure?
      Thanks in advance!
       
    2. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @Stephanie19115

      Good luck with your procedure this coming Tuesday. It sounds like you may have pulsatile tinnitus, the type that other people can hear. I truly hope that the angiogram goes well for you.

      I have not had that procedure myself, but have heard of many others having the procedure with no complications. You might want to look on Whooshers.com, if you haven't already, to read about this and other procedures, and success stories of those who have had similar conditions.

      Very best wishes to you, and I hope that you are able to get your condition resolved soon.

      Karen
       
    3. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      Thank you so much for the information! I will definitely take a look at that site!
      Thanks again for your kind words
       
    4. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      • Hug Hug x 2
    5. Karen
      Talkative

      Karen Manager Staff Benefactor Ambassador Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Stephanie,

      Thanks for providing the recording. That is a very strange, almost whining sound, and it must be very hard to deal with! I hope the angiogram, hopefully followed by an embolization, will help you.

      Best wishes,
      Karen
       
    6. The Red Viper
      Curious

      The Red Viper Member

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Neck injury (Tendonitis @ trap/SCM junction)
      Jesus Christ!!

      Ahem, yes I have had an angiogram done. Not the classical one but a computed tomography angiogram. It's really simple and quick. It's basically a CT scan, except they scan you with a contrast agent. The contrast will give you a temporary hot flash throughout your entire body and will make you feel like you have to pee. It's iodine that they inject into you. If it's a CT angiogram (CTA) then don't worry about it. There is also an MRA, which is a magnetic resonance angiogram. It's basically an MRI specifically for blood vessels. I don't know much about the other types of angiograms, but here is a link:

      https://stanfordhealthcare.org/medical-tests/a/angiogram-arteriogram/types.html
       
    7. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      I have the one where they are going through the groin and shooting dye. I'm trying not to freak
       
    8. The Red Viper
      Curious

      The Red Viper Member

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Neck injury (Tendonitis @ trap/SCM junction)
      I wouldn't worry too much about that one either. When my father had a heart attack they went through the groin to clear his vessels and put a stent in. He said he didn't even feel it when they put it in.
       
    9. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      That's good! Thank you for your encouragement
       
    10. Ecip

      Ecip Member

      Location:
      Edmonton, AB
      Tinnitus Since:
      4.11.2015
      Cause of Tinnitus:
      Still unknown... possibly noise exposure?
      Sounds like pulsatile tinnitus for sure. You're one of the lucky ones, possibly. Haha
       
    11. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      Yes the neuro vascular Doctor thinks it's a fistula so we will see.
      If I would of thought of recording this before it would of saved me a lot of aggravation! The doctors kept saying it was Tinnitus but it's not a ringing! Lol! Frustrating
       
    12. dipika

      dipika Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown
      Hi Stephanie

      I hope this finds you well however what came of your Angiogram?
       
    13. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      Hi there! Since this initial thread, I have had 2 angiograms (by 2 different doctors/hospitals), countless mri’s, ct scans, ear-nose check, hearing check, heart check, carotid check... and no one can find out what is causing it. Second doctor that did my 2nd angiogram was 99% convinced that it was a fistula.
      No one knows what’s causing it. Everyone can hear it.. even audibly but can’t figure it out. It’s beyond frustrating! It’s so loud!
       
      • Hug Hug x 1
    14. Tinniger

      Tinniger Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      unsure, maybe noise (MRI, smoke detector alarm) + somatic??
    15. AUTHOR
      AUTHOR
      Stephanie19115

      Stephanie19115 Member

      Tinnitus Since:
      07/2013
      Cause of Tinnitus:
      Fistula
      Thank you for this article. It is beyond frustrating when medical professionals HEAR the sound but have solution to the problem. I’ve been told “ Don’t worry, it doesn’t seem to be hurting you, so don’t worry” ... Really??? This noise is NOT normal! And because no one knows what’s causing it, can they really say it’s not hurting me?? I have daily headaches, pressure in my neck/head, often I feel like the back of my head has a bruise!
      Again, thank you for the article. There are things mentioned that I have never heard of
       
      • Like Like x 1
    16. tiniturtle

      tiniturtle Member

      Tinnitus Since:
      3/19/2017
      Cause of Tinnitus:
      Paromomycin
      How are you doing now? I'm having a fistula investigated myself. Where are you being treated/tested?
       
    17. NcName

      NcName Member

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      I almost burst into tears. It's loud on camera. I can only imagine how it feels inside of you. I don't want to sound depressing so I wont but I hope for the best and pray for your relief.

      I was diagnosed with T today...by an urgent care md and am scheduled to see a specialist soon. I can relate to your experience with the lack of compassion. He looked at me and gave it to me blunt which wasn't so bad but he immediately minimized the whole thing and made it seem almost irrelevant. He offered his professional advice so it wasn't all bad.

      Anyway stay positive. We're all wishing for your recovery.
       

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